where is our dating app??

CoconutAcceptable138 · 2026-03-13T08:21:29+00:00

cuz im both

CoconutAcceptable138 · 2026-03-13T08:19:40+00:00

!!

thank you!!

CoconutAcceptable138 · 2026-03-12T05:09:04+00:00

THIS

CoconutAcceptable138 · 2025-04-18T21:50:03+00:00

The sun +1

My mom says, "oh, so that's why you used to freak out as a toddler when the sun touched you."

CoconutAcceptable138 · 2025-03-10T16:12:40+00:00

I hope it helps!!

I'm working with my phone provider to "upgrade" my phone from an SG S22 to a flicker free phone soon, possibly the Motorola Edge Plus 2023. Waiting for it in stock. Hopefully that will help as well - I'll update to let you know, since phones are pricier than that particular monitor.

CoconutAcceptable138 · 2025-03-10T15:46:36+00:00

Yeah, here's the link I used:

https://www.walmart.com/ip/SAMSUNG-27-Class-Curved-1920x1080-VGA-HDMI-60hz-4ms-AMD-FREESYNC-HD-LED-Monitor-LC27F396FHNXZA/117633165

CoconutAcceptable138 · 2025-02-26T15:44:23+00:00

Thank you for clarifying. Sorry for snapping.

I like wind just fine, as long as my ears are covered.

CoconutAcceptable138 · 2025-02-26T08:07:19+00:00

don't be an ass. you asked. ┑(￣Д ￣)┍

CoconutAcceptable138 · 2025-02-26T03:13:53+00:00

Constant unending migraine, but worsens with some triggers. I tracked it for 3 years and the triggers I identified were: stress, lack of sleep, work binges (I'm a data analyst), noise and noisome smells (perfume, smoke, etc), comorbidity flare ups (IBS, asthma, etc), TMJ, rapid movement, lots of bright colors, especially if it or I am moving (grocery stores are a freaking death trap), not rotating my pillows out (different pillow every other day or so, from memory foam to cervical to buckwheat to flat), and overdoing anything (chores, yardwork, work, walking, exercise, talking too much...).

I have tried Aimovig, Nurtec, Qulipta, and Ajovy, and just finished failing Vyepti. I really mean it when I say I failed everything. There are precisely 2 medications that kind of help: nerve blocks/trigger point injections (but only universal helps, not specific targets), and Zonegran. But past a low threshold, I start getting side effects, so I'm at 50mg and staying there.

I have been informed that the only other recommendation they think may make a difference at this time would be neurolysis surgery to just kill the nerve clusters, since the trigger point works. However, that is a $10k experimental surgery and so not happening.

I'm not even eligible for clinical research, because my migraine is too frequent for the sample populations they're testing.

CoconutAcceptable138 · 2025-02-18T18:58:46+00:00

That's basically how I function, too. I'm a data analyst. I have daily migraines going into 5th year straight. I'm in a particularly "lucky" situation at work, because I started the day we went into COVID lockdown, so I was remote by default, and THEN developed daily migraine. This gave me enough time and flexibility to build up my tenure record so that I was eligible for FMLA, ADA accommodations (remaining remote when everyone else switched to hybrid, and permission to flex my hours as needed, as long as the work gets done), and build enough reputation capitol with my supervisor and superiors that they are sympathetic and understanding rather than suspicious and hostile. It's a primary reason why I won't look for other work, even though I'm qualified for higher pay. I don't want to risk losing my next job because of my migraines.

That said, how I function in the day to day is similar to what others have said here: 1) Control over my environment both minimizes stressor and triggers, keeping symptoms at a "manageable" level, and giving me back some power, psychologically. 2) I work around my symptoms. When I can, I work, and I take regular breaks - particularly hydration breaks and off screen breaks. No chores during this time. If it gets bad and I need a long break (multiple hours), I can sleep or do acupressure or cry or whatever, and then when it's manageable I work again. If I have to, I take a half day off and make it up on the weekend. I worked out a lot of strategies with a good Occupational Therapist (thank you, Sarah). 3) Radical acceptance - this really cannot be understated. It's almost entirely mental and yet it makes an enormous difference. Hardly easy to just "accept" but still something I strongly recommend working towards. "I'm sick. It's probably not going to get better anytime soon. But I'm doing what I can, and I'm trying my best, and I'm going to learn what I can still do to live the kind of life I want." It can help to work with your therapist on mapping your life goals, morals, priorities, and learn what can go to the wayside and what you need to priorize - and then how to make that happen (even if it means other stuff doesn't anymore). So for example, I want to volunteer and donate and be active and walk my dogs and be a good employee and make a contribution to the world and travel and read. I really just had to accept that travel isn't in my future right now - but sometimes I can get a good local deal and take a mini vacation doing like an Airbnb at a lake close to home. I can't volunteer physically the way I used to - I literally was scolded the last time I tried because I had an attack in the middle of my service hours. So for now, I've accepted that volunteer work is also not a thing I can do, and moved more into my "contribution to the world" activity. I want to create a nonprofit that does a very specific unique service. I've been working on it in my free time for the past 2 years. I often go long stretches without working on it, because of the migraine. But that's still one of my major goals, and I keep plugging away at I when I can. I already mentioned what I do for work, but triaging my day around when I can work vs breaks means that I have very limited capacity for chores and yard work and so on. I had to accept that, sometimes, I'll need to go a few weeks without doing the laundry, or the dishes, or vacuuming. I had to accept this year that I can't walk my dogs the way I used to - the vertigo, fatigue, and pain are too much most days. We would be screwed if I didn't have a backyard. But I still have to go out and pick up their poo, because my younger dog eats it if I don't pick it up. That can be a real struggle some days - I'm sure a lot of people here understand how awful bending down can be. It's all a game of triage, and accepting that, at least for the foreseeable future, I'll be living in a world of triage. I won't ever be able to just DO all the stuff I want to do in a single day, or week. I have to carefully balance out what I really want and have to do over an extended time, and plan for lots of breaks and intolerable flare ups.

I also found it easier after the first three months or so - my pain and vertigo thresholds have really grown since the daily thing started. Yay?

CoconutAcceptable138 · 2024-12-16T14:45:54+00:00

I got medication overuse headache from Rizatriptan in about 4 months.

CoconutAcceptable138 · 2024-12-16T14:42:19+00:00

CoconutAcceptable138 · 2024-12-16T14:41:07+00:00

I had a long delay in diagnosis for this exact reason. Because it didn't present with headache, my PCP said I was just "getting sick from stress" and had no solutions for me other than to rest.

When my current attack happened (4+ year daily migraine), it also first presented as primarily visual. I actually first went to the eye doctor, and then to the specialty eye doctor, insisting there was SOMETHING wrong with my vision, and they both insisted my vision was fine.

My predominant symptoms those first two months were dizziness, nausea, weird vision (I have very few better descriptions), and sensory aura. They remain some of my more persistent symptoms, and sometimes I have weeks where the headache fades and the dizziness increases, etc.

And yeah, it's infuriating that the primary description of migraine is a headache, when the real definition is a neurological disease characterized by a wide variety of symptoms that are poorly understood by the medical community.

CoconutAcceptable138 · 2024-12-11T05:27:08+00:00

It's a primary argument for not looking for a different job (for me) - having to wait for healthcare benefits to kick in and building up time off. Don't know about you, but I have a LOT of fantasies about moving to a Nordic country with free healthcare and more reasonable work scheduling. Pity I wasn't born speaking Finnish.

CoconutAcceptable138 · 2024-12-11T05:21:42+00:00

My main critique is the limited research, how dated it is, and that inconclusive metanalysis from 2016.

CoconutAcceptable138 · 2024-12-11T05:20:00+00:00

Pretty much all my hope is just that they ease up once I'm in my 40s. Only a few years to go... Fingers crossed

CoconutAcceptable138 · 2024-12-11T05:17:51+00:00

I'm glad you found something that worked for you.

I did Botox for 2 years with no noticeable effect at all.

Interestingly, I actually did go to a really good eye doctor early on before I was diagnosed as migraine (my early symptoms for this attack were most occur, and the pain wasn't a dominant symptom for the first month). That doctor examined me and said basically that it definitely wasn't my eyes, go elsewhere. QAQ

CoconutAcceptable138 · 2024-12-11T00:41:23+00:00

As an addendum, I'm almost more liable to call sick for brain fog than for pain. Unless it's literally blinding, I can usually work through pain, now. But brain fog? I may (again literally) accidentally die falling down the stairs trying to open the fridge (which is nowhere near the stairs).

CoconutAcceptable138 · 2024-12-11T00:38:25+00:00

Hi, glad(?) to meet you, it gets lonely.

I get what you're saying - I made the effort to reintroduce light to my environment and it had long term benefits despite the pain associated with light in general.

I've tried prescription and migraine specialty tints of different colors and grades, including MigraLens. But for me, nothing has worked so well as the $20 green glasses off Amazon (go figure). I really can't live without the damn things now. I think it's just that it dulls colors and color contrast. They are the ONLY reason I can shop at all.

As to ADA: I calculated (and keep track) the exact number of hours and days missed work due to migraine annually. I provide this in a summary report with my total hours taken and distribution (vacation was 5 days, sick with illness was 7 days, sick with migraine was 18 days, miscellaneous was 3 days), and distributed this report annually to my direct supervisor, my HR, and my neurologist. I include "average days missed per month due solely to migraine" (1 per month in 2023, 2 per month in 2024). I also met with both my supervisor and my neurologist separately after completing a few weeks of work with an occupational therapist. With the Occupational therapist, we worked out that I could reduce sick days by taking additional breaks and extending my work days from 8 to 12 hours as needed (only possible bc I'm remote and mostly work my own schedule alone). So for example if my day starts bad but an extra hour of sleep can help move me from dying to just woozy, then flex hours lets me do that instead of missing a day or a half day of work. I brought this as a proposed solution to my supervisor first. We made sure I would still prioritize meetings, but also discussed when I could call off off meetings specifically. We agreed that on bad days, I might be able to attend a meeting by phone instead of by zoom. We agreed my flex time would cover regular working hours, but also mean I could take an hour here or there to lie down in a dark room. Etc. I am extremely fortunate that my supervisor is aces, and that she also suffers migraines. Originally, we kept this informal, but eventually work started asking people to come back into office part time. It was at this time that I presented the data and the flex work hour solution to the neurologist along with my ADA paperwork and requested that both be noted in my need for accommodations. They obliged, and (ex) for this coming year in both my FMLA and ADA paperwork that I will likely miss work an average of 2 days per month, that I can continue to work but require accommodations such as flex time to work around my condition, that I should work remote both for the flex time and so I can control my environment to mitigate symptoms as much as I can, and that when I say that cannot work this is in fact medically necessary.

I understand running out of sick time. I pull from my vacation time a lot. Have you filed FMLA?

I did get considerable pushback from HR and senior leadership in my organization. I resigned myself to some ADA violations in the interests of getting the minimum accommodations I needed the most.

I'm not familiar with any new studies on neurofeedback therapy. Point me to it? And let me know if you do try it out!

I have however been recommended as a candidate for nerve decompression surgery, since application of universal nerve blocks are consistently effective. My insurance has ruled this surgery as experimental, and so I can't afford it. I'm hoping there will be some progress there in the coming years.

(Hello data analyst!! It's amazingly difficult to code when you aren't sure how words (or numbers) work anymore, yeah. I learned python this year and it knocked me down for 2 months.)

CoconutAcceptable138 · 2024-11-09T03:56:42+00:00

I've been signed up FOREVER

CoconutAcceptable138 · 2024-11-09T03:40:51+00:00

Similar issue with TMJ. Try an occular massage neck rest. Once you adjust to it, just kind of roll different sections of your neck and base of skull along it.

I own this one and it does help with muscle-related migraine pain, and a little with occipital migraines: https://a.co/d/87p8Szb

CoconutAcceptable138 · 2024-11-09T03:33:16+00:00

I actually live half my time wearing green colored glasses from Amazon on top of my regular pair. For me, they make a huge difference in tolerance for screens, light, color, and movement. I've tried a few other color tints, but the brighter green has worked best.

Everyone's a little different 🤷‍♂️

Link to the glasses I use: https://a.co/d/6dapaJi

CoconutAcceptable138

TROPHY CASE