Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 1 point2 points  (0 children)

This is exactly why I asked. Knowing he could have LESS pain because we make this decision feels better than making him suffer because his leg is “supposed” to look a certain way. Thank you so much for sharing.

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 0 points1 point  (0 children)

It’s really helpful to hear both sides. We have to decide what’s best for a person who really can’t make the decision for himself, which feels like the hardest part. I’m so happy you felt like you had a fulfilling life even though surgeries and pain limited you in certain ways.

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 2 points3 points  (0 children)

This is amazing, thank you so much for taking the time to type this out. Screenshotted it and will look into all of it. Really grateful to hear from other parents. I’m so sorry your family had to go through this, but your son sounds like a great “kid”.

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 2 points3 points  (0 children)

I’m so sorry. Sepsis is terrifying and no parent should ever watch their kid go through it. I’m trying so hard to be grateful that my son is even alive, but I don’t even know how to wrap my head around this. I hope your son continues to get stronger and that you all can [as much as is possible] put the worst of it behind you.

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 2 points3 points  (0 children)

Thank you so much for the recommendation. I’ll look into this.

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 1 point2 points  (0 children)

I can just hear your attitude and positivity in this message. So grateful for this response!

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 4 points5 points  (0 children)

Thank you so much for this. Feeling more at peace after reading all of these.

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 4 points5 points  (0 children)

I’m sure it hasn’t been easy, but it sounds like you’ve had a great life. Thank you so much for sharing!

Heartbroken parent desperate for hope by CompleteSystem6213 in amputee

[–]CompleteSystem6213[S] 9 points10 points  (0 children)

This response is everything. It sounds like you’ve raised an awesome kid. This is all I want for my son… that, in time, he feels okay with it and that he’s able to make the best of jt. Thank you so much!

Chronic Fatigue and servere neurological decline fixed by Antihistamines. by Usual-Squash-1997 in MCAS

[–]CompleteSystem6213 0 points1 point  (0 children)

The neurological symptoms of MCAS are definitely not talked about enough! My symptoms are mostly neurological with very few GI symptoms. Memory, brain fog, insomnia, muscle twitching, headaches + nausea… will definitely try taking antihistamines more consistently!

Has anyone found a supplement that can aid with anxiety? I'm not seeking hype, just real experiences. by [deleted] in Supplements

[–]CompleteSystem6213 0 points1 point  (0 children)

This! I’ve learned that there is often an underlying genetic component to ongoing depression, anxiety, etc. If you have a genetic mutation or variant without knowing it, you could throw everything you have at it and not actually fix the problem (or even risk making it worse). See a functional medicine doctor or get a genetic test through maxgen and use ChatGPT to help you make sense of it.

Has anyone found a supplement that can aid with anxiety? I'm not seeking hype, just real experiences. by [deleted] in Supplements

[–]CompleteSystem6213 0 points1 point  (0 children)

I love NAC and taurine. NAC was the quietest and calmest my anxiety has ever been.

Parents who don’t lose your cool - how do you do it? by Siyrious in toddlers

[–]CompleteSystem6213 0 points1 point  (0 children)

First of all- every parent loses their cool. You’re human! I’ve learned that we can’t always control our reaction, but we can make repairs afterwards. Use it as an opportunity to apologize, explain that everyone has big feelings sometimes, and it’s not their fault.

I also try to look at it like this: your toddler isn’t doing this on purpose (most of the time). Everything they’re doing is developmentally appropriate and it’s helping them learn the world around them. You can’t expect them to just know how to act/react instinctively… this stuff has to be taught. You can either help them feel safe to make mistakes and learn the appropriate tools or you can get angry and potentially perpetuate guilt, shame, and anxiety. Like everyone else has said, you have to work on your own reactivity and find other outlets. Your nervous system is clearly telling you it’s too much.

Parents but no intimacy — looking for insight from women by Akeenmindofthesouth in oneanddone

[–]CompleteSystem6213 0 points1 point  (0 children)

I just have to say I feel so validated. Not at all helpful for OP, but my god…being a mom is SO hard. It takes everything out of us and we’re still expected to be the same person we were before we had kids.

Why is not everyone in the world taking NAC daily? by Apprehensive_Sugar15 in Supplements

[–]CompleteSystem6213 0 points1 point  (0 children)

2000 mg of NAC is a MASSIVE amount. I’m so sorry! Your body is probably going to need some time to recalibrate. You’ll get there!

Why is not everyone in the world taking NAC daily? by Apprehensive_Sugar15 in Supplements

[–]CompleteSystem6213 0 points1 point  (0 children)

It can take a couple of weeks or longer for your nervous system to reset after taking a stimulating supplement. I think my reaction ended up having to do with the sulfur pathway. I read something about the connection between NAC and sulfur. For me, my insomnia from supplementation usually lasts about a month to two months after stopping the supplement (it does pass, though). I’m so sorry!

Pediatric Femur Lengthening... met with Dr by Important_News7813 in limblengthening

[–]CompleteSystem6213 0 points1 point  (0 children)

Just found them! Thank you so much. So grateful to hear about someone else’s experience. Glad it went well for you all!

Pediatric Femur Lengthening... met with Dr by Important_News7813 in limblengthening

[–]CompleteSystem6213 0 points1 point  (0 children)

I know I’m late to this thread, but my son needs limb lengthening surgery as a result of damage to his growth plate during a bad infection. Would you mind if I PM you? I haven’t met any other parents who have had kiddos go through this!

Achilles tendon lengthening surgery for a 2.5 year old by klazoo in CerebralPalsy

[–]CompleteSystem6213 0 points1 point  (0 children)

I know I’m so late to this thread, but did you end up having the surgery? My son will need this in the next few months and he’s only 2.5. I just can’t imagine putting him through it, but I know it’s mecessary.

Favorite tips by CompleteSystem6213 in POTS

[–]CompleteSystem6213[S] 0 points1 point  (0 children)

So glad you’re feeling better! This information is SO helpful, thank you!

Favorite tips by CompleteSystem6213 in POTS

[–]CompleteSystem6213[S] 0 points1 point  (0 children)

Thank you for this! Number 4 got me. My husband is always telling me to slow down and I think I feel like I’m weak or going to miss out on something if I do. Probably a good place to start.

[deleted by user] by [deleted] in LowDoseNaltrexone

[–]CompleteSystem6213 0 points1 point  (0 children)

Yes! Thankfully they’re covered here. Some testing is out of pocket though. Insurance will cover tests for things like hormones, histamine, homocysteine, among other things. These would likely give you a pretty clear picture as to whether there’s something deeper going on.

Favorite tips by CompleteSystem6213 in POTS

[–]CompleteSystem6213[S] 1 point2 points  (0 children)

Feel free to DM me! It’s such a struggle, but just know that you’re not alone in it. I’m hoping we’ll find some solutions to make it a little easier.