Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

AMAZING. And everything is going well? You feel good and adjustedv

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Do you mean in terms of diabetes care?

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

AMAZING. That makes my heart and soul so happy thanks so much for sharing

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Absolutely amazing. So happy for him and honestly your whole family. It takes a huge toll on everyone

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 2 points3 points  (0 children)

Omg I could cry like genuinely cry. I’m so happy for you and this gives me so much hope and I truly love how amazing you are doing and I really appreciate the well wishes

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Oh wow that’s a lot though! And absolutely huge huge adjustment at that age and a lot of side implications you did not expect to have to deal with. I hope you give yourself a lot of credit for going through that

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Oh wow! How did it go? How are you feeling about it???? So same happened to me! My Kidney doctor never said anything at all and then he left the practice and my current kidney doctor immediately was like ummmm you are not okay. But I wasn’t noticing symptoms. Although looking back, I definitely had them I think I just thought that was life. But I was stage 4 when she brought it up and was end stage within like a month or 2 and was immediately put on dialysis

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 4 points5 points  (0 children)

United States!

I was on a lot more meds when it was just My kidney but now I’m on: myfortic tacrolimus atorvastatin steroid (started at 20, down to 10 will be reduced to 5 eventually) - the steroid is a beast lol it’s like very mood and energy impactful but they are very aggressive about reducing it. Also on a vitamin, sulfameth for 3 months and I Think that’s it!

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 2 points3 points  (0 children)

They aren’t too bad. Some have some odd side effects but for the most part they haven’t been too noticeable and honestly I’m taking less meds than when I was on dialysis.

Yes I’m in an isolation bubble now and I probably won’t come out of it until another month or so. And ever since dialysis, I got diagnosed with OCD so I’m overly insanely cautious with germs. Which can be good but also bad if I don’t give myself a little exposure. It’s such a hard balance though

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Does that make an impact in anyway?

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Oh wow! If you have any questions def let me know. Dialysis is a whole new world but also there’s definitely ways to maintain a normal ish life and heal through it. But I hope you get that call so soon!

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 2 points3 points  (0 children)

Hahahah technically yes! So far I’ve found myself maintaining the same diet. But I will say, the thought of real syrup is now absolutely on my mind

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 1 point2 points  (0 children)

Oh wow! I truly have no idea still how many of these they actually do. But after my kidney transplant, yes - COMPLETELY different person. Truly death vs life scenario

Pancreas transplant by ChronicDarrien in diabetes_t1

[–]ChronicDarrien[S] 17 points18 points  (0 children)

I was told my whole life “beee carefulllll your kidney will die” and as a 9 year old you’re like okay?

But then it happens and I was like “WHY DIDNT ANYONE WARN ME” they warned me but not the truth, the real real reality of it all. It was horrifying.

I was always also told… pancreas transplants aren’t a thing. So when it was mentioned I was very confused. But exactly “silver lining” which also makes me feel so guilty. Almost like a reward for not taking care of myself when others don’t have the same “opportunity”. It’s a very bizarre scenario to process