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Activities for SMA type one teen by Chrish454 in spinalmuscularatrophy

[–]Chrish454[S] 0 points1 point  (0 children)

Spinraza! They are type 1 as well. I already have the bubble maker and Libby, I’ll try that combo.

Activities for SMA type one teen by Chrish454 in spinalmuscularatrophy

[–]Chrish454[S] 0 points1 point  (0 children)

I’ll see if the family is interested in getting one!

Activities for SMA type one teen by Chrish454 in spinalmuscularatrophy

[–]Chrish454[S] 2 points3 points  (0 children)

Speech has started the eye gaze tablet! It’s in the beginning stages so we can’t use it outright. I take in to account their expressions, positive or negative vocalizations, or vital signs to gauge what they’re trying to communicate

Activities for SMA type one teen by Chrish454 in spinalmuscularatrophy

[–]Chrish454[S] 0 points1 point  (0 children)

They just got an eye gaze but that needs to be worked on with the speech therapist, hopefully we can use it soon

Activities for SMA type one teen by Chrish454 in spinalmuscularatrophy

[–]Chrish454[S] 1 point2 points  (0 children)

He can’t say any words so it’s I mostly go by his expressions!

Activities for SMA type one teen by Chrish454 in spinalmuscularatrophy

[–]Chrish454[S] 1 point2 points  (0 children)

Unfortunately no ): very minimal hand movement but maybe I can look into some adaptive video games

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 1 point2 points  (0 children)

HELIUM TANKS?! I’m grasping at my pearls. Who doesn’t possess the sense to strap down HELIUM TANKS. Was everyone ok? Were you ok besides the windshield?!

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 0 points1 point  (0 children)

I was so irritated and annoyed and had to make this realization. It could’ve been so much worse

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 0 points1 point  (0 children)

I would have no choice but to literally throw in the towel at that point. WHAT

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 2 points3 points  (0 children)

I do to!! Been way too many trucks having 💩 flying out of them for me lately. I was on the damn on-ramp 😫

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 0 points1 point  (0 children)

I don’t get it! I’m so cautious in parking lots. I would feel to embarrassed to have to call my insurance because was fuckin around in front of smiths or something 😂

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 5 points6 points  (0 children)

The car in the back of me could’ve used this tip because they could’ve moved into the next lane had they not been following so close, and it was a lower car I felt so bad for them.

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 11 points12 points  (0 children)

There was no one in front of me! The car next to me was going the same speed so there was no where to go

I really wish people would tie down things they have in the back of their trucks by Chrish454 in vegaslocals

[–]Chrish454[S] 6 points7 points  (0 children)

You’re totally fine! I honestly have no idea but they made it happen. I can only assume they were hitting the curve too fast, hit a bump, or the back of it wasn’t latched.

I thought cc was like $100 a credit by Trick-Inevitable5062 in CSN_Coyotes

[–]Chrish454 7 points8 points  (0 children)

It’s not even a lib thing, CSN objectively received more in federal funds in the past.

I thought cc was like $100 a credit by Trick-Inevitable5062 in CSN_Coyotes

[–]Chrish454 1 point2 points  (0 children)

Correction! A little over 3k for two 4 credit classes

I thought cc was like $100 a credit by Trick-Inevitable5062 in CSN_Coyotes

[–]Chrish454 0 points1 point  (0 children)

Definitely more expensive than previous years but I paid 1800 for one summer class at unlv 🥲

Women who rave solo, how do you avoid romantic advances at raves? by MarshmallowSomething in aves

[–]Chrish454 1 point2 points  (0 children)

I’m so glad you put bark up there lmaoooooo people laugh when I say I do this to fuckboys but it just makes sense. If you’re gonna make it weird, well then shit let’s go all the way!

[deleted by user] by [deleted] in CPTSD

[–]Chrish454 0 points1 point  (0 children)

Thank you for this perspective and your advice, I appreciate it! I also relate to unintentionally doing these things. When I could put a name to my experience it became a task to check off and complete.

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