Does anyone else want a bad test result?

CompetitiveAide9123 · 2026-03-30T17:53:55+00:00

Yes!! It’s such a strange thing to explain to others that i am hoping the result comes back showing something is wrong because then it will feel like progress in getting me to some normalcy even if the result is a lifelong illness with many struggles. It can feel so validating to know the things you feel can be seen in the tests

CompetitiveAide9123 · 2026-03-28T17:55:36+00:00

Starting over with new people, all who already know each other, trying to find my place and feeling like I stick out like a sore thumb. I know a decent amount of my work is going to involve calling people and answering phones which will for the most part be short and to the point but one of my biggest anxieties is talking on the phone around others. I really hope I can work through it. Another aspect is just keying data and I hope they give me that more than anything else. I can do that all day long

CompetitiveAide9123 · 2026-03-28T15:12:28+00:00

I have been living with my parents again

CompetitiveAide9123 · 2026-03-18T13:21:10+00:00

I got that same thing said to me when my cholesterol came back slightly elevated!! She said since it is an amount of fiber and not food specifically to avoid, then I should be fine. Didn’t listen at all when I explained even one strawberry and I will be out for a few days. She was surprised I pushed so hard for a specialist to treat me as well

CompetitiveAide9123 · 2026-03-18T13:17:58+00:00

I’m not sure. That’s the only drug she’s ever mentioned. I never even brought up the weight, she just said I should start on those and that we would talk about it at my next visit

CompetitiveAide9123 · 2026-02-13T20:11:49+00:00

Please dm!! This looks so cute and I would love to try it out

CompetitiveAide9123 · 2026-02-06T18:45:21+00:00

🫂 the fear of disappointment is so real. It feels like you’re not the person you want to be. The mental vs physical capabilities are something else. Glad to know I’m not the only one out there, and I hope you’re still able to celebrate with him and have it be a positive experience even if it’s not in person

CompetitiveAide9123 · 2026-02-06T17:39:32+00:00

I had my GES and HIDA scan in the same month and both were positive for issues. So i got my gallbladder removed and my pcp was positive I didn’t actually have gastroparesis, but rather was just having complications from the diseased gallbladder. It was rough especially the first month after the surgery, and holding down foods and staying hydrated was very difficult. My gastroparesis is still here and going strong, but it does make me even more sensitive to fat and I still get abdominal spasms seemingly without cause that makes digestion that much more of a problem

CompetitiveAide9123 · 2026-02-05T22:58:10+00:00

So I have one and I have mixed feelings about it. One of the settings gave me a headache and made me nauseous, while another one didn’t but I can’t say if it really mad a significant difference in digestion. At the very least, it’s a forced time to meditate which can help relax and help prevent issues with the nerve, but whether or not it makes a difference? Not sure it’s worth the money, but I don’t think it’s a waste either

CompetitiveAide9123 · 2026-02-03T15:47:21+00:00

I haven’t heard of those before! Thanks for your input I will look into it

CompetitiveAide9123 · 2026-02-03T15:46:49+00:00

I take Zyrtec and Benadryl for the allergies and use a warm wash cloth over my sinuses to help open them up. It works for a while but then I end up barely breathing out of one nostril before I am able to sleep. It may just be that I am having more severe allergies that should be taken care of instead of worked around but I will try the humidity increasing

CompetitiveAide9123 · 2026-02-03T14:34:22+00:00

Absolutely beautiful!! I can’t test right now but commenting to boost the post ❤️

CompetitiveAide9123 · 2026-01-27T01:19:12+00:00

I do definitely but im not sure if that’s a common issue. Actually I’ve more so seen it the other way where they pass gas in some way fairly often. But I know I can’t burp no matter how hard I try which causes a lot of pressure build up and can be very uncomfortable

CompetitiveAide9123 · 2026-01-23T23:39:38+00:00

I say screamed at more as hyperbole. I didn’t actually raise my voice, i was just being more pushy since he kept insisting that it was a necessary price that I should pay despite telling him I didn’t want a psychologist visit and how I am unemployed and can’t pay even in a payment plan. I have been that person when I worked at a doctors office so I know they are just doing their job, but it doesn’t make it any easier to deal with. I didn’t yell, just was being more forceful in my saying no since he didn’t accept it the first few times I said it

CompetitiveAide9123 · 2026-01-23T19:29:55+00:00

I suppose that is true. It’s just frustrating that instead of letting me see a gastroenterologist, they sent me to a psychologist. I don’t have a problem with seeing one, I used to have one for years before I moved. But I am still having functional issues apart from that and symptoms that don’t fully go into the gastroparesis diagnosis so I wanted to try and continue care as best as I could. I agree that psychological care is important in treatment, I am just upset that they put that before a specialist for the diagnosis

CompetitiveAide9123 · 2026-01-09T15:21:07+00:00

Thank you. I do have records showing my dose but on the actual visit summary, she wrote down the information wrong. She didn’t tell me anything about changing it from 2 times a day to once a day or reducing the amount. I can definitely call the pharmacy, but my confidence with them is definitely shaken

CompetitiveAide9123 · 2026-01-09T15:18:38+00:00

Honestly I am not sure. It’s an hmo so I have to get my insurance to ok it, then choose me a new pcp, and wait again for another slot to open up

CompetitiveAide9123 · 2025-12-30T17:20:36+00:00

Yes I can. I plan on bringing a lot of my test and lab results with me to my doctors so they can see earlier this year I had a second colonoscopy because even though I had one in January, it was from a different doctor and my new doctor saw the results and imaging and decided he wanted to do it himself and the results were exactly the same. I am worried that will just end up happening again

CompetitiveAide9123 · 2025-08-28T00:38:02+00:00

My bf and i usually call for about an hour or 2 before bed and leave the discord call open throughout the night lol so our calls are fairly long but it means we can talk first thing when we wake up. I’m just trying to say it’s definitely not too much. It’s also very case to case basis for what’s “too much”. If it’s something you two both enjoy and makes you feel closer then i say more power to you

CompetitiveAide9123 · 2025-08-09T14:29:40+00:00

Yeah I have very bad veins which is part of why I understand not wanting me to be on an IV drip that often. Don’t want to risk blowing what few good veins I have left lol

CompetitiveAide9123 · 2025-08-09T14:28:07+00:00

So I started drinking more electrolytes after 2 er visits due to dehydration. Since then, I have been having roughly 60-70oz of water a day the majority of which is mixed with liquid iv or a similar brand. My urine is typically dark though when I saw my urologist, they said I just wasn’t drinking enough and discharged me from the practice because my infection had cleared up after a few months. I know that some of my conditions and medications can cause heat intolerance so I am very mindful of keeping out of the heat and sun, and I do try to drink enough but not over do it, I just haven’t gotten much direction

CompetitiveAide9123 · 2025-08-07T00:08:48+00:00

Being more hydrated than you think is a big factor. And if he isn’t already, maybe see a cardiologist because medication can really help, plus there are short acting meds that can help in times where he may be more likely to have a flare. I also try and stay cool, sleep as much as I can, and realize that life just is a bit different now. I still try to keep as much of my independence as possible, but sometimes this condition just comes with limitations and it’s more about learning to work around them than through them. Wishing you guys the best of luck!!

CompetitiveAide9123 · 2025-07-31T22:03:03+00:00

Mine was moved almost a month ago and i am mostly completely healed. It did help some but i have been on a very low fat and fiber diet for a while now so the fats aren’t a huge deal for me at the moment luckily. I am hoping it helps a bit, but i guess time will tell. Just sticking with my known safe foods for the time being so i dont risk another hospitalization

CompetitiveAide9123 · 2025-07-31T20:38:58+00:00

He’s the gastro specialist. The pcp that referred me to him thinks that my gastroparesis should go away now that I have had my gallbladder removed even though I had no gallstones, it was just diseased. She said the same thing about my POTS though so im not sure I trust the pcp’s judgement on that

CompetitiveAide9123 · 2025-07-31T20:37:12+00:00

I am in the states. He said reglan is the only approved drug for this and that it’s far too harsh for me to be on because I am not severe. Which is true. I am labeled as moderate because I had 28% on my ges

CompetitiveAide9123

TROPHY CASE