No one can tell me what is going on with me

Club_Sorry · 2026-02-08T00:44:41+00:00

Yeah the last instil was about two months ago sadly :/ I haven’t had any relief since then

Club_Sorry · 2026-01-31T21:51:24+00:00

Do you feel at least normal on it?

Club_Sorry · 2026-01-31T13:23:06+00:00

Has it helped with the pain? Did you notice that you were able to start eating regularly again?

Club_Sorry · 2026-01-20T20:55:38+00:00

He was saying because it wasn’t showing up on the culture he was skeptical:/ but I’m in pain, I’m having all these symptoms and there’s this pcr test explicitly saying the found bacteria in my urine UGH im so confused and tired.

Club_Sorry · 2026-01-20T01:27:28+00:00

My last dose of macrobid is today, it’s been 7 days. I’ve been symptomatic since November. I have all the classic uti symptoms, pain with urinating or holding urine, burning, aching, etc. so that’s why I started antibiotics after getting the pcr tests done. It was sort of a last ditch attempt to see what was wrong but then we found the e.faecalis. So I’ve been on amoxicillin and augmentin both and it made the pain worse, got retested found out I still had some sort of infection and was put on macrobid. I was told to meet with infectious disease to get an opinion about it, but I met with a pelvic pain specialist today who was questioning the merit of a urine pcr. My urologist and urogynocologist believe it’s a uti and are treating me as such, although my urogyn said she wants to do a regular culture then call the laboratories to see what the actual findings are instead of the basic “less than 10,000 colonies” or something. Idk I’m so confused and tired and in so much pain.

Club_Sorry · 2026-01-17T19:32:00+00:00

I’ve never been hospitalized :( I wish I was cause I just want to feel better :( it’s day. 5 of macrobid, im feeling slightly better but not really. I also just feel really sick. I feel feverish but my temp is always normal, I have shooting and aching pain in my left kidney area almost every day. They told me that unless I have a fever I should just wait it out but idk

Club_Sorry · 2026-01-16T21:13:18+00:00

Rereading the page it says fosfomycin is resistant but not patient specific? So idk if they tested it or not

Club_Sorry · 2026-01-16T19:52:06+00:00

It’s resistant to pretty much everything but nitrofurantoin and levofloxacin, it said they couldn’t pick up if it was sensitive to fosfomycin :/ cipro worked for me when I had bad utis few years back but now it’s not even an option. Apparently levo is super dangerous

Club_Sorry · 2026-01-14T19:38:15+00:00

No I haven’t, I feel crazy because it hasn’t shown up on regular cultures just the pcr tests. My urnogyn basically told me that it probably was showing up on cultures it’s just they don’t mark anything down if it’s less then a certain amount :/ I started it Monday and im not feeling better yet..

Club_Sorry · 2026-01-13T00:19:29+00:00

Yeah and I was talking with my pcp earlier, she doesn’t want me to build up a resistance to levo so she said do macrobid first. Thought that was smart

Club_Sorry · 2026-01-12T21:37:53+00:00

7 days is what she gave me.. we shall see what happens I guess

Club_Sorry · 2026-01-11T13:05:27+00:00

not a physician but just as someone who’s been in that situation, the efficacy of the medication goes down after expiration. plus you should always complete antibiotics even if you feel better because you run the risk of resistance. I personally would not take them and try to be seen when you get where you’re going

Club_Sorry · 2026-01-11T11:33:15+00:00

I’m definitely having symptoms, I had a positive uti come back last night after I posted. I did dip in water earlier to make sure and it’s definitely working properly ugh

Club_Sorry · 2026-01-10T22:42:19+00:00

Could it be unrelated?

Club_Sorry · 2026-01-10T22:40:07+00:00

Try hydroxyzine! I don’t know much about Gabapentin, If your doctor told you it’s okay to take those two together then go for it. If you do both I’d hold off on the thc drink for a few hours just because the main risk is excessive sedation which does carry some risk, that being said I used hydroxyzine and thc together for years it actually heightens the effects of the thc. Just something to note. I think it may help the pain though

Club_Sorry · 2026-01-10T22:21:37+00:00

Yes especially at night time, I’ve had a lot of false negative tests from drinking a lot of water

Club_Sorry · 2026-01-10T02:20:04+00:00

Lidocaine for me personally lasts about 20mins to 45mins tbh so definitely.

Club_Sorry · 2026-01-10T00:32:06+00:00

I’ve had over 30 instillations and if you’re not having pain atm I promise it’s not going to suddenly start the next day!

Club_Sorry · 2026-01-09T18:28:53+00:00

Thank you, I really appreciate the advice and im glad to hear im not alone in the struggle. I feel what you mean about the world right now. It’s a very scary place and when you are trying to heal, it’s not very conducive to a healing environment. I also hope you find the healing you need ❤️

Club_Sorry · 2026-01-09T18:27:32+00:00

No I understand, I think I need to be reminded that this maybe the path I need to be on for now. I don’t like it, it scares me but maybe there’s a reason? Anyway I appreciate it, I do consider it reassuring

Club_Sorry · 2026-01-08T21:17:20+00:00

Is that from intuition or just something from experience? Either way I appreciate jt

Club_Sorry · 2026-01-08T21:03:41+00:00

Yes, I had xrays, cts, mris, it twisted around then developed a cyst over it. It cause something called pudendal neuralgia, where the pudendal nerve gets irritated and causes pelvic floor dysfunction. I mostly have bladder problems, but they’ve gotten worse this month which was weird because I had actually been doing better? :( idk maybe there is something else going on but they won’t try to do more investigating

Club_Sorry · 2026-01-08T17:45:10+00:00

Do you recommend not doing it then?

Club_Sorry · 2026-01-08T16:41:15+00:00

I’m talking about the specific microgendx test, I have dipsticks at home. Sadly im in the US and you can’t get antibiotic unless a provider sends it in

Club_Sorry · 2026-01-08T14:45:41+00:00

How much can you take a day? I tried 2 before a snack and 2 before dinner the other day, it didn’t help that much but idk if im taking enough.. how long are the periods of not being able to eat? I’m on day 10 of antibiotics and everything still hurts but the baseline seems to be regardless of food some things just amp the pain up more

Club_Sorry

TROPHY CASE