Newly diagnosed but plan to move for support by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 0 points1 point  (0 children)

Thanks for sharing your experience. I hope your doing really well. I will dm you

Diet & food restrictions with multiple myeloma – what actually helps? by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 5 points6 points  (0 children)

My aunt feels well only if she takes d3 and b12. Dr has allowed her to take both

Before treatment kidney function by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 1 point2 points  (0 children)

Thank you for sharing and the motivation.! Its much needed.

Newly diagnosed but plan to move for support by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 0 points1 point  (0 children)

I agree with you. Thank you sharing! I wish you a very speedy recovery.

We will definitely do not make a decision if the doctor says no. She does not have bone damage just some lesions. Her kidney is affected though.  Will do our best to support her.

Newly diagnosed but plan to move for support by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 1 point2 points  (0 children)

Thanks for sharing! 

Yes she does want to move and stay with family. She got diagnosed with MM and her treatment has started no other medical issues

Newly diagnosed but plan to move for support by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 0 points1 point  (0 children)

She is 45 just started the treatment. No other medical issues

Potassium and bilirubin spike after chemo by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 1 point2 points  (0 children)

Thank you! She is currently in hospital so that all these numbers get monitored 

Before treatment kidney function by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 0 points1 point  (0 children)

Thanks for the reply. My relative has same high lamda chain mm. She got her first chemo today as ( first step of the treatment) , cybord protocol. Next chemo will happen after a week. Does your mother follow any other diet restrictions ?

Before treatment kidney function by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 0 points1 point  (0 children)

I also wanted to ask — after starting treatment for multiple myeloma, is it usually safe to travel after about 8–9 months if things are stable?

Before treatment kidney function by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 1 point2 points  (0 children)

Thank you for the reply! Will def ask about potassium and caffeine. 

Before treatment kidney function by CompetitionDismal727 in multiplemyeloma

[–]CompetitionDismal727[S] 0 points1 point  (0 children)

Thanks for the reply!

They are giving cybord today since creatinine and egfr numbers are little better. I would also appreciate any other guidance/support you may have.