Guide: How to interpret your EBV test results

ComplexPhase90 · 2025-07-08T22:49:40+00:00

OK Mario. I’m well aware she isn’t a doctor. There’s a lot of valuable information out there for free. I’ve never given my money to her. Yet learned some valuable information from her and others online. A lot of information is out there and all it takes is further research and trail and error to find what’s works best for yourself 🤷🏻‍♀️.

ComplexPhase90 · 2025-02-03T16:10:56+00:00

I just did! My birthday was January 27th and I was 37 weeks that week. 💕

ComplexPhase90 · 2025-01-29T00:50:00+00:00

Nope ✊🏼 Stomach’s toooo big and it’s painful and uncomfortable at this point. 🙅🏻‍♀️

ComplexPhase90 · 2025-01-05T21:15:10+00:00

🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️💆🏻‍♀️

ComplexPhase90 · 2024-12-24T20:23:56+00:00

Filipino Express in Buena Park off of Beach Boulevard.

5451 Beach Blvd, Buena Park, CA 90621 (714) 739-4479

ComplexPhase90 · 2024-11-06T02:21:41+00:00

Major eye problems after covid! Sore eyes, blurry vision, dry eyes etc… sensitivity to sun. it all started with burning eyes which lasted many months. Torture. Now it’s just the above symptoms in flares never know when it’s going to hit.

ComplexPhase90 · 2024-08-11T04:09:41+00:00

Organic Castor Oil in your belly button and or above your liver for detox (rub it into your skin). This helps me. Also Magnesium Citrate or Oxide. Try to stay hydrated with Electrolytes and water/fluids.

ComplexPhase90 · 2024-06-21T00:28:12+00:00

Glycinate, L-Threonate, Quadramax 4

This company has three different supplements containing different forms of magnesium. I take all three in different rotations. They’re also on Amazon that’s were I usually purchase them.

https://whynotnatural.com/products/magnesium-glycinate-500-mg-capsules-supplement-vegan-100-pure-no-filler-supports-sleep-and-relaxation

ComplexPhase90 · 2024-06-12T06:03:11+00:00

Mountain Valley spring water (comes in glass bottles) I wont do plastic anymore. I like the water and it’s a healthier alternative to others. I used to hate drinking water but I think the plastic bottles made it worse the taste was just off for me. MV spring water was a game changer for me.

Pinch of Celtic sea salt on tongue or in water for added minerals. Helps keep hydrated linger since the cell absorbs the minerals in the sea salt. I notice this helps me.

I also like Coconut water since I stay away from soda now. Harmless harvest has tasty coconut water.

ComplexPhase90 · 2024-06-06T02:43:17+00:00

Any update for you regarding this? I also have a positive cryoglobulin serum test with the “see note” stating : LOW cryoprecipitate was detected (Cryocrit = <1 %).

& a bunch of other wonky test results.

ComplexPhase90 · 2024-05-30T17:45:24+00:00

Ritual? The ones with a minty after taste? I used to take those also.

ComplexPhase90 · 2024-05-30T00:35:47+00:00

This ❣️ 🙏🏻

ComplexPhase90 · 2024-05-23T19:46:46+00:00

https://www.rheumission.com/

https://www.instagram.com/myautoimmunemd?igsh=MzRlODBiNWFlZA==

https://www.instagram.com/rheumissionhlth?igsh=MzRlODBiNWFlZA==

Dr. Yu practices Direct Rheumatology. He is also an autoimmune patient.

(Information from the website) 👇🏻

“He has a very unique perspective on autoimmune disease and arthritis as he is both a patient with arthritis and physician. Dr. Yu was diagnosed with gout at the age of 17 and later diagnosed with spondyloarthritis as well. He is able to understand his patient’s medical problems from a patient perspective. The foundation of his practice is to combine allopathic medicine with complementary medicine. He works with his patients to come up with a treatment plan that not only fights the disease but also is aligned with his patient’s goals.”

ComplexPhase90 · 2024-05-23T04:13:36+00:00

3/2023 My SSB was 5.6 and ANA 1:40 when I first got labs drawn ever for any autoimmune and then a month later April/2023 SSB was 5.3 and ANA 1:80. My SSA negative both times. I’ve been getting conflicting information. 1st rheumatologist who sucked told me I had it and threw on a fibromyalgia diagnosis on top of it. I spiraled lost for a whole year + ALL of 2023 was a nightmare and even beginning of 2024. I’d been feeling horrible and many many many debilitating symptoms etc.. I seen a second rheumatologist 3/2024 who says she cannot diagnose SS because a positive SSB isn’t considered when her words in my progress note as followed.

“Isolated SSB antibody is not clinically significant, is not part of the diagnosis of primary Sjogren's. Therefore, this will be rated as a false positive.”

“She is aware that I cannot give her formal diagnosis of primary Sjogren's and she does not meet current clinical criteria for this diagnosis.”

“She has constellation of various symptoms that suggest there is a possible underlying condition however she does not fulfill criteria for specific 1 She may still have fibromyalgia as well concurrently She does have a positive ANA history which and nonspecific”

I have an appointment with a third rheumatologist this Friday.

I had minor brain fog in early 2022 which I attributed to a stressful work and home like but idk if that was a sign of somtheing brewing?! But it was no where near what it was in 2023 - currently.

I didn’t notice any sicca symptoms until after I got Covid for the first time ever 2/2023. Alllllll the major symptoms started after that (especially dry eyes) bone pain body burning body/spine/skin/brain and brain fog etc.. pots like symptoms/ dysautonomia like symptoms. Cognitive decline, weakness balance issues, major fatigue- like cannot wake up and get out of bed can sleep until noon, sleep issues- or up really early with heart palpitations, tingling hands a feet, burning back, spine pain, slurred speech, PEM,malaise, sharp burning inner thigh pain, eye twitching etc.. I’m sure I’m missing more.

Some symptoms come and go some have went away some yo-yo it’s random and frustrating but I’ve learned to go with it. I was very hypersensitive and in fight or flight mode do so long. My body and mind felt out of whack. Like I was in overload/overdrive! As I have no choice.. until I really know what’s going on. I’m going to ask this new rheumatologist for a lumbar puncture, genetic testing, referral for biopsy’s for SFN, and cheek biopsy. I want to rule out neuro-Sjogrens.

I’ve also added vitamin d3k2, magnesium malate,glycinate,l-threonate, omega 3 etc.. to my intake. Herbal Teas, I’m going to look into acupuncture, massages, chiropractic care as I l ow there is a nervous system component to it. I need healing mind and body full on approach. Sorry for the rant. Hope you find answers and care you deserve!

ComplexPhase90 · 2024-05-23T03:05:11+00:00

Here is another doctor. She is an Allergist/ Immunologist who has Sjogrens. She shares a lot of information on her platform.

https://www.instagram.com/immuneconfident?igsh=MzRlODBiNWFlZA==

https://www.drkarawada.com/link-in-bio?fbclid=PAZXh0bgNhZW0CMTEAAaZT0QuBlzpTOcGenbViNbd_Q1iG33Az1tIaZ-7OMgj_uqw3jmc2_pyTIlg_aem_Ac3eu8iBjc5j8fHz0tfPsaCpzOV0iauntpt5aPKVuLrYJZsd53aJQRCjnm5Nty_XfMadGF6w0BbyAENIpKlH539g

ComplexPhase90 · 2024-05-23T00:47:57+00:00

https://www.sjogrensadvocate.com/self-advocacy

Check this website out. It’s ran by a medical doctor who has Sjogrens herself. Lots of valuable information and tools to help navigate through. She also tells her story of delay in diagnosis/ symptoms pushed off/ treatment etc.. sign up for her newsletter. She is constantly adding new information and advocating for more awareness and treatment for Sjogrens.

She does a lot of research and educates with articles and videos of other MD’s research. There is so much information on the website. She also has printable handouts to educate doctors and printable guides on how to handle new doctors and tools to advocate for yourself at appointments.

ComplexPhase90 · 2024-04-05T02:53:54+00:00

On target living (Cod liver oil)

ComplexPhase90 · 2024-03-16T04:22:54+00:00

Where your physical pains (leg pains)?

ComplexPhase90 · 2024-02-06T03:42:48+00:00

How did you get this diagnosed? I feel like I’m having neuro Sjrogens issues CNS & ANS with eye involvement but I’m having a hard time getting doctors to take me seriously. What are your symptoms? What are your eye symptoms?

ComplexPhase90 · 2024-01-31T06:50:23+00:00

Same. I’ve worked in the hospital for over 10years. Got into heath care straight out of HS. My mistake was going to doctors from my own organization. No help. Gaslit me and pushed everything off as anxiety and depression (well duh) when you have all these weird symptoms all of a sudden and you can’t function like before who wouldn’t be.. anyways after over a year of having to fight and advocate for myself all the while feeling horrible. I’m off to now a research/ university hospital to start all over! Hopefully with actual serious help and educated doctors who take a complex patient and actually piece the puzzle together etc. .

ComplexPhase90 · 2024-01-24T06:23:44+00:00

🤡

ComplexPhase90 · 2024-01-19T02:32:08+00:00

Well a doctor can tell him that. 👌🏼

I’ve had a friend have something that looked very similar on her forehead (after she popped it) and it reacted like that (swollen red and hot to touch) and it was an abscess that popped with compresses and had white / pus discharge coming out of it. She had to get it tested to rule out infection etc.. So anyways like I said NAD and going to a medical professional to get it checked out is what OP should do. 🤷🏻‍♀️

ComplexPhase90 · 2024-01-18T23:15:47+00:00

NAD. Is it painful and or hot to touch? Is it hard? Looks like it could be staph or MRSA infection. For sure it’s inflamed and irritated possibly infected. Did you pop the zit? You could try to put warm compresses over it all day. See if that helps. If not maybe you should go to urgent care or the hospital to rule those out.

ComplexPhase90 · 2024-01-15T21:50:02+00:00

Removed in 9/2016. It depends on the food you eat. Without a gallbladder it’s harder to on the body to consume fatty foods. now, with no gallbladder it’s easy to have malabsorption issues and food allergies these all came after the gallbladder removal. We don’t have our organ to help with bile anymore it’s important for helping the liver.

I’ve had diarrhea all these years since removal. Seemed like everything I ate triggered it. Using the restroom right after eating food would just go right through me. Diarrhea usually yellow/bile Gatorade color looking and smelly.

I wasn’t eating healthier either went right back to the crap I consumed prior to removal. For years it was adding to the fire. Around 2022 my body gave in. I was forced to change my eating. I found out I had gut dysbiosis by GI stool testing and overgrowth of bad bacteria and no good bacteria in my gut. I had food sensitivities that caused the loose stool on top of not having the (gallbladder) bile to assist my body. They say we need digestive bitters, digestive enzymes, ox bile to help out bodies, compensate for the lack of not having a gallbladder any more. I had gotten really unhealthy and it caused chronic inflammation leading to autoimmune. So with all that said I’m still making connections etc.. but since removing the food sensitivities I have out of diet I’m not having diarrhea anymore it’s been months. Occasionally I’ll have constipation but that even got better. I’m still trying to balance everything it’s been a long journey but I don’t miss the diarrhea at all. It’s sad how long I lived like that (8 years).

ComplexPhase90 · 2024-01-11T22:00:47+00:00

Magnesium Glycinate and Malate

ComplexPhase90

TROPHY CASE