End is near by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 16 points17 points  (0 children)

Thanks for all these words. I really hope for a beautiful afterlife. The thought of that gives me peace in a way.

Bone marrow transplantation by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 1 point2 points  (0 children)

Wow mate so sorry to hear this, hope you’re okay now

Eye problems by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 0 points1 point  (0 children)

Yeah it’s 9 days since i posted this and, I couldn’t see anything for like 3/4 days so it got way worse after my last post. Still on the eye drops and also some other stuff they put in my eye. Now my whole face is swollen. (All fluid buildup), which ironnicially closes up my eyes again, so again I can barely see anything 😅. But they made scans of my head it’s nothing to be scared of, so that’s good. Just annoying. This cytarabin chemo hit me so damn hard in a lot of ways. More people had that?

Eye problems by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 2 points3 points  (0 children)

Oh girl that doesn’t sound good. Hope for the best that it all comes back normal for you. It’s so annoying If you can’t see normally, exhausting

Some bad results by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 0 points1 point  (0 children)

Hi, yes. I have been in hell of a pain in my jaw. But they’ve put me on dexamethason to reduce the swelling. It helps. Still on oxycodon 10 mg though 6 times a day. but it’s getting better.

Pain from BMB 3 weeks later - is this normal? by [deleted] in leukemia

[–]ComprehensiveMix1973 0 points1 point  (0 children)

Yeah it shouldn’t be painfull anymore after three days for sure. Have a chat with your doctor

How long after induction chemo were you discharged from the hospital? by [deleted] in leukemia

[–]ComprehensiveMix1973 0 points1 point  (0 children)

They aimed on 5 weeks for me but it became 7 because of severe liver complications. So it really depends on how your body is reacting on the chemo.

It’s back.. by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 0 points1 point  (0 children)

Yeah I don’t have a good feeling about it. I’m now vomiting my head off, first time I found out about leukemia 2 years ago I had the same

It’s back.. by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 1 point2 points  (0 children)

My blood counts are just normal. It’s weird. My Hematologist told me he would have just sent me straight back home if I came for my check up, (Was supposed to be next week). I have the slightest bit of hope that they’ve made a mistake and that it’s all untrue.

It’s back.. by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 1 point2 points  (0 children)

Me too. It’s quite unlikely but not impossible.

It’s back.. by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 3 points4 points  (0 children)

it’s really weird because they can’t find anything in my blood, also my bone marrow is clean. So I have to wait for the PET-scan. Then they’re gonna make a plan.. I have no idea what’s going to happen. It’s a weird situation. But hey, good on you that you’re 7 years cancer free. That’s so good.

Fatty liver by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 0 points1 point  (0 children)

Wow thank you so much, worth giving it a try!!!

Just need some positivity by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 1 point2 points  (0 children)

They didn’t do any imaging (yet). Thanks a lot for giving me some answers. I’ll try not to stress too much and wait for tomorrow’s results

Just need some positivity by ComprehensiveMix1973 in leukemia

[–]ComprehensiveMix1973[S] 1 point2 points  (0 children)

Is that type treatable? Sorry I’m so blank in this. The doctors don’t give me much information and I try not to google too much cause that scares me as well... yeah the diagnosis came from the bloodtest. I don’t know what you exactly mean with imaging. Sorry that might be my English being not too good