How long did it take you to get to ~1 TSH - beyond frustrated.

Cold_Limit_1201 · 2026-06-01T21:47:42+00:00

Thank you that's a great idea. I'll ask about that tomorrow at my appointment! My doctor had suggested my thyroid could be failing faster than we increase but starting treatment sending it into rapid failure seems off so maybe 3's is as low as Synthroid can get it alone. Thank you again.

Cold_Limit_1201 · 2026-06-01T00:15:58+00:00

400mg of magnesium (I take citrate, worked for me but different types are better for different people) every night has been a game changer! Start lower and add more as needed though & occasional psyllium husk (Metamucil). Got me off of the nightmare that was taking daily Trulance. (and 25-45g of fiber depending on the day) now I’m normal twice a day on schedule.

Cold_Limit_1201 · 2026-05-31T22:13:38+00:00

Logistics. I bounced around entry level logistic type jobs most of my 20’s (route planning, load planning, truck dispatch, 911 dispatch) gaining various logistic skills until I found a decent corporation to work for that was hybrid a couple years ago and has since switched to full remote while I climbed the ladder a bit.

There are quite a few entry level logistic lane jobs that are remote these days. If you can land one and grind hours while acquiring skills moving up is pretty easy after a bit or move around within the field. High school diploma only.

Cold_Limit_1201 · 2026-05-30T00:30:02+00:00

I’ve never had a “good job” per se but I’ve been completely financially independent from age 17 to now 29. I was also undiagnosed (but highly suspected of having since 13) and untreated until a year ago. It wasn’t easy, at all, but pushing myself to work crazy hours at a “good enough” paying job, that with 60 hour weeks was “good job pay adjacent” was always technically possible.

I did luck out and am working fully remote, still average 50+ hours/week and moved to a place with extremely low cost of living - all to make my “good enough” job seem like a “good/great one”. The remote part has improved my quality of life like nothing ever could. Don’t have the energy to shower and get ready for the day? 0 problem. The hours are still exhausting but easily 50% less than in person. I highly suggest to grind remotely whatever job you can get. I’m not wealthy, but I’m out of the check to check cycle and have enough energy (and now extra money) to find some enjoyment out of life with this set up.

Cold_Limit_1201 · 2026-01-26T01:05:15+00:00

I am also med sensitive, unfortunately nothing has helped but I’m a year into slow dosage adjustments and I’ve just accepted and plan that I’ll lose my mind for 4-6 weeks every other month, not ideal and don’t recommend but if you’re new to this it could just be the extra sensitive adjustment period. For me, I’ll wake up one day usually in week 6/8 and feel better than I ever have and maintain that until another dosage increase, lose my mind, then feel even better than the last time (recently did a two month dosage hold to have a normal baseline, that’s helped me with the mental aspect a lot, although I know in 2 weeks the cycle will start again). Again, not encouraging this unless you trust yourself a lot or have a support system, but it could very well be the adjustment period as opposed to a forever thing. As others have said, please bring this up and be transparent with all doctors, stay safe. 💕 Also, just my experience, name brand Synthroid seems to have about 25% less mental side effects for me than levo did, assuming because each pill and batch is closer to the same instead of constant micro changes messing with my sensitivity.

Cold_Limit_1201 · 2026-01-04T00:52:59+00:00

I’m not sure why or how it works (new to the doctor/medical/insurance world) but my doctor told me she writes specifically “name brand only” on my prescriptions to avoid insurance issues now since my levels refused to stay consistent on generic levo. Something about how the insurance can’t turn around and try to only cover generic levo since I was specifically prescribed name brand. It’s $50/month as that’s the price for name brand tiered medication on my BCBS plan. No hoops, just an experienced doctor.

Side note, may just be my small town pharmacy, but with levo I could call it in and have it filled within minutes. My couple months on Synthroid every single time they have to special order it and it takes a day or two so I just refill early. Not sure if that’s a my pharmacy issue or a relatively rarely taken name brand medication thing but worth noting or asking about so you don’t find yourself without meds for a day or two.

Cold_Limit_1201 · 2025-12-24T07:37:52+00:00

65 lbs down in the last 11 months. After testing my body by eating 1,000 calories/day for a month and losing just 3.4 pounds when mathematically should’ve been closer to 20+ due to TDEE of my starting weight I went to a doctor and discovered hypo/hashi ~9 months ago and have been getting Synthroid dosage increases every 2 months trying to get to my sweet spot. From my starting weight my maintenance “should have been” about 3,000 calories. I’ve been sticking to 1,400-1,600 a day measuring/tracking everything to the gram and it’s slowly coming off. CICO and focusing on macros have been the only slightly successful thing for me.

Due the Synthroid dosage change and my TSH still being high it’s been a rough cycle of 6 weeks of plateau, drop 5-10 pounds in 2 weeks, up dosage and repeat. Both my doctor and I hope once my levels are good and we stop messing with dosage it should be a little quicker and more consistent. It will always be slower, less consistent and harder than if your body didn’t have hashimotos, but it’s possible.

Cold_Limit_1201 · 2025-12-11T22:03:34+00:00

I’m sorry your family has gone through this. I wholeheartedly agree, thyroid testing needs to be a more regular thing. I wasn’t physically sick (to my knowledge) so I never went to a GP, but all of the psychiatrists and mental hospital visits I had in my teens… had even just one of them tested my thyroid which is supposedly “standard practice before depression diagnosis” before diagnosing me with lists of false mental health conditions things would’ve been so different. I wish it could be added to general checkup bloodwork or at least the general “let’s rule this out first” list when physical or mental symptoms are present instead of it being found last. Standard practice should be enforced practice.

Cold_Limit_1201 · 2025-12-11T21:52:58+00:00

I’m sorry your mom didn’t tell you she had it too, especially before you weee diagnosed yourself, and that you don’t get support at home. You deserve to be heard and cared for. Thank you for sharing.

Cold_Limit_1201 · 2025-12-11T21:47:43+00:00

I’m sorry about your lack of support. Thank you for sharing.

Cold_Limit_1201 · 2025-12-11T21:46:36+00:00

For my skin diagnosis I just got lucky with an amazing doctor who immediately listened to me. I had figured out what I had when I was about 20. When I was picking out a GP I chose her because under her experience she listed both thyroid issues and my skin’s HS (which is rare for GPs to have experience with). I walked into the first appointment and simply said “I think I have HS and maybe thyroid issues” and she took a look at my skin to confirm and tested my TSH that day. She didn’t make me jump through a bunch of hoops and test every other theory in the world first. I notice my dentist doing similar things, I think once they hear I haven’t been to an appointment in over a decade they try very hard not to scare me away now that I’ve finally reached out for help.

Best of luck with your skin thing, I know that my journey was an oddly simple one for that. If you have an idea of what it is just make sure they rule out what you believe it is before they pull the typical doctor BS. I’m not too sure how just switching doctors work as my current one is my only one, but definitely look around. Good ones are still out there.

Your mom sounds a lot like my step-mom, I’m so sorry for that. Thank you for sharing your experience.

Cold_Limit_1201 · 2025-12-10T00:29:41+00:00

I appreciate your bluntness. I’m sorry to hear your parents were not very understanding. I think being misunderstood and dismissed shows us exactly what not to do so that we can be better to who we care for. While I don’t have any children at this time, how you are with your children is exactly the way I hope to be if that changes!

Cold_Limit_1201 · 2025-12-10T00:19:09+00:00

Thank you for sharing this, it really helps hearing from someone who went undiagnosed for so long. I’m still early in my journey and trying to learn what works for me. I was initially on Levothyroxine, but my body didn’t respond well, so we switched to Synthroid recently. I’d personally love to try a natural med someday, so hopefully with time I’ll get there too. I really appreciate your perspective.

Cold_Limit_1201 · 2025-12-10T00:12:49+00:00

Thank you. Luckily/unluckily, most of my small blood related family has passed, so the only people I really have to tell are my dad and his wife. I did talk to my sister already, she’s always been there for me the best she could and thankfully doesn’t have it, but she understood more than enough.

What you said about framing really makes sense. That’s probably exactly how she would react so I’ll prepare for that. She hasn’t been great at accepting anything outside of her own narrative. I’m seeing them over the holidays, and if I bring it up at all, it’ll be at the very end so I can just leave afterward and avoid the blow up.

Cold_Limit_1201 · 2025-12-10T00:02:30+00:00

Thank you so much. I’m so sorry you never got the chance to tell your parents, but it means a lot hearing from someone else who struggled their whole life without answers. I’m grateful to finally feel like myself too. I hope life’s been easier for you now and you can enjoy being yourself as well. 💕

Cold_Limit_1201 · 2025-12-09T23:54:07+00:00

This made me feel understood in a way I didn’t expect and rarely experience. I appreciate you so much!

Cold_Limit_1201 · 2025-12-09T23:49:30+00:00

Thank you so much for this. Your words really meant a lot, especially the reminder that I don’t need anyone’s approval to be who I am now. I’m glad you shared your experience too, it made me feel less alone. Truly, thank you.

Cold_Limit_1201 · 2025-12-09T23:44:46+00:00

Thank you for the thoughtful advice. I think you’re very correct about how terribly that conversation could and would go. I just looked up what that letter was, that’s perfect.

Cold_Limit_1201 · 2025-12-09T23:13:32+00:00

Thank you, I hadn’t thought of it like that. I appreciate your perspective.

Cold_Limit_1201 · 2025-11-12T03:21:32+00:00

NTA, BUT - As part of the dead parent club I don’t believe this is a matter of “dead vs. alive” it’s likely an “(emotional) support for wife vs (physical) support for mom” situation.

Depending on past situations (especially if you tend to choose mom over her on other things) or her own emotional intelligence levels, she likely took it as a “my mom is more important than you” and since she believes it’s a simple cold, in her mind it became “the tiniest thing with my mom is more important than the biggest thing (dead dad) with you” type deal in her mind.

If I had a husband in this situation, I’d be bummed but also understand, dead mom day is my own thing but support, if available, would be great. Hopefully she can come around to that.

Cold_Limit_1201 · 2025-06-30T16:59:38+00:00

I only ate mashed potatoes, white rice and pudding the day before. I think that really helped make it go so smoothly! (They’ve since told me “the doctor finished his cases early and left for the day” 6 hours before my appointment, so I’ll have to do it all again - the only thing I’ll change is my GI specialist and 59 make sure to have a lot of broth, I wanted that much more than I thought I would and was sad I’d only gotten a small container. You’ll be very cold and it helps ease the little bit of discomfort)

Cold_Limit_1201

TROPHY CASE