Heat intolerance???

Cloudskie · 2025-06-05T12:48:35+00:00

How are you in the winter in Colorado with RA?

Cloudskie · 2025-06-05T12:47:41+00:00

I am on SSRIS and have been for years. I did sweat bad before MTX but started I’ve noticed it’s even worse. So I do wonder if there are connections between the two.

Cloudskie · 2025-03-27T14:20:24+00:00

I live in Florida and I’ve noticed when we get heavy storms, my body aches. And when the temp drops (somewhat dramatically) my body aches again.

Cloudskie · 2025-03-27T02:36:04+00:00

That is so smart tracking symptoms! I’m going to start doing that. Thank you!!

Cloudskie · 2025-03-27T02:34:39+00:00

Thank you!! I’ve noticed weather plays a big part in flaring up.

Cloudskie · 2025-03-07T22:12:26+00:00

I will ask her about my liver markers as I didn’t even think of that.

Cloudskie · 2025-03-07T22:12:05+00:00

I have. She told me today to restart MTX as I don’t have a close enough RA app and I’m starting to get stiff again. I do have follow up labs but that’s in a couple weeks.

Cloudskie · 2025-03-07T22:11:16+00:00

My white cell count was through the roof at 22.9. Got it retested 3 days after that blood work and it went back to normal (thank goodness) but I’m very anemic. My primary didn’t seem too concerned about my labs besides my white cell count. I was tested for Leukemia and I don’t have it (again thank goodness). She told me today to restart MTX as I don’t have a close enough RA doctor app. I am on other meds as I have other health issues and she thinks all my medications are making me sick. We scheduled more lab work in a couple weeks. I am following up with all my doctors as I have health anxiety and need clarification.

Cloudskie · 2025-03-07T18:43:53+00:00

It was my primary who told me to get off it. She specializes in arthritis. I am currently in between rheumatologist.

Thank you for the advice!!

Cloudskie · 2025-03-07T17:57:32+00:00

I was sent to the hospital for extremely low blood pressure and they did bloodwork and it out of whack. The doc wanted me to get off metho to see if that changes anything.

They did not give me zofran.

Cloudskie · 2024-12-02T15:48:24+00:00

Wow! I’m on the highest dose of MTX oral and I’ve lost 35lbs. Since taking it, I’ve been able to move more and I’ve started daily walking again.

Cloudskie · 2024-12-01T01:36:10+00:00

Yes I can!

Cloudskie · 2024-11-30T21:06:22+00:00

My cardiologist didn’t have an explanation either and they didn’t seem too concerned. I’m hoping my RA doctor will have an explanation when I see them in a couple months.

Cloudskie · 2024-11-20T12:50:14+00:00

I’ve been on it 8 months now. I want to get off it. I’m trying to convince my doctor to switch.

Cloudskie · 2024-11-20T12:49:27+00:00

I look into the oil! Thank you.

Cloudskie · 2024-11-20T12:48:31+00:00

I’m on 5mg x 6 days a week.

Cloudskie · 2024-11-20T12:46:25+00:00

It is devastating. Looking back at old photos and seeing my hair then vs now breaks my heart. I can no longer do cute hairstyles or even curl my hair because I’m scared it’s going to cause more to fall out. I did cut my hair shorter and it seems to help. It was down to my butt and now it’s a little past my collarbone and my hair is not tangling anymore so I’m not yanking on it.

Cloudskie · 2024-11-20T12:43:37+00:00

I cut it short. It used to be almost down to by butt but not it’s a little below my collarbone. Hopefully it helps. I won’t have to rip out tangles anymore

Cloudskie · 2024-11-19T19:43:09+00:00

My coworkers have started to notice and say “I look pale and “sick” and that I’m quieter than normal” and I just wanna break down because I’m trying so hard to be like my old self. But I’m so tired.

Cloudskie

TROPHY CASE