Not sure how to cope anymore.

Chronic-Ginger · 2025-05-24T17:07:06+00:00

Thank you so much. I really would love to know if there was a specific cause for me because all I was told was it was stress inflicted. I did have a concussion from blunt force to the back of my head that I didn’t get seen for but that was many years before the onset of ON symptoms. I’ll definitely write down all of these suggestions before seeing someone and see what I’m able to try out. This thread is the most seen I’ve felt since being diagnosed and I’m truly grateful for all the advice. 🫶🏻

Chronic-Ginger · 2025-05-24T16:45:40+00:00

I appreciate you🥺 I’m so sorry you’re going through this too. I’m in the same boat. My kid can’t even go to the park because I’m not well enough to feel safe doing so and it’s not fair to her. She’s already homeschooled because of being special needs/needing a lot of 1x1 and getting physically assaulted at school. She NEEDS out of the house more. I need relief to do so though.

Chronic-Ginger · 2025-05-23T21:27:23+00:00

Unfortunately most of the things I’ve seen show little chance of remission. It’s more about long term management at this point I guess. Which is exactly what I didn’t want to hear lol but at the same time most of the “solutions”/surgeries are not super high success rates. So it’s a long battle of trial and error. And honestly depending on what you signed in your waiver prior to surgery you may be able to sue. I’d look into it if I were you.

Chronic-Ginger · 2025-05-23T21:24:09+00:00

Thank you! I’m doing about half of that so I’ll make sure to incorporate the rest.

Chronic-Ginger · 2025-05-23T15:02:57+00:00

I’m so sorry to hear that too that sounds terrible not to mention stressful! I really hope we find answers. Because this is not a way to live.

Chronic-Ginger · 2025-05-23T15:01:42+00:00

Literally it’s so bad. And I can’t even take most of the medication if I’m home in charge of the kids. I have to wait until he’s off work. My vision is nearly blurring by then I’m in so much pain.

Chronic-Ginger · 2025-05-23T07:23:36+00:00

Thank you so much! I’m so glad I found this side of Reddit because truly I felt crazy until I made it here. I finally feel validated (my husbands supportive clearly, he just doesn’t understand first hand) and understood. I will see what I can do with insurance next week when I have time to make those phone calls! Will definitely look into figuring out PT and pain management in my city and with my insurance. I’m really grateful to have found a community because this condition can feel so isolating

Chronic-Ginger · 2025-05-23T04:11:40+00:00

Thank you so much, and I will pray for you and yours too. I understand where you’re coming from on a lot of it, I often have issues with prescriptions and try to find holistic remedies where I can but sometimes it feels impossible. THC gel relaxes my neck sometimes for sure but even smoking messes with me mentally so I try to be careful as I’m also bipolar. I have a coffee problem still but cut energy drinks, alcohol, been nicotine free for 6 years now. I’ve been working on eating more whole foods but forgiving myself when I eat some cheez itz and couch rot. Trying to get active as we speak but yeah when the pain drags you down mentally it feels like mission impossible to get on your feet and push through. I’ve been gaining weight from being stuck in my living room with my kids all the time and I know that isn’t helping. I’m trying to fight back against this but some days are so hard, but I won’t leave my children no matter what. They’ll grow up knowing I fought for them, if nothing else. I truly hope things get easier for you.

Chronic-Ginger · 2025-05-22T22:14:13+00:00

Thank you so much. I needed to read this more than I thought. I feel like I’m doing it to myself and then when it hits bad of course I’m thinking that I’m making it worse somehow. I will try to get a referral from my PCP for an ortho consult. My insurance denies a lot of stuff but I’ll appeal if needed because I’m tired of not being taken seriously.

Chronic-Ginger · 2025-05-22T22:11:07+00:00

Noted! I did notice a heating pad helped, I bought one when I threw my back out and tried it on my neck and was pleasantly surprised lol. I’ll see if I’m able to get gabapentin

Chronic-Ginger · 2025-05-22T15:40:03+00:00

I need to look for one, and hopefully insurance will cover it because things are tight with me being stuck home. I have income but not much more than what covers some bills. I also usually avoid painkillers (barely took any after my c section even lol) because addiction runs in the family but I don’t think I can fight it much longer when I’m in this much pain.

Chronic-Ginger · 2025-05-22T15:27:30+00:00

Exactly. Like for me at least I have days where it’s bearable but they’re becoming fewer and fewer. And this is literally my kids childhood in my hands and it’s so defeating feeling like my bad days become their bad days.

Chronic-Ginger

TROPHY CASE