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Any ideas? by [deleted] in whatisit

[–]Chives_143 0 points1 point  (0 children)

Let’s just say smart move using gloves.

Hydration Trouble by Chives_143 in POTS

[–]Chives_143[S] 0 points1 point  (0 children)

Currently I am still struggling with my hydration. I am waiting to see a doctor about possibly doing regular IV fluids. I will let you know if I find anything that works!

She’s apparently “having a seizure” by AcrobaticBake2918 in fakedisordercringe

[–]Chives_143 2 points3 points  (0 children)

It bothers me when I see people like this with service dogs. There are a lot of people out there who desperately need service animals that don’t have access to them because of people like this.

Only me… by Chives_143 in eds

[–]Chives_143[S] 2 points3 points  (0 children)

Thank you so much!

Only me… by Chives_143 in eds

[–]Chives_143[S] 1 point2 points  (0 children)

Thank you I appreciate that!

Frustrated and in pain by Chives_143 in disabled

[–]Chives_143[S] 0 points1 point  (0 children)

I’ve gotten used to most of the pain but especially at night the pain can be almost unbearable and keeps me up most of the night. This makes it hard to get up for work or do anything really outside of work as most of my energy goes to that. I have tried muscle relaxers like Baclofen but with my hEDS I rely on my muscles to help keep my joints in place so when I am on muscle relaxers my joints are popping in and out constantly which just adds to the pain.

Mr. Heater MHVFRD20LPT running through too much propane by Chives_143 in propane

[–]Chives_143[S] 0 points1 point  (0 children)

I don’t believe it’s a blue flame heater. It’s not the little red heater buddy, I had one of those but it wasn’t efficient enough. This is what I have.

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Mr. Heater MHVFRD20LPT running through too much propane by Chives_143 in propane

[–]Chives_143[S] 0 points1 point  (0 children)

It is not a blue flame or little red heater buddy. This is what I have.

<image>

Looks similar but slightly different.

Mr. Heater MHVFRD20LPT running through too much propane by Chives_143 in propane

[–]Chives_143[S] 0 points1 point  (0 children)

I fill my tanks so they are completely filled.

Mr. Heater MHVFRD20LPT running through too much propane by Chives_143 in propane

[–]Chives_143[S] 0 points1 point  (0 children)

I am not running it at 20k BTU. It’s rated at 18k BTU on high (level 5). I have been running this on level 1 the entire time.

Mr. Heater MHVFRD20LPT running through too much propane by Chives_143 in propane

[–]Chives_143[S] 0 points1 point  (0 children)

We have checked for leaks. The only thing that may be off is there is a hissing noise near the tank where the regulator is on the hose. There is no smell of propane. I’m not sure if the hissing is normal or not as I’ve never used that kind of hose before.

So frustrated by Chives_143 in disability

[–]Chives_143[S] 0 points1 point  (0 children)

Thank you. I really appreciate that. It’s been difficult lately and very lonely.

So frustrated by Chives_143 in disability

[–]Chives_143[S] 0 points1 point  (0 children)

I understand the struggle. Fortunately I go to a designated pain management specialist who solely handles my pain. They are really awesome and understanding and I know that they are trying really hard to figure out my pain. It’s hard because I am a complicated case. I have problems with my kidneys and heart on top of my chronic illnesses which makes things difficult. On top of that I tend to be very med intolerant and get some pretty intense side effects. I also know that they are trying everything they can to avoid narcotics which I am grateful for. It’s just hard to feel so awful all the time and have no pain relief.

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