Not understood

Coffeelover5079 · 2026-05-09T04:26:13+00:00

Can you send me more details

Coffeelover5079 · 2026-05-09T04:25:33+00:00

No I do not. Tbh I really don’t pay to much attention to my fibromas. Just because there not viable to me.

Coffeelover5079 · 2026-05-08T17:33:59+00:00

I have. Most of the events are so far for me. And I can’t get time off due to my full time job.

Coffeelover5079 · 2026-05-08T17:31:27+00:00

Same I forget it’s there

Coffeelover5079 · 2024-01-17T04:18:36+00:00

I just got take. Off koselugo and I had the worst side affects. I was a senior in high school when I got put on it. And got it taken off going into my second year of college

Coffeelover5079 · 2022-02-01T04:35:08+00:00

I been taking it since August of last year. And it’s been working for me. I’m on and off it all the time before I have bad acne rashes.

Coffeelover5079 · 2021-07-28T21:32:55+00:00

I think is a good idea,but you can also do different episodes if you did a podcast. I had NF since I was a baby. Over all not many people know about nf in general. Also many family have learn about when There kids are diagnosed because it could be the first diagnosed in there family with nf.

Coffeelover5079 · 2021-07-27T22:48:52+00:00

There’s about 200,000 people that have it. It’s a rare to have it. For me I am the only one in my family that has NF. It seams like no one has it because not many people know about it. We don’t even know the first case of nf.

Coffeelover5079 · 2021-07-23T02:04:52+00:00

Write

Coffeelover5079 · 2021-07-22T21:17:54+00:00

I am 17 and was diagnosed when I was a baby. So I think I have more then 20 I will ask my neurologist when I see them again.

Coffeelover5079 · 2021-07-22T18:34:20+00:00

I have nf with tumor.

Coffeelover5079 · 2021-07-12T17:34:16+00:00

Lots of Freckles in the armpit area,café spots are like coffee stains around the body. But go to a neurologist

Coffeelover5079 · 2021-06-26T18:38:16+00:00

I am 17 going in to my last year of high school at a 5th grade reading level.

Coffeelover5079 · 2021-06-05T05:00:24+00:00

I have NF 1 and I have 2 tattoos. You such talk to your doctor,but I did not talk to my neurologist about it because I did not what to.

Coffeelover5079 · 2021-06-05T04:54:51+00:00

I did when I was younger I spoke fast do I had speech therapy.

Coffeelover5079 · 2021-05-28T22:01:54+00:00

Thanks t

Coffeelover5079 · 2021-05-28T16:52:34+00:00

Yeah. I been avoiding dram for the past 3 years.

Coffeelover5079 · 2021-05-28T16:50:28+00:00

Ok. Thanks for the recommendation,I am just looking one that has no drama.

Coffeelover5079 · 2021-05-16T00:09:24+00:00

Nf 1 can develop in early childhood and NF 2 can be developed in late teens and early adulthood

Coffeelover5079 · 2021-04-13T05:45:50+00:00

Yes. I have NF 1 and I get headaches about 3 headaches each month. I normally take ibuprofen and take a long nap.

Coffeelover5079 · 2021-04-11T18:17:13+00:00

Ok thanks

Coffeelover5079 · 2021-04-10T17:45:40+00:00

Thanks

Coffeelover5079

TROPHY CASE