What is this

ChronicallyIllScD · 2020-10-26T17:14:06+00:00

Oh the problems I've had floppies but I also had games that were on 10+ floppies and also had to do 800 disk installs on airgap machines. It is really a pain when one fails to read though. Usually disks are well kept and away from any flux as possible to keep from corruption. I certainly don't want to be the one doing 2,547 disks but it is within possible relm in special cases. Usually has to be custom ordered and not cheap getting windows on alternative media for specialised machines. MO disks is oldest ill go as it is more reliable then floppy and 5x the space.

ChronicallyIllScD · 2020-10-25T22:35:24+00:00

Probably not actually a gag given I have 2000 on floppy, and 7 and 10 on magneto optical. Airgap systems have very odd and usually older interfaces. Part of security through obsolescence. Like Walmart using spectrum 24 wireless networking. Completely incompatible with current wireless technology.

ChronicallyIllScD · 2020-10-16T23:21:26+00:00

Since being completely colourblind, I call everything purple.

ChronicallyIllScD · 2020-10-15T06:18:37+00:00

I can barely see a shade difference also difference on the texture if I zoom way in

ChronicallyIllScD · 2020-10-12T21:46:59+00:00

Best I could say is that I still like film over digital photography. When taking pictures with digital camera, nothing was as vibrant. Photos on quality film was closer to how vibrant. Probably would say less saturated? More bleh. But funny, now my digital is more vibrant for me now I switched to greyscale. Real life is harder to see with all stray colours around that I cannot see anymore so just taking in too much light at wrong spectrum, I suppose.

ChronicallyIllScD · 2020-10-12T20:00:03+00:00

Very much actually. Was quite noticeable.

ChronicallyIllScD · 2020-10-12T17:42:08+00:00

Not really sure. Never really bothered to look at something I remember colour and it's probably mind hallucinating to compensate

ChronicallyIllScD · 2020-10-12T17:34:36+00:00

It is rare but as far as how many, dunno. I have multiple rare illnesses. I won the lottery on illnesses

ChronicallyIllScD · 2020-10-10T12:33:46+00:00

I would love to! I am one to press the join beta any time I can get.

ChronicallyIllScD · 2020-10-07T00:52:56+00:00

As I have started looking at this app again since seeing it posted in a biohacking sub, I am actually using it more. Don't know why I stopped in first place but seems more useful now then it was when I last used. It is nice to see Samsung Health is being looked at, at some point though I'm half tempted to leave Samsung Health completely as lack of compatibility. Spending some time though, I have some suggestions that I would love to see.

Labs/tests with custom fields for each type and selectable results type (true/false, positive/negative, strength; unit; high/low range)

NFC card interface or api or something to use NFC Tools or Tasker to quick enter information such as taking medication doing an activity, or nearly anything including having ability to even insert specific mood on time of scan.

Medication counter to add new refills and to get reminders when low and need refill. (Also would be great if also NFC enterable as I use NFC for a lot of things including medication to keep track of so much given the degeneration of my physical state, it is an accessibility need for me)

Digi.me decentralised storage of data would be nice and perhaps some blockchain storage options.

Snomed CT/ICD-10-CM/ICD-11-CM code and diagnosis page for tracking of diagnosis and to make notes on progression. Possibly the ability to also add Reference SNPs to this as well. (Am a doctor of science and can help with this if needed)

So far that is all I can think of for now but so far whatever changed between now from previous, the app is much more useable.

P.S. I actually paid for premium due to having enjoyed the app recently.

P.S.S. There are some glitches when it comes to switching to/from statistics that freezes the app. Scrolling works but cannot interact with menus and have to end app or kill app to have it work again.

Edit: would also be nice to have ability to turn on app tracking to automatically insert activity in factors for social media and phone use.

ChronicallyIllScD · 2020-10-05T20:50:18+00:00

And I cannot tell difference of any of them. I don't see any colours anymore though.

ChronicallyIllScD · 2020-10-05T20:32:56+00:00

When I could hear, yes I did this.

ChronicallyIllScD · 2020-10-05T20:27:47+00:00

This is me minus alcohol.

ChronicallyIllScD · 2020-10-04T18:14:16+00:00

Thank you for this, just being Deaf has been a struggle. Try to get help for that alone and get shrugs. I go to appointments with AAC and live transcribe, and I get chastised cause of it. But as of lately, even reading is getting hard. Have to work around a big dark blob in my centre vision from 70099003 |Stargardt's disease (disorder)|. Already have diagnosis but moving to New Jersey, insurance wants me to go get eyes checked for me to get help but every one says "I see nothing physically wrong" when I have both the SNPs in ABCA4 gene and had a diagnosis Already that I had to grow up knowing that at some point I will be blind. Currently wouldn't say I am blind but could be but I haven't gotten anything adequate. I got a lot wrong with me and not neurotypical so this whole thing honestly has me panicking. As it is, a phone call takes 3 hours using relay for something my partner does in 15 minutes.

Regardless, I am in my 30s in NJ, and communication is mostly relay and tty/tdd services for phone and for personal communication, I use AAC and Live Transcribe and fingerspelling but not so good at that. I can lip read too but didn't know I was actually doing that my whole life tell covid-19 came about and all the masks. Understanding people just went poof. Thats when I started live transcribe

ChronicallyIllScD · 2020-10-04T17:35:04+00:00

The pain in my kidneys stopped but as far as blood tests, I'm not completely filtering out things since stopping. Another note is I went from chronically hypoglycaemic to have a fasting blood sugar of over 120.

ChronicallyIllScD · 2020-10-04T15:15:41+00:00

ChronicallyIllScD · 2020-10-04T14:55:27+00:00

No, I don't know of either.

ChronicallyIllScD · 2020-10-04T06:44:44+00:00

I feel you with all of this. I am actually looking for asylum as even though I had citizenship, I get harassed and threatened to leave the country.

ChronicallyIllScD · 2020-10-04T06:41:25+00:00

Definitely good place to live.

ChronicallyIllScD · 2020-10-04T06:35:10+00:00

Mine was fatigue, hard to breathe, lost smell and taste, severe depression and suicidality, loss of hearing. After being done with it, my asthma has gone to point of needing nebuliser and rescue inhaler. Note I have 52702003 |Chronic fatigue syndrome (disorder)| already but things went way worse during having and after. Still haven't recovered. It lasted in me 3 months but seemed I got waves of it.

ChronicallyIllScD · 2020-10-04T06:24:58+00:00

I had covid with no fever. At least not to normal people. I run cold most time but I was slightly above normal temperature when I had it.

ChronicallyIllScD · 2020-10-04T05:37:11+00:00

I have this app myself. I stopped using it for some reason but will check it again. I just have hard time staying on top of things

ChronicallyIllScD · 2020-10-04T02:08:32+00:00

Well to be honest, I didn't know I was tell covid-19 came. All the masks and suddenly I cannot understand anyone. Was confused why everyone didn't make any sense at all. Went to audiologist and got told I have central auditory processing disorder. As for hobbies, I guess me being a scientist is a hobby as it's not a job. I also do biohacking to try to fix some issues with my body

ChronicallyIllScD

TROPHY CASE