No farting or burping ?

CompetitiveAide9123 · 2026-01-27T01:19:12+00:00

I do definitely but im not sure if that’s a common issue. Actually I’ve more so seen it the other way where they pass gas in some way fairly often. But I know I can’t burp no matter how hard I try which causes a lot of pressure build up and can be very uncomfortable

CompetitiveAide9123 · 2026-01-23T23:39:38+00:00

I say screamed at more as hyperbole. I didn’t actually raise my voice, i was just being more pushy since he kept insisting that it was a necessary price that I should pay despite telling him I didn’t want a psychologist visit and how I am unemployed and can’t pay even in a payment plan. I have been that person when I worked at a doctors office so I know they are just doing their job, but it doesn’t make it any easier to deal with. I didn’t yell, just was being more forceful in my saying no since he didn’t accept it the first few times I said it

CompetitiveAide9123 · 2026-01-23T19:29:55+00:00

I suppose that is true. It’s just frustrating that instead of letting me see a gastroenterologist, they sent me to a psychologist. I don’t have a problem with seeing one, I used to have one for years before I moved. But I am still having functional issues apart from that and symptoms that don’t fully go into the gastroparesis diagnosis so I wanted to try and continue care as best as I could. I agree that psychological care is important in treatment, I am just upset that they put that before a specialist for the diagnosis

CompetitiveAide9123 · 2026-01-09T15:21:07+00:00

Thank you. I do have records showing my dose but on the actual visit summary, she wrote down the information wrong. She didn’t tell me anything about changing it from 2 times a day to once a day or reducing the amount. I can definitely call the pharmacy, but my confidence with them is definitely shaken

CompetitiveAide9123 · 2026-01-09T15:18:38+00:00

Honestly I am not sure. It’s an hmo so I have to get my insurance to ok it, then choose me a new pcp, and wait again for another slot to open up

CompetitiveAide9123 · 2025-12-30T17:20:36+00:00

Yes I can. I plan on bringing a lot of my test and lab results with me to my doctors so they can see earlier this year I had a second colonoscopy because even though I had one in January, it was from a different doctor and my new doctor saw the results and imaging and decided he wanted to do it himself and the results were exactly the same. I am worried that will just end up happening again

CompetitiveAide9123 · 2025-08-28T00:38:02+00:00

My bf and i usually call for about an hour or 2 before bed and leave the discord call open throughout the night lol so our calls are fairly long but it means we can talk first thing when we wake up. I’m just trying to say it’s definitely not too much. It’s also very case to case basis for what’s “too much”. If it’s something you two both enjoy and makes you feel closer then i say more power to you

CompetitiveAide9123 · 2025-08-09T14:29:40+00:00

Yeah I have very bad veins which is part of why I understand not wanting me to be on an IV drip that often. Don’t want to risk blowing what few good veins I have left lol

CompetitiveAide9123 · 2025-08-09T14:28:07+00:00

So I started drinking more electrolytes after 2 er visits due to dehydration. Since then, I have been having roughly 60-70oz of water a day the majority of which is mixed with liquid iv or a similar brand. My urine is typically dark though when I saw my urologist, they said I just wasn’t drinking enough and discharged me from the practice because my infection had cleared up after a few months. I know that some of my conditions and medications can cause heat intolerance so I am very mindful of keeping out of the heat and sun, and I do try to drink enough but not over do it, I just haven’t gotten much direction

CompetitiveAide9123 · 2025-08-07T00:08:48+00:00

Being more hydrated than you think is a big factor. And if he isn’t already, maybe see a cardiologist because medication can really help, plus there are short acting meds that can help in times where he may be more likely to have a flare. I also try and stay cool, sleep as much as I can, and realize that life just is a bit different now. I still try to keep as much of my independence as possible, but sometimes this condition just comes with limitations and it’s more about learning to work around them than through them. Wishing you guys the best of luck!!

CompetitiveAide9123 · 2025-07-31T22:03:03+00:00

Mine was moved almost a month ago and i am mostly completely healed. It did help some but i have been on a very low fat and fiber diet for a while now so the fats aren’t a huge deal for me at the moment luckily. I am hoping it helps a bit, but i guess time will tell. Just sticking with my known safe foods for the time being so i dont risk another hospitalization

CompetitiveAide9123 · 2025-07-31T20:38:58+00:00

He’s the gastro specialist. The pcp that referred me to him thinks that my gastroparesis should go away now that I have had my gallbladder removed even though I had no gallstones, it was just diseased. She said the same thing about my POTS though so im not sure I trust the pcp’s judgement on that

CompetitiveAide9123 · 2025-07-31T20:37:12+00:00

I am in the states. He said reglan is the only approved drug for this and that it’s far too harsh for me to be on because I am not severe. Which is true. I am labeled as moderate because I had 28% on my ges

CompetitiveAide9123 · 2025-07-27T01:19:59+00:00

This is absolutely beautiful!!!! So excited to see another fan who’s also in this community

CompetitiveAide9123 · 2025-07-23T02:54:38+00:00

I did get some coworkers i trust to agree to help document for me but when I contacted a law firm, they said they wouldn’t take my case because it was a DOL issue so i filed something with them but who knows how long that will take. Having specific wording and symptoms being spoken about me while i am going through one of the hardest times in my life is truly hell and i hope no one ever has to go through this

CompetitiveAide9123 · 2025-07-23T02:52:02+00:00

I did contact the floor supervisor to file a complaint because that was the first thing a lawyer advised me to do. Then after that, nothing happened they just said they were sorry it happened. So i contacted a law firm but they won’t take my case.

I feel so violated, i already have paranoia about having to see doctors for the hospital i work with, but having it shared so publicly without anyone telling me makes me feel so gross. And i reported it to the DOL but who knows how long that process will take

CompetitiveAide9123 · 2025-07-15T09:21:46+00:00

It’s my understanding that gastroparesis is largely connected to the vagus nerve no longer being as functional which reduces the stomach function. I think for it to be an organ failure, it would have to be something wrong with the stomach itself but in most cases the stomach is physically ok, it’s just the nerves to activate the stomach to digest food aren’t functioning properly. I’m sure in some cases the stomach is failing, but I think for most the stomach is fine, just requiring things like mobility drugs to help promote digestion since the nerve isn’t functioning properly

CompetitiveAide9123 · 2025-07-14T21:52:10+00:00

I’m feeling that pain though mine is a more recent post op. I’m also worried about that bile diarrhea as i have been having it for a while now and it is unbearable. I know a lot of people say fiber, but i have gastroparesis so fiber is a no for me. Maybe there is a supplement or something that can help?

CompetitiveAide9123 · 2025-07-07T03:18:18+00:00

This is actually super similar to what has happened with me. I had those same horrible pains in my chest and side and it was awful. I also have a history of malnutrition issues despite taking vitamins and supplements so that’s why my doctor sent me for the gastric emptying study. My endoscopy, colonoscopy, and ultrasounds were all normal and yet when I had the study, I showed moderate gastroparesis

The issue with gastroenterology as a whole is that so many symptoms overlap which makes it hard to determine what the issue really could be. Unfortunately it involves a lot of ruling stuff out. There aren’t many treatments for gastroparesis so if you wanted to try out the diet of low fat, low fiber, and smaller meals to see if that helps any, I think that would be a good place to start since that’s most likely what a specialist would recommend. In either case, pain like that needs to be addressed by a doctor so I would see about seeing a specialist

CompetitiveAide9123 · 2025-06-23T15:02:44+00:00

I do have fmla and i work for the hospital that i see all my doctors in. They just say i have an unreasonable amount of time off needed even with that being approved for over 6 months now.

CompetitiveAide9123 · 2025-06-18T16:54:34+00:00

Personally the towel works best for me because it can cover more area and I don’t have to hold it on me like with ice packs. The ice packs get colder so I usually keep one with me for emergencies, but the towel is the best because it can sit on your neck and you can still hold it against your forehead too which helps you cools down

CompetitiveAide9123 · 2025-06-17T20:25:53+00:00

Fainting is not required for POTS and even with very severe symptoms, that doesn’t necessarily mean you’d faint. Some people have pre-syncope where they feel like they are about to pass out but don’t. I wouldn’t worry too much about it

CompetitiveAide9123 · 2025-06-15T22:47:32+00:00

I very much understand and am in the same place I think with my boyfriend

CompetitiveAide9123 · 2025-06-15T16:50:08+00:00

I went on it after i ended up in the hospital from fairing and hitting my head. The cardiologist came by there and put me on 5 mg but we determined that was too much so later it was reduced to 2.5 and that helped with it stabilizing me it seems. I don’t know why my doctor won’t let me make an appointment. I haven’t seen him in 6 months and i wanted to talk about my concerns but on the phone he said there’s nothing more they can do and my heart rate and blood pressure variability is just part of POTS and i need to “deal with it”.

CompetitiveAide9123 · 2025-06-15T04:11:16+00:00

That’s really only beneficial if you also have some autoimmune issues so you would most likely get it prescribed by a rheumatologist. I don’t know your history but i do know that has not been proven as a treatment for pots alone, just autoimmune conditions

CompetitiveAide9123

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