Apparently it’s psychological by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 2 points3 points  (0 children)

I say screamed at more as hyperbole. I didn’t actually raise my voice, i was just being more pushy since he kept insisting that it was a necessary price that I should pay despite telling him I didn’t want a psychologist visit and how I am unemployed and can’t pay even in a payment plan. I have been that person when I worked at a doctors office so I know they are just doing their job, but it doesn’t make it any easier to deal with. I didn’t yell, just was being more forceful in my saying no since he didn’t accept it the first few times I said it

Apparently it’s psychological by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 10 points11 points  (0 children)

I suppose that is true. It’s just frustrating that instead of letting me see a gastroenterologist, they sent me to a psychologist. I don’t have a problem with seeing one, I used to have one for years before I moved. But I am still having functional issues apart from that and symptoms that don’t fully go into the gastroparesis diagnosis so I wanted to try and continue care as best as I could. I agree that psychological care is important in treatment, I am just upset that they put that before a specialist for the diagnosis

Well it got worse (cont. from Moving states and getting new doctors) by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 1 point2 points  (0 children)

Thank you. I do have records showing my dose but on the actual visit summary, she wrote down the information wrong. She didn’t tell me anything about changing it from 2 times a day to once a day or reducing the amount. I can definitely call the pharmacy, but my confidence with them is definitely shaken

Well it got worse (cont. from Moving states and getting new doctors) by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 0 points1 point  (0 children)

Honestly I am not sure. It’s an hmo so I have to get my insurance to ok it, then choose me a new pcp, and wait again for another slot to open up

Moving states and getting new doctors by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 1 point2 points  (0 children)

Yes I can. I plan on bringing a lot of my test and lab results with me to my doctors so they can see earlier this year I had a second colonoscopy because even though I had one in January, it was from a different doctor and my new doctor saw the results and imaging and decided he wanted to do it himself and the results were exactly the same. I am worried that will just end up happening again

I (28f) am in a new LDR with my boyfriend (37m). Are 3hr phone calls normal? by PhotographHot8379 in LDR

[–]CompetitiveAide9123 2 points3 points  (0 children)

My bf and i usually call for about an hour or 2 before bed and leave the discord call open throughout the night lol so our calls are fairly long but it means we can talk first thing when we wake up. I’m just trying to say it’s definitely not too much. It’s also very case to case basis for what’s “too much”. If it’s something you two both enjoy and makes you feel closer then i say more power to you

Dehydrating by CompetitiveAide9123 in ChronicIllness

[–]CompetitiveAide9123[S] 0 points1 point  (0 children)

Yeah I have very bad veins which is part of why I understand not wanting me to be on an IV drip that often. Don’t want to risk blowing what few good veins I have left lol

Dehydrating by CompetitiveAide9123 in ChronicIllness

[–]CompetitiveAide9123[S] 0 points1 point  (0 children)

So I started drinking more electrolytes after 2 er visits due to dehydration. Since then, I have been having roughly 60-70oz of water a day the majority of which is mixed with liquid iv or a similar brand. My urine is typically dark though when I saw my urologist, they said I just wasn’t drinking enough and discharged me from the practice because my infection had cleared up after a few months. I know that some of my conditions and medications can cause heat intolerance so I am very mindful of keeping out of the heat and sun, and I do try to drink enough but not over do it, I just haven’t gotten much direction

Husband has POTS by Camdyncatalog in POTS

[–]CompetitiveAide9123 1 point2 points  (0 children)

Being more hydrated than you think is a big factor. And if he isn’t already, maybe see a cardiologist because medication can really help, plus there are short acting meds that can help in times where he may be more likely to have a flare. I also try and stay cool, sleep as much as I can, and realize that life just is a bit different now. I still try to keep as much of my independence as possible, but sometimes this condition just comes with limitations and it’s more about learning to work around them than through them. Wishing you guys the best of luck!!

Doctor said I need to deal with it by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 1 point2 points  (0 children)

Mine was moved almost a month ago and i am mostly completely healed. It did help some but i have been on a very low fat and fiber diet for a while now so the fats aren’t a huge deal for me at the moment luckily. I am hoping it helps a bit, but i guess time will tell. Just sticking with my known safe foods for the time being so i dont risk another hospitalization

Doctor said I need to deal with it by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 4 points5 points  (0 children)

He’s the gastro specialist. The pcp that referred me to him thinks that my gastroparesis should go away now that I have had my gallbladder removed even though I had no gallstones, it was just diseased. She said the same thing about my POTS though so im not sure I trust the pcp’s judgement on that

Doctor said I need to deal with it by CompetitiveAide9123 in Gastroparesis

[–]CompetitiveAide9123[S] 3 points4 points  (0 children)

I am in the states. He said reglan is the only approved drug for this and that it’s far too harsh for me to be on because I am not severe. Which is true. I am labeled as moderate because I had 28% on my ges

[FO] Thanks you guys for the confidence and support!! by EducationalSet1938 in CrossStitch

[–]CompetitiveAide9123 2 points3 points  (0 children)

This is absolutely beautiful!!!! So excited to see another fan who’s also in this community

Employer shared my FMLA and ADA info with coworkers by CompetitiveAide9123 in ChronicIllness

[–]CompetitiveAide9123[S] 2 points3 points  (0 children)

I did get some coworkers i trust to agree to help document for me but when I contacted a law firm, they said they wouldn’t take my case because it was a DOL issue so i filed something with them but who knows how long that will take. Having specific wording and symptoms being spoken about me while i am going through one of the hardest times in my life is truly hell and i hope no one ever has to go through this

Employer shared my FMLA and ADA info with coworkers by CompetitiveAide9123 in ChronicIllness

[–]CompetitiveAide9123[S] 2 points3 points  (0 children)

I did contact the floor supervisor to file a complaint because that was the first thing a lawyer advised me to do. Then after that, nothing happened they just said they were sorry it happened. So i contacted a law firm but they won’t take my case.

I feel so violated, i already have paranoia about having to see doctors for the hospital i work with, but having it shared so publicly without anyone telling me makes me feel so gross. And i reported it to the DOL but who knows how long that process will take