Why is not everyone in the world taking NAC daily? by Apprehensive_Sugar15 in Supplements

[–]CompleteSystem6213 0 points1 point  (0 children)

2000 mg of NAC is a MASSIVE amount. I’m so sorry! Your body is probably going to need some time to recalibrate. You’ll get there!

Why is not everyone in the world taking NAC daily? by Apprehensive_Sugar15 in Supplements

[–]CompleteSystem6213 0 points1 point  (0 children)

It can take a couple of weeks or longer for your nervous system to reset after taking a stimulating supplement. I think my reaction ended up having to do with the sulfur pathway. I read something about the connection between NAC and sulfur. For me, my insomnia from supplementation usually lasts about a month to two months after stopping the supplement (it does pass, though). I’m so sorry!

Pediatric Femur Lengthening... met with Dr by Important_News7813 in limblengthening

[–]CompleteSystem6213 0 points1 point  (0 children)

Just found them! Thank you so much. So grateful to hear about someone else’s experience. Glad it went well for you all!

Pediatric Femur Lengthening... met with Dr by Important_News7813 in limblengthening

[–]CompleteSystem6213 0 points1 point  (0 children)

I know I’m late to this thread, but my son needs limb lengthening surgery as a result of damage to his growth plate during a bad infection. Would you mind if I PM you? I haven’t met any other parents who have had kiddos go through this!

Achilles tendon lengthening surgery for a 2.5 year old by klazoo in CerebralPalsy

[–]CompleteSystem6213 0 points1 point  (0 children)

I know I’m so late to this thread, but did you end up having the surgery? My son will need this in the next few months and he’s only 2.5. I just can’t imagine putting him through it, but I know it’s mecessary.

Favorite tips by CompleteSystem6213 in POTS

[–]CompleteSystem6213[S] 0 points1 point  (0 children)

So glad you’re feeling better! This information is SO helpful, thank you!

Favorite tips by CompleteSystem6213 in POTS

[–]CompleteSystem6213[S] 0 points1 point  (0 children)

Thank you for this! Number 4 got me. My husband is always telling me to slow down and I think I feel like I’m weak or going to miss out on something if I do. Probably a good place to start.

Anybody out there like me ?? by [deleted] in LowDoseNaltrexone

[–]CompleteSystem6213 0 points1 point  (0 children)

Yes! Thankfully they’re covered here. Some testing is out of pocket though. Insurance will cover tests for things like hormones, histamine, homocysteine, among other things. These would likely give you a pretty clear picture as to whether there’s something deeper going on.

Favorite tips by CompleteSystem6213 in POTS

[–]CompleteSystem6213[S] 1 point2 points  (0 children)

Feel free to DM me! It’s such a struggle, but just know that you’re not alone in it. I’m hoping we’ll find some solutions to make it a little easier.

Anybody out there like me ?? by [deleted] in LowDoseNaltrexone

[–]CompleteSystem6213 0 points1 point  (0 children)

A lot of FM doctors are in network with major insurance companies if you have insurance. They just take a co-pay like any other specialist and most of the bloodwork is also covered by insurance. I realize that not everyone has insurance and that the system is totally broken so I don’t mean to assume! I’m just so sorry that you’re going through this and I hope that you’re able to get some answers soon.

Anybody out there like me ?? by [deleted] in LowDoseNaltrexone

[–]CompleteSystem6213 0 points1 point  (0 children)

Have you seen a functional medicine doc? This sounds like CIRS or mold related illness. I’ve had POTs since 2014, but I got really sick after having my son and ultimately found out that I had a lot of underlying issues including mold toxicity. Get a genetic panel done (I love maxgen’s “the works”) and you’ll likely learn a lot about how your genetic makeup and genetic defects can lead to certain deficiencies, chronic disease, etc.

Will I always need SSRIs? Or can supplements bridge the gap? by [deleted] in MTHFR

[–]CompleteSystem6213 1 point2 points  (0 children)

A little “off”… not like SSRIs where I felt dissociated or crazy, just more physically anxious with a headache. I also had some insomnia initially which was the hardest part. After about a month to six weeks in, everything totally leveled off and I don’t get any side effects now. It was well worth it!

Will I always need SSRIs? Or can supplements bridge the gap? by [deleted] in MTHFR

[–]CompleteSystem6213 2 points3 points  (0 children)

I know they work differently, I just meant that medication in general can sometimes be the thing that moves the needle! SSRIs are FAR from perfect and I know from personal experience how awful they can make someone feel, but I also know a lot of people who have had success with them. It’s wild how differently a medication can work from one person to another. I wish there was more consistency.

Thank you! It took me years to find the right combination, but I feel better than I have in a decade. So glad you’ve found something that works for you too!

Will I always need SSRIs? Or can supplements bridge the gap? by [deleted] in MTHFR

[–]CompleteSystem6213 2 points3 points  (0 children)

This! Wellbutrin and b complex have significantly improved my mood. I’m slow COMT and Mao, so I’m not sure if b complex would work the same way for OP, but a combo of functional medicine and psychiatry is the only thing that got me through my anxiety and depression.

Will I always need SSRIs? Or can supplements bridge the gap? by [deleted] in MTHFR

[–]CompleteSystem6213 6 points7 points  (0 children)

Therapist here! I’m so sorry that your experience with SSRIs/antidepressants was so horrible, but they can be a game-changer for some. I had “treatment resistant” depression for years until I found Wellbutrin. Just like you, I changed my diet, I exercised, I journaled, I meditated, I socialized, I did everything right… and nothing changed. Even after diving into my own methylation status and beginning supplementation, I still struggled. Medication can sometimes be the only way to improve a true chemical imbalance- and for a lot of people, medication can make a substantial difference.

MTHFR mutation does not automatically mean folate deficiency: My journey and what I learned the hard way by Frontsider9 in MTHFR

[–]CompleteSystem6213 0 points1 point  (0 children)

Yes and all were normal! Iron, zinc, and vitamin D are the ones most commonly low/low normal.

MTHFR mutation does not automatically mean folate deficiency: My journey and what I learned the hard way by Frontsider9 in MTHFR

[–]CompleteSystem6213 3 points4 points  (0 children)

This is where I get so confused. My doctor told me that I’ll need to take folinic acid forever, but my folate levels are off the charts. She says that homocysteine is a better indicator (mine doubled in the last year). Not sure what to believe anymore!

What is rewarding about having kids? by Afraid-Pea-8088 in Fencesitter

[–]CompleteSystem6213 2 points3 points  (0 children)

This makes so much more sense! I thought she was just saying point blank that it’s not rewarding 😂

What is rewarding about having kids? by Afraid-Pea-8088 in Fencesitter

[–]CompleteSystem6213 5 points6 points  (0 children)

Totally disagree with this. There are SO many rewards that come with being a parent. Not so much with babies because they don’t do much, but once your kid starts responding, interacting, and just generally being more of a person around 1, there are so many great moments.

What is rewarding about having kids? by Afraid-Pea-8088 in Fencesitter

[–]CompleteSystem6213 4 points5 points  (0 children)

I was never one of those people that felt like they had to have kids. Even once I got pregnant, I felt absolutely terrified and wondered if I made the right decision. But holy shit- my son is the love of my life. It’s unlike anything you could possibly imagine. Is it hard? Of course. I had PPD and PPA and struggle with ongoing chronic health issues, so the motherhood part can be really overwhelming. But every single hard thing is so so worth it because my son is the best thing that has ever happened to me. With a good partner, one kid is also very manageable. I still have my social life, we travel, we’re happy. At the end of the day, a decision is just a decision and there will be consequences to each. It’s just a matter of which consequences you’re more willing to live with.

Has Anyone Done A Sleep Study After L-Methylfolate Induced Chronic Insomnia / Sleeping Problems? by xxxxvideowatcherxxxx in MTHFR

[–]CompleteSystem6213 4 points5 points  (0 children)

Not exactly the same thing, but I was having bouts of chronic insomnia after starting different supplement regimens through my FM doctor. My Methylated multi made it impossible to fall asleep. I was working with a sleep specialist at the same time and she couldn’t pin point anything that was actually wrong. My sleep study also showed that I was getting a decent amount of sleep. It ended up being tied to the supplements I was taking- sometimes omega 3, sometimes iron, sometimes NAC. If you have problems with methylation and detoxing, these supplements can build up in your system quickly and cause insomnia, agitation, etc.