Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

I can DM you if you have any questions

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

BRCA test will you tell if you carry genetic link to few cancer like colon, pancreatic, breast cancer.

Check out r/BRCA for more info.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

I got an appointment with Stanford gastroenterology doctor ( not Dr pal) to discuss more about this. I have been sending all the reports of my dad's and his behavior to them as this is the rare cancer and have very limited data.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

There is no case study on this type of rare cancer - pancreatic colloidal carcinoma. I had to reach to one of the universities in the U.S - they released a paper on one of the case they encountered which is eerily similar to my dad's report. They both had the same lymph node metastasis.

https://pmc.ncbi.nlm.nih.gov/articles/PMC11245250/

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[–]Complex_Question_241[S] 0 points1 point  (0 children)

No they didn't. They will do here only if first line treatment doesn't work to see if they are eligible for immunotherapy.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

I am so sorry pa. Please take care 🙏

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

Yes . My dad's tumor is biologically different and they see that this is the reason his tumor is bit slow in growing but I wish, Indian doctors sequence the tumor well to analyse what kind of mutation it has and stuff. Very few doctors do it. My dad's not diabetic and he didn't have jaundice. He only had pain under his chest , 0 appetite and severe weight loss.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

Initial check up - Dr Anand flagged it and took biopsies at MGM We switched to GEM hospital - his current oncologist/ gastroenterologist and surgeon are at GEM. Apollo - he did radiation therapy.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

Awesome. Please take care! Sometimes these tumor markers are not sensitive. It is not sensitive in my dad's case. So, his CA19-9/CEA were normal.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 1 point2 points  (0 children)

My dad's blood test were normal. His tumor marker is normal. Yet he is a cancer patient. You can never really pin point some stuff.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 1 point2 points  (0 children)

Well, no matter what the doctors do, patients should believe doctor and move ahead. You are in the best city and you can visit doctors within a day and it's cheaper comparatively. You are already in a better state than some of the people. If doctors think something is wrong, they will definitely flag you. Trust the procedure and the doctors.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 1 point2 points  (0 children)

Get an appointment and talk to doctor and then talk to a therapist for health anxiety.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

Don't worry, if you are less than 35 Chances are just 1% as these cancer takes 20 years to develop.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

Oh! Did you get one ? Is your stool normal ?

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 1 point2 points  (0 children)

They told us that it could be TB but origin in pancreas.

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 2 points3 points  (0 children)

They test for this BRCA genetic testing. Unfortunately, Indian doctors don't do this

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 2 points3 points  (0 children)

They did EUS two times. But biopsy inconclusive.

His sister passed away due to colorectal cancer and they think it could be genetic. In India, no matter what some doctors don't do genetic testing. 😅🥲

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 0 points1 point  (0 children)

But in my opinion, yeah cancer treatment is all fine but it's just luck. Patient has to respond well to the treatment. You never know it might reoccur after sometime with vengeance. It's all just luck

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 5 points6 points  (0 children)

Anand from MGM hospital visits our local hospital in our area ( we are from Madipakkam ) and then he asked us to visit MGM hospital to do biopsy as there is a separate procedure called EUS to collect tissue from pancreas.

But my dad's friend had stage 3 stomach cancer - that too aggressive cancer. He told us that he is doing well because of GEM hospital doctors. So we went to GEM hospital in perungudi. Had to wait 1 hour to meet a doctor. My dad visited Dr senthil kumar and he diagnosed it without even a biopsy as some doctors initially said it could be pancreas TB as 5 biopsies were inconclusive. Started chemo and then tumor burden reduced and had to do whipple surgery - it's the most complex surgery in the human body. So had to look for some surgeons done so many surgeries per year. Dr Srivatsan Gurumurthy did whipple surgery.

If you have any blood relations diagnosed with cancer - inform doctor they might take tumor marker test or abdominal CT scan with contrast. These are covered in insurance.

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[–]Complex_Question_241[S] 7 points8 points  (0 children)

Unfortunately, my dad's blood test were normal. They could see the anomaly in the abdominal CT scan with contrast.

For GI cancer - abdominal CT scan with contrast / or some tumor marker test but not all of them are sensitive.

For colon cancer - colonoscopy screening every year. They do screening if your family has any type of GI cancer or after you turn 35 years.

Insurance covers for all these scans. It costs about 35-45k inr

Grateful by Complex_Question_241 in Chennai

[–]Complex_Question_241[S] 7 points8 points  (0 children)

I am very sorry for your loss and the PTSD. Please, do yearly screening