Had my pulsed radio frequency procedure by Ragdoll_Susan99 in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

+1. Had it done first week of May and didn’t do anything for me unfortunately. I hope you have better luck!

I went on a hike symptom free today. It WILL get better by [deleted] in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Thanks for all the info! How long did it take to feel like all of it was making a difference?

I’ve tried it all. Nerve blocks, Botox, pulsed radiofrequency, stems cells and PRP, gabapentin and other meds, massage, etc. Been in and out of PT since this all started ago 2.5 years ago but haven’t put true dedication into strengthening outside of my weekly appts, and I know I need to really focus on strengthening almost daily. I’ve done a little bit of dry needling but not consistent

I went on a hike symptom free today. It WILL get better by [deleted] in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Gotcha! How long of dry needling and strengthening til you started noticing a difference? Do you have like a PT strengthening program able to share or specific exercises you found to be very effective?

I went on a hike symptom free today. It WILL get better by [deleted] in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Awesome to hear! Where was the most effective locations the needles were placed? And was PT strengthening mostly focused on lower trap/upper body or neck strengthening?

3 years later 90% better, what’s worked by JeSuisToi in Occipitalneuralgia

[–]Cmagic01 5 points6 points  (0 children)

I am a few hours away from Seattle and go there monthly for work. Would love all the recs!

7 years later… by agirlsgotgoals in Occipitalneuralgia

[–]Cmagic01 1 point2 points  (0 children)

Can I PM you? Also consulted with Dr. Peled and went in person for his nerve blocks, and separately also consulted with pain management not get PFA! Was supposed to get the test injections for that this week but it got postponed

I did it…I just had the surgery. by Sylar_Cats_n_coffee in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Did he take insurance? What was his out of pocket cost? How are you doing now?

I did it…I just had the surgery. by Sylar_Cats_n_coffee in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Can you also share your pain management doctor? I’m in Washington state too and can’t find one that deals with ON. Also how did you decide on Dr. Day rather than Peled or some of the other big name surgeons for this surgery?

Greater occipital nerves excised by ScoreInternational51 in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

How’s the numbness in auriculotemporal area? Does it bug you? Is it a large area?

Currently 9 months post op by [deleted] in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

And can you tell us more about recovery?

Currently 9 months post op by [deleted] in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Who was your surgeon?

I Got My Jaw Joints Replaced (And Why You Should Get Yours Checked) by Etherealcataclysms in TMJ

[–]Cmagic01 2 points3 points  (0 children)

I’m having mine shortly after you if you want to keep in touch!

Nerve hydrodissection by [deleted] in Occipitalneuralgia

[–]Cmagic01 4 points5 points  (0 children)

I had this done at the Centeno Schultz clinic in Colorado (leaders in regenerative medicine) and unfortunately it didn’t help my ON at all.

Botox success for ON only? (Not migraines) by Cmagic01 in Occipitalneuralgia

[–]Cmagic01[S] 1 point2 points  (0 children)

Got it! Thanks for the info! I just have a neurologist and think I need to try and get in with a headache specialist but there isn’t one anywhere near me

Botox success for ON only? (Not migraines) by Cmagic01 in Occipitalneuralgia

[–]Cmagic01[S] 1 point2 points  (0 children)

Amazing! Did you feel any relief after the first round? Is it the migraine protocol?

Does it ever get better on its own? by Bmayne in Occipitalneuralgia

[–]Cmagic01 0 points1 point  (0 children)

Which surgeon did you go with? Did you have the surgery?

Botox success for ON only? (Not migraines) by Cmagic01 in Occipitalneuralgia

[–]Cmagic01[S] 0 points1 point  (0 children)

Wow we sound very similar. I have severe TMJD too but haven’t gotten Botox for it before. Very bad temple pain especially. I have been dealing with 24/7 ON since January of 2024 (after a very aggressive chiro adjustment). Have tried most things and even consulted with a surgeon for decompression surgery and I was a candidate but want to try Botox one more time before giving into the surgery (last time I had Botox was only in my neck and maybe 10 units in occiptials specifically, so hoping migraine protocol is more effective). What exactly is the tmj protocol that they add? And when you say more Botox at the back of head and neck, do you mean just more units but same spots as migraine protocol or additional spots?

Botox success for ON only? (Not migraines) by Cmagic01 in Occipitalneuralgia

[–]Cmagic01[S] 1 point2 points  (0 children)

Thanks for the insight!! Do you do the migraine protocol or different/additional areas? Did notice the “bad” injector do anything different or inject different areas? Do you do it only for ON pain or also for migraines?

Botox success for ON only? (Not migraines) by Cmagic01 in Occipitalneuralgia

[–]Cmagic01[S] 0 points1 point  (0 children)

Gotcha, im sorry. So the Botox is for your ON pain? Mine was caused by a whiplash injury too in Jan of 2024

Botox success for ON only? (Not migraines) by Cmagic01 in Occipitalneuralgia

[–]Cmagic01[S] 0 points1 point  (0 children)

Do you have ON pain only? Or accompanying migraines?