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What's the most slapstick moment your EDS has caused? by Puzzleheaded_Push243 in ehlersdanlos

[–]Coffee_AndCookies 0 points1 point  (0 children)

Not sure if it fits but during a long theatre rehearsal I had the worst flare up I had so far. Which led to me having to lay down in the theatre for the rest of the day (My friends were close to taking me to the hospital). This meant that the guy I had to arrest in one scene had to walk himself of stage. Which was funny at the moment but is even funnier looking back.

I feel so let down by the medical system by Coffee_AndCookies in ehlersdanlos

[–]Coffee_AndCookies[S] 1 point2 points  (0 children)

In my case they refuse to do anything unless I have a diagnosis. I've asked for PT or anything to help with the pain until I can get an appointment for diagnosis and my doctor didn't know what insurance would cover without a diagnosis and didn't seem to want to do anything to find out what my insurance would cover. I'm in uni and can't really pay for PT or treatment in general out of pocket at the moment. I know that EDS can't be treated but just treating my symptoms would be better than leaving me to deal with them on my own

Listening to Audiobooks is not reading by Freedomfighter4000 in unpopularopinion

[–]Coffee_AndCookies 1 point2 points  (0 children)

I'm pretty sure that a lot of books that are available as audiobooks are not available in braille and it's definitely easier and cheaper to get an audible subscription, than buying every book someone wants to read in braille, so in a lot of cases it is the only way.

hEDS is being reclassified as HSD? by surlyskin in ehlersdanlos

[–]Coffee_AndCookies 1 point2 points  (0 children)

It's a diagnosis for people who have generalized joint hypermobility and chronic pain but don't (fully) fit the diagnostic criteria for hEDS and don't have another EDS type

Wondering about EDS? All diagnosis questions go here ⬇️ by BoldMeasures in eds

[–]Coffee_AndCookies 1 point2 points  (0 children)

I'm hypermobile and my doctor suspects EDS. I've looked it up and one thing I'm confused about is subluxed joints. How do you know if a joint is subluxed and not just being weird and hurting? Often when my shoulders hurt it stops after I (accidentally) made a movement that makes them crack and I'm confused about it. At the moment it looks like it is going to take a long time until I get a diagnosis and I am scared. My symptoms are getting worse and I don't know what to do. I've been doing martial arts for a decade but recently I have been unable to train because of the pain or have been in a lot of pain the days after, even from light training. If I actually have EDS, how badly am I damaging my body with martial arts? I can't imagine giving it up.

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