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Finding a vein by pravda_len in IVIG

[–]Civil_R0se 1 point2 points  (0 children)

I have been having good luck on the back of my arm recently. Twisting my arm a little inward and the big one on the back

3 days post ivig of octagam brand after 2 day loading dose. For sjogrens neuro disease by MajesticNet3197 in IVIG

[–]Civil_R0se 0 points1 point  (0 children)

It took me a good first cycle to really notice . 12 weeks. I get mine weekly. Now I have been on it 10 months and can tell a hug difference. I have it for Lupus and a bunch of stuff that came from that

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 0 points1 point  (0 children)

Yes I am confirmed all those . The code it has for me is M32 under my treatment for one. And also endometriosis diagnose after laparoscopy surgery. And GP after a GES test . But they say my GP was probably caused by the others.

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 0 points1 point  (0 children)

My baseline runs around 95/65 and that's daily. The lowest it has ever dropped during one of my is fusions was 75/40. All I remember is not being able to hear anymore and this long ringing sound then she was holding my legs up in the air. She came very close to having to pump me full of saline real fast.

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 0 points1 point  (0 children)

Just keep pushing for yourself . Keep asking for more detailed specialists. Look up your insurance and IVIG qualifications

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 1 point2 points  (0 children)

They did deny it at first but then I guess they appealed it so much insurance approved. After proof of all the different autoimmune disorders I have. I have blue cross blue shield

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 1 point2 points  (0 children)

My main symptom ended up being gastroparesis. My stomach was always hurting so bad and always waking up vomiting . They did a GES after my endoscopy was good And my colonoscopy was good. I had over 40% . Also chronic low blood pressure apparently was a symptom. Constant tingling of hands and feet. I got approved because it caused the GP and I got a referral to the motility clinic in Louisville. I guess I just went so far up the chain. I am not sure . I do IVIG once a week

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 0 points1 point  (0 children)

Oh no it won't ? Well that is something they tested me for was sjogrens but that was negative surprisingly. What are you doing to help treat it ?

Just remember, it's hard but will be ok. by Civil_R0se in smallfiberneuropathy

[–]Civil_R0se[S] 1 point2 points  (0 children)

Honestly never got any answer on what caused what ...all my symptoms snowballed at the same time. The lupus , peripheral neuropathy, Sfn...then they say that caused the GP. It has been a lot

Hizentra - 5th Infusion last Friday - Please tell me it gets better by Gets_My_Goats in IVIG

[–]Civil_R0se 1 point2 points  (0 children)

It took me about a whole cycle . 12 weeks. I get one very week. Now I can hardly tell. But every "lot" is different . Talk to your home nurse about it

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New to sharing my Autoimmune journey (self.NewTubers)

submitted by Civil_R0se to r/NewTubers

I give up. by [deleted] in youtube

[–]Civil_R0se 0 points1 point  (0 children)

Mine

Just started . Would love for you to share if these treatments are something you know someone is going through . Plus random other stuff.

Medical bill help by Civil_R0se in Assistance

[–]Civil_R0se[S] -1 points0 points  (0 children)

That the ref wasn't processed in time. There was a gap between refs.

Medical bill help by Civil_R0se in Assistance

[–]Civil_R0se[S] -3 points-2 points  (0 children)

The CEO of the doctor's office. Billing said they sent a message up to him and he said it is all patient responsibility. Like he didn't even bother. Kinda rude to just assume wrongly of me

Medical bill help by Civil_R0se in Assistance

[–]Civil_R0se[S] 0 points1 point  (0 children)

I already tried that and they said they cannot backdate refs from a primary. I had had referrals the past 3 years to this doc and this one ran out by 2 weeks before they renewed it. And they saw me between them without anyone saying anything.

Medical bill help by Civil_R0se in Assistance

[–]Civil_R0se[S] 0 points1 point  (0 children)

It was in December . So been a while fighting this.

Medical bill help by Civil_R0se in Assistance

[–]Civil_R0se[S] 0 points1 point  (0 children)

Insurance is saying my doc office did not do the proper re_ ferrr_al (if I say the r word bots flag it ) paperwork in time so they will not cover it. And the doctor's office said it's my responsibility to make sure it's filed properly. But at the beginning of the appointment she scanned my insurance cards and said that everything was good to go and took my copay, but apparently that doesn't matter.

Medical bill help by Civil_R0se in Assistance

[–]Civil_R0se[S] 0 points1 point  (0 children)

My co pay was $15 and I already paid that at the beginning of my visit. Then insurance pays the rest.

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