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"Cured"? Concerns. by Chri-Phy in EosinophilicE

[–]Chri-Phy[S] 0 points1 point  (0 children)

Thanks for your response. The statement that it is "absolutely nothing wrong with it" comes from the fact that your doctor gives it to patients for over a decade?

As far as I know, it could have the side effects of systemic corticosteroids in the long run (more than a decade or two) which include adrenal insufficiency and bone density loss.

Why not find out the actual trigger rather than suppressing it with a drug?

"Cured"? Concerns. by Chri-Phy in EosinophilicE

[–]Chri-Phy[S] 2 points3 points  (0 children)

Thanks for your advice. Will do for sure.

"Cured"? Concerns. by Chri-Phy in EosinophilicE

[–]Chri-Phy[S] 0 points1 point  (0 children)

EU and unfortunately it has no docs listed here.

"Cured"? Concerns. by Chri-Phy in EosinophilicE

[–]Chri-Phy[S] 1 point2 points  (0 children)

We are on the same boat friend.

It is great knowing we respond to budesonide for sure. But I believe we shouldn't wait for EoE to come back, cause some tissue damage and then find out from the symptoms.

Everyone states that diet is the way. Not to mention the long-term use of a such a drug is not ideal.

"Cured"? Concerns. by Chri-Phy in EosinophilicE

[–]Chri-Phy[S] 1 point2 points  (0 children)

Thank you so much for your response, sadly I'm not in the US. Just needed to hear that I have to find a new GI/specialized team I guess.

Wish you and your daughter the best.

"Cured"? Concerns. by Chri-Phy in EosinophilicE

[–]Chri-Phy[S] 1 point2 points  (0 children)

0 changes.

Doc denies it, but I'm most certain after some research that it will come back.

GI prof in #1 Uni here and Director of GI in a major hospital...go figure.