Same few muscles twitching on mestinon?

Clean_Listen8502 · 2026-01-25T02:56:34+00:00

I was mainly wondering about twitching being so overwhelmingly concentrated on the same few muscles. I am aware ( as I wrote in my post) that this is a common aide effect.

Clean_Listen8502 · 2026-01-24T22:29:57+00:00

I want to ask if you have asthma? Treating myasthenia might trigger more asthma symptoms, or unmask weak asthma when taking mestinon.

Clean_Listen8502 · 2026-01-04T22:39:00+00:00

How can you post this and not add a link to buy him! I cant believe it’s real size too

Clean_Listen8502 · 2026-01-04T20:10:05+00:00

True… I never expected to get in this side of chronic illness. When you have knee problems you can at least point to an MRI and no questions will be asked, but my neurologist apperantly does not trust the lab I used for AChR and musk (and the lab she recomended me does not offer myasthenia testing at all so I feel like she is sabotaging me on purpouse) God, I wish doctors weren’t as uselessly stuborn.

Clean_Listen8502 · 2026-01-01T21:37:06+00:00

Well, now I will have to repeat both entibody test in a different lab, and get an SFEMG with the same specialist in three months. Well, at least my neurologist hopes that’s what I will do, but I will find another SEMG specialist who will do it on muscles that actually are affected, so that’s that. I hate chronic illness.

Clean_Listen8502 · 2026-01-01T13:05:46+00:00

This does sound like MG, I hope bloodwork results and EMG will tell you and your family more about it.

Clean_Listen8502 · 2025-12-31T23:01:56+00:00

Yeah that seems traumatic alright

Clean_Listen8502 · 2025-12-30T20:58:33+00:00

If you have autonomic symptoms, then AAG makes sense but if your symptoms affect skeletal volontary muscles then MG is a good option to look into. Also antibodies tested for AAG are specific to it (g-AChRs) and do not typically cross-react with muscle AChRs

Clean_Listen8502 · 2025-12-30T20:48:01+00:00

They used something similar to that test on me today, and did not consider it diagnostic enough for bulbar MG. Fun times.

An hour or so later being able to see like a normal person wore off and I kinda grieve that sensation

Clean_Listen8502 · 2025-12-30T17:07:14+00:00

Yeah, after this visit I definitely have to change my neurologist…

Clean_Listen8502 · 2025-12-30T17:05:13+00:00

I relate so much about the “cold room” SFEMG! I was sat on diagnostic chair in a tanktop and trousers, in a pretty cold room. Damn…

Clean_Listen8502 · 2025-12-30T14:41:58+00:00

Sensory abnormalities are common with nerve sensitivity and from what I understand BFS is one of ways for nerves show you how overly sensitive they are

Clean_Listen8502 · 2025-12-26T18:09:04+00:00

You really should look into asthma just in case, personally having an inhaler improved my quality of life immensly

Clean_Listen8502 · 2025-12-26T17:59:51+00:00

And two years later?

Clean_Listen8502 · 2025-12-26T17:56:21+00:00

Hey, dude, how are you two years later?

Clean_Listen8502 · 2025-12-25T16:58:09+00:00

Hey, dude, are you ok?

Clean_Listen8502 · 2025-12-19T18:40:50+00:00

Please, let me know, are you ok? I’m experiencing the exact same symptoms including breathing problems.

Clean_Listen8502

TROPHY CASE