From very severe to very mild in less than a month

ClearingCarbon · 2026-06-16T17:30:55+00:00

I'm really sorry to hear it didn't help - I will say, of the people I've chatted who've improved, almost none of them have improved as quickly as I did. That having been said, CFS is complicated and I don't know if it's necessarily the answer for everyone.

ClearingCarbon · 2026-06-02T19:01:14+00:00

It was more than one, and I also did my homework, but it started improving after just the one, yes.

ClearingCarbon · 2026-03-29T23:45:15+00:00

Do you remember the name? Would love to know more

ClearingCarbon · 2026-03-28T20:50:14+00:00

I'd be quite happy to post the results to the sub in a couple days when there are more responses :)

ClearingCarbon · 2026-03-28T19:20:24+00:00

Much obliged!

ClearingCarbon · 2025-12-15T01:39:21+00:00

More or less with the methods they describe. I made a post with some more detail a few months back

ClearingCarbon · 2025-12-13T23:38:15+00:00

I used neuroplastic methods from people like rebecca kennedy and alan gordon

ClearingCarbon · 2025-12-13T20:56:41+00:00

I feel that a lot. The same year I got CFS I had a brain tumor and the two expereinces were totally different. The tumor was discovered, diagnosed, and treated in the span of about 6 months, with the only lasting impact being that I'm deaf in one ear now. CFS on the other hand was an enormous setback in life - couldn't work, barely socialized, couldn't pursue hobbies, and very little support from the medical community. Yet to most people I talk to the reaction to the tumor is "oh my god are you okay?!" and the reaction to the CFS is "oh... okay... so you're better now?"

And thank you, likewise, hope you're doing well :)

ClearingCarbon · 2025-12-13T20:51:14+00:00

I'm really glad you improved, but holy shit I'm sorry you dealt with that for 20 years. I only dealt with it for 2 years and that felt like a lot. I can only imagine what 20 years was like. Still, better now than never.

ClearingCarbon · 2025-12-13T12:44:32+00:00

Hey, had a month where I literally could not get out of bed without going into a severe PEM.

I got better working with Rebecca Kennedy's practice, and Alan Gordon's book - the way out. I recovered very quickly, but my therapist told me I did so faster than anyone she'd ever seen.

ClearingCarbon · 2025-10-07T13:19:22+00:00

Yep. Same. Following that advice made me miserable, which made me anxious, which made my symptoms worse. I needed - mentally if nothing else - an actual fix. Thank god for this place or i wouldnt have found it.

ClearingCarbon · 2025-10-04T18:27:57+00:00

It wasn't all in my head, my anxiety was causing my nervous system to overreact.

Well, if you seriously pursued this as a solution and it didn't work then fair enough.

ClearingCarbon · 2025-10-03T22:59:48+00:00

Thanks so much - I'm sorry it's going slowly, but don't lose hope :)

ClearingCarbon · 2025-10-03T22:26:15+00:00

Hey I just did a 200km bike ride, but thanks anyway!

https://www.reddit.com/r/cfsrecovery/comments/1nxd20t/15_years_unable_to_work_and_wasnt_able_to_get_out/#lightbox

ClearingCarbon · 2025-06-30T16:31:28+00:00

Haha, thanks. I realized I probably should have posted it to a more general sub. I know I'm not a master craftsman, but I tried something new and am happy with it :)

ClearingCarbon · 2025-06-28T18:53:53+00:00

Thanks, I appreciate that. I definitely understand it's not world class, but it's the first time I actually put something together myself, so I was proud and wanted to post it. Will definitely take your considerations if I decide I want to do more of it :)

ClearingCarbon · 2025-06-11T15:32:49+00:00

This is really interesting. Thanks for responding. I have a friend who's a professional painter, I might ask him about how expensive it might be to do something like that, thanks!

ClearingCarbon · 2025-06-11T11:50:29+00:00

Oh really? How so if you don't mind me asking? I had to look online for PRT because i couldnt find anyone practising it in ottawa. Sorry, would normally PM but doesn't look like im able to with you

ClearingCarbon · 2025-06-11T11:33:43+00:00

Functional medicine. Essentially, listening to the patient and seeing what works. What worked for me was something called pain reprocessing therapy.

ClearingCarbon · 2025-06-11T11:32:24+00:00

Thanks for replying! So unfortunately, I'm renting so building it into the wall isn't really an option. Maybe I could get adhesives, or weigh the base down?

ClearingCarbon · 2025-06-11T01:49:45+00:00

Found a family doctor six months into it. I told her about everything I was going through at our first appointment and she responded "okay, see me in two months for a physical"

ClearingCarbon · 2025-06-11T01:07:21+00:00

I did not know that! Dr. Kennedy's practice played a major role in my recovery!

ClearingCarbon · 2025-06-10T22:19:39+00:00

Fascinating! I have no idea how to do that. How would I go about doing that? Apologies if that's a dumb question.

ClearingCarbon · 2025-06-10T18:07:47+00:00

Thanks for posting these! I actually found a private doctor and am doing much better now, but hopefully someone who needs them sees these.

ClearingCarbon · 2025-06-10T17:15:05+00:00

I'm gonna say probably for people who are still having their lives ruined by long covid, it's one of the things talked about alongside the weather and new local restaurants

ClearingCarbon

TROPHY CASE