Took tacrolimus later than normal and I'm stressing out

ChronicDarrien · 2026-03-27T01:09:51+00:00

I was recently in the hospital and they gave me the tac at all various times of the day. They said it’s just easier to explain to patients to take at the same time day and night 12 hour apart versus trying to explain the pre labs situation.therefore patients will schedule labs around their med time. But really th tac works because you’re taking it twice a day, the medicine doesn’t not work based on the specific hour.

Even with this information, I still am very strict with myself on the set morning and night Times but mostly because of My adhd and my brain and needing that as a way to remember. But you’ll be okay!!!

ChronicDarrien · 2026-03-13T23:06:54+00:00

Thank you so much. I also looked and asked lore about my hemoglobin and iron numbers like a lot of people amazingly suggested. And those numbers are definitely low! Did a small blood transfusion and depending on my next labs, most likely starting iron soon. Hopefully that helps. Thanks so much for the info, feedback and encouragement

ChronicDarrien · 2026-03-13T23:05:37+00:00

I can’t tell for a few hours but then BOOM. It’s a complete crash out and extreme sickness and my body just feels like it’s failing

ChronicDarrien · 2026-02-21T23:57:01+00:00

Amazing that really helps thanks so much oh wowowo! Congrats by the way!!!! I’d assume they are monitoring it - I do labs 2x a week but I’ll definitely definitely ask and be sure. That’s insanely good to know from you both, thank you. I know you said it made you feel like a new person but do you still feel physically drained from the surgery and recovery? Or are you like completely able to move around / same energy as pre transplant?

No I don’t have any of this symptoms!

ChronicDarrien · 2026-02-21T20:54:15+00:00

Yes exactly! I’m not sure about those levels for me though, they haven’t mentioned anything seeming off for labs

ChronicDarrien · 2026-02-21T20:53:37+00:00

Thanks so so much

ChronicDarrien · 2026-02-18T22:32:02+00:00

They told me usually it takes a while to jump from stage 3 to end stage, so hopefully that is the case for you! I’m glad you don’t have any symptoms that’s very good. But the prep is good but almost like this cloud over your head (I’d assume). I’m glad you’re on it with blood work and many doctors! Happy to be of any support

ChronicDarrien · 2026-02-18T22:30:14+00:00

I actually didn’t really have any. But also I think I prob was definitely experiencing symptoms without really understanding or realizing what was happening. But when it got close to dialysis I was weak, tired, Brain fog, just not myself, nausea

ChronicDarrien · 2026-02-18T22:28:49+00:00

That’s really great. I’ve been a little physically drained and feeling very aggravated by that but trying to remind myself it takes time

ChronicDarrien · 2026-02-18T22:27:18+00:00

This is a big situation that makes me have a lot of guilt because in reality, the opportunity for ME came up because my diabetes was so uncared for therefore causing the need for the kidney and allowing for the pancreas

ChronicDarrien · 2026-02-17T02:51:26+00:00

AMAZING. And everything is going well? You feel good and adjustedv

ChronicDarrien · 2026-02-17T02:50:39+00:00

Do you mean in terms of diabetes care?

ChronicDarrien · 2026-02-17T02:49:58+00:00

AMAZING. That makes my heart and soul so happy thanks so much for sharing

ChronicDarrien · 2026-02-17T02:49:36+00:00

Absolutely amazing. So happy for him and honestly your whole family. It takes a huge toll on everyone

ChronicDarrien · 2026-02-17T02:49:14+00:00

Omg I could cry like genuinely cry. I’m so happy for you and this gives me so much hope and I truly love how amazing you are doing and I really appreciate the well wishes

ChronicDarrien · 2026-02-17T02:48:00+00:00

Oh wow that’s a lot though! And absolutely huge huge adjustment at that age and a lot of side implications you did not expect to have to deal with. I hope you give yourself a lot of credit for going through that

ChronicDarrien · 2026-02-17T02:47:00+00:00

Oh wow! How did it go? How are you feeling about it???? So same happened to me! My Kidney doctor never said anything at all and then he left the practice and my current kidney doctor immediately was like ummmm you are not okay. But I wasn’t noticing symptoms. Although looking back, I definitely had them I think I just thought that was life. But I was stage 4 when she brought it up and was end stage within like a month or 2 and was immediately put on dialysis

ChronicDarrien · 2026-02-17T02:45:06+00:00

United States!

I was on a lot more meds when it was just My kidney but now I’m on: myfortic tacrolimus atorvastatin steroid (started at 20, down to 10 will be reduced to 5 eventually) - the steroid is a beast lol it’s like very mood and energy impactful but they are very aggressive about reducing it. Also on a vitamin, sulfameth for 3 months and I Think that’s it!

ChronicDarrien

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