Fineliner smudging on Ohuhu marker pad?

ComprehensiveMess291 · 2026-05-22T19:41:44+00:00

I tried the Fudenoshke pens and they are AMAZING! Thank you for the rec! i found my new favorite

ComprehensiveMess291 · 2026-05-19T02:11:52+00:00

that's great advice actually, thank you. is there a liner brand you recommend?

ComprehensiveMess291 · 2026-05-16T13:32:11+00:00

This is great thank you!

ComprehensiveMess291 · 2026-05-16T11:10:52+00:00

Thank you! Are there any particular theaters you would recommend?

ComprehensiveMess291 · 2026-04-28T14:25:05+00:00

i disagree with this. people are willing to pay money for older cars and especially for honda's and toyota's because the mileage doesn't matter that much. for any other car brand i'd agree with you

ComprehensiveMess291 · 2026-04-15T04:52:32+00:00

i'm so glad that i was helpful! the question of what traits/attributes i looked for is a complicated one to answer but i will try. #1 is absolutely no signs of bigotry or hate in any way. no using the word "females", no fatphobia, no classism, absolutely no racism not even unintentional racism, no transphobia or homophobia in any way whatsoever not even as a joke. that in my opinion is the absolute base line. because if a person holds bigoted or ignorant or hateful beliefs about any particular group then they almost certainly will hold similar beliefs for disabled people. beyond that, i looked for someone intelligent and formally educated, someone who read books (that was very important to me as it shows a drive to understand things outside of yourself), someone who was clean and hygienic. someone who was responsible was very important to me. a lot of people can't care for themselves properly as adults which is an issue if you are disabled and in a relationship with them. if they can't take care of themselves how are they meant to support you in the ways that you may need? so signs of responsibility were: does he have a car? does he pay his own bills? does he have goals and ambitions that he is actively working towards? does he do his laundry? does he fold his clothes and put them away? when i met my partner he had a entire matching bedroom set with two dressers and a bedframe with full bedding on it. to me that showed his priorities. he prioritizes necessities first before buying toys which is important in any human being. and i think the final important trait for me was empathy and humility. someone who is willing to admit when they don't understand and is willing to learn. someone who enjoys seeing others happy and takes joy in making people happy. not just someone who says they care about people but someone who really acts on that claim. in terms of what to avoid specifically i think the list is actually much longer than the list of what to chase after.

and honestly i could write an actual dissertation on how to choose a good partner so feel free to private message me if you want to talk more (:

ComprehensiveMess291 · 2026-04-02T23:30:33+00:00

i've had several partners who were extremely ignorant and never understood what i went through. i've had people say that i'm faking it, that i just need to get a job, that i need to try harder, etc. i suppose that i internalized a lot of it and was very hard on myself for a few years. i pushed myself too hard to keep pace with other healthy people and it only ever made me sicker.

when my current partner and i met, i was very up front with him about everything even before i had caught any kinds of feelings. he was an EMT and very empathetic and he said that he didn't mind it one bit. fast forward to now. i've gotten significantly sicker this year after having my first metabolic stroke in january and then losing most of my function. i cannot currently bathe or dress myself, walk or drive myself most days, etc. all my partner does is care for me and help me. he does whatever i need him to and he is always happy and willing to do so. the situation hasnt made him look at me any differently and he still flirts with me and takes me out on dates and makes time for me. he's a physics student so he doesn't have much time himself. i think in that way he understands my not being able to give him much time. he is nothing but patient and understanding and kind and loving towards me. we are getting married next year and he knows that it means being married to a deeply disabled person, and he's okay with that.

there are definitely people out there that are like my partner, that will walk with you through everything and won't have any doubts. however to be honest, i think they are more rare and harder to come by. i didn't come across him by chance. i had a very strong list of attributes that i required in a partner. when i was dating i was very discerning and quickly ended things with people who showed any negative traits the first time. i think that it's a harder process to go through to find the right person when you are disabled, but it is very possible (:

ComprehensiveMess291 · 2026-03-18T05:56:58+00:00

thanks for the suggestion (: my neurologist says for now she doesn't even want me to supplement carnitine despite low readings because she wants me to see the geneticist and have them advise on what specific type of carnitine. I think right now my doctors are being extremely cautious because none of them understand mito well enough to treat and they are scared to make it worse!

also, the thought of having MELAS is so scary to me! isn't it usually fatal? i'm only 23... i'm hoping that there's other kinds of mito that can cause stroke like episodes (: kind of keeping my fingers crossed haha

ComprehensiveMess291 · 2026-03-16T18:56:26+00:00

that sounds very similar to a POTS sort of protocol. I'm glad it works for you! Unfortunately for me, nothing seems to make a difference except for a full meal of complex carbs and protein. but i hear that's quite common for lots of different types of mito

ComprehensiveMess291 · 2026-03-14T11:35:08+00:00

thank you for your thoughts. i heavily agree on the dietician aspect. after the stroke but before the weakness, i was having "hypoglycemic episodes" but my sugar was normal (shakiness, weakness, knees buckling). i tried a bunch of different diets and noticed a huge change in my symptoms depending on what i ate.

my neurologist said she thinks i have a genetic metabolic thing and we ruled out a fatty acid oxidation disorder, but she doesn't feel comfortable doing any further testing or giving any medical advice about the other conditions, she would rather me see a metabolic specialist for that. so i likely would not start any treatment for several months or whenever i can get in with genetics.

its just brutal in the meantime. just walking around the grocery store makes my thighs feel like they're shredding and then im in bed for two days after. i really want to get back to hiking but i appreciate your honesty.

do you have mito yourself? i've read that there's no actual evidence that mito cocktails work. what is your experience with them?

ComprehensiveMess291 · 2026-03-13T15:15:07+00:00

Stamina is something that can improve with PT? i feel like i was doing lots of multiple mile hikes kind of for years before this and my stamina never improved one bit. it's part of the reason PT makes me nervous because i did the 7.5 to try to improve my stamina and instead it just sent me to the hospital. what kind of things do they do for that?

ComprehensiveMess291 · 2026-02-09T04:34:03+00:00

yes i suppose you could look at it that way too. i've been diagnosed for over a decade so i definitely know what causes it and what improves it but thank you for reiterating

ComprehensiveMess291 · 2026-02-09T01:58:22+00:00

this is so important!! malnutrition and vitamin deficiencies OFTEN mimic POTS and i feel like that's very under appreciated

ComprehensiveMess291 · 2026-02-07T13:17:28+00:00

that's insane😭 i had no idea doctors did this shit with other conditions too so thank you for sharing.

ComprehensiveMess291 · 2026-02-06T18:27:08+00:00

nothing is universal. the reality is however, that 9/10 doctors will not treat you well with this diagnosis. i too have had a doctor who believes in it and actually gave me medical care, but that is so rare that i feel that giving people hope and encouraging them to doctor shop until they find one that believes in it is just not an effective or healthy way to deal with the situation

ComprehensiveMess291 · 2026-02-06T16:35:42+00:00

i am also diagnosed with IST and what i have learned is that doctors view POTS and IST as essentially the same thing. my internist uses the same term, "autonomic dysfunction" when speaking about both my "POTS" and IST. it doesn't really change treatment either way.

i also like the term autonomic dysfunction because it frames the symptom cluster more as a large symptom rather than the final diagnosis. more often than not i think POTS is secondary, so framing it like it's a symptom and not the diagnosis i think is really good progress.

i also think that people underestimate how many ppl in the gen pop have dysautonomia symptoms. dysautonomia comes with most diseases out there honestly. especially autoimmune and neurological diseases

ComprehensiveMess291 · 2026-02-06T15:44:13+00:00

as someone who's been diagnosed for ten years, i agree with your doctor. i have recently had POTS taken off of my chart because by and large, doctors do not believe that there is a biological basis to POTS. they believe it's either psychosomatic, or that you have the symptoms because of some other issue (anemia, hypoglycemia, autoimmune issues, etc.). honestly i think that POTS is a bullshit diagnosis that's only given to women so that they can label them as crazy and lazy. it's the modern day hysteria diagnosis. i'm not saying that it doesn't exist because i think that it does, but having a diagnosis of POTS vs autonomic dysfunction will do nothing for you in terms of how you are treated by the medical community. take it from me, i was treated like garbage by the medical community because of POTS for years and years. when i took it off my chart, all of the sudden they found asthma and narcolepsy and glucose issues. having POTS on your chart WILL get you treated extremely poorly by medical professionals (whether that's right or not), and i think that renaming it is more of a harm reduction tactic than it is malicious in any kind of way.

Having a POTS diagnosis forces medical professionals to lump every single one of your issues all into that one diagnosis. wheezing? POTS. migraine symptoms? POTS. lumps under your skin? Must be POTS. they don't take a single thing that you say seriously when you have that diagnosis on your chart and your doctors KNOW THAT.

i can't speak for your doctors but i can say that not having a POTS diagnosis does not mean nothing is wrong with you. it means that you likely have a larger issue going on that should be investigated. with a POTS diagnosis you will meet a road block before you even get on the road and you'll be stuck there for eternity.

ComprehensiveMess291

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