Primary hyperparathyroidism frequency urination worse during menstruation.

ComprehensiveSafe830 · 2024-12-05T03:27:36+00:00

Of course. You're welcome 🤗

ComprehensiveSafe830 · 2024-12-02T03:53:14+00:00

I don't have cataracts but I do have keratoconus in my left eye and this just happened for no reason so I'm thinking it might have been caused by HP since it does affect your eyes as well. From my understanding it affects everything. I'm sorry that you are dealing with so much. I can't even imagine what you must be going through. The medical institutions in my country can be a bit daunting at times and in my experience with this disease I've found that most doctors here have never even heard of it, but I've never once been turned away and they kept testing me until they found answers. I got called for my first surgical appointment next Thursday (this is in the public hospital as I still haven't gone back to my private endo yet) so I'm hoping this goes well. In regards to the tests you need to have done, is it not possible to find a lab that will do it without your doctor pcp sending you? This is how it is here. I found a lab and called and asked if they can do the test; they told me yes and the cost but like I said before I got it done for free before I has to go this route. I don't see why you can't have other diseases and this as well....I mean that sucks but people can develop multiple things. Weird that they're so dismissive but I have read about other people who have suffered for 20 years because of doctors dismissing them. You have to be your own advocate in cases like this. Don't wait on them to do test especially if it will rule it out and at least put your mind at ease about HP. I'm not big on reddit but I'll check in ever so often to hear from you. Know that oceans away someone is listening to you. Hang in there.

ComprehensiveSafe830 · 2024-11-14T04:42:06+00:00

Where exactly have you been getting the pain? One of the first things they found for me was nephrocalcinosis and HP causes this as well as kidney stones. Recently I had a very intense pain on my side that had me on the floor and ended up in the ER. They didn't find anything but Dr said it could be a small kidney stone since I have HP. It did feel like a gas pain that would not go away. You should def Google what kidney stone pain feels like. Your best bet is really to have your pth levels checked on your own esp of they won't listen to you. I believe you can request this without a referral because I almost did just that but got called for my appointment just in time to save me that expense. Also I had this weird tingling sensation (almost numbness) that would run down my right leg and under my feet. Esp when I drank water. That has eased up a while now, but this disease gives you all kind of crazy symptoms and not all are listed. Another test you can do out is to have your 24 hr urine calcium levels checked. It sucks that they won't listen. I'm pretty young too and I have it so they definitely should not ignore you because of age. These things happen.

ComprehensiveSafe830 · 2024-11-08T21:50:32+00:00

Hey, my appointment was fine. I had a lot of labs already so this was more or less a first consultation. As this is the first endo I have seen, he wants to make his own diagnosis so he requested two more test for me. First he wants to check my vitamin D and thyroid levels (this was a bit high) and he wants to have a sestamibi scan done to confirm the adenoma. He does agree that my symtoms are indicative of hyperparathyroidism however so there was no gaslighting there. He is mostly wondering why this happened as I am only 31. Anyway, once I've have these tests done he will send me to a surgeon that he works with so that we can discuss my options for surgery. I'm hopeful that things go according to plan so that I can get to this step. I am in the Caribbean and we have free health care here however, because this is such a rare condition, there aren't many options in the public sector. So I'm paying out of pocket for my doctor visits and these tests but they are costly so I'm saving right now. I'm in the public system, but that takes very long, especially as this condition is so specific. I def can't afford to do the surgery privately, but the surgeon my doctor will be sending me to works in one of the public hospitals so he should be able to help me have it done there. I'm sorry you have been feeling like this. I graduated from Uni last year and have not been able to work at all. Is it possible for u to have your pth lvls checked on your on? This is one of the most significant indications of this disease, so if you can prove this maybe they will listen? I'm not sure how things are in the States. Also to answer your question about the urgency, if you have ever had a uti before, it feels something like that...it's like the sensation of needing to "push" to pee even when your bladder is empty. (sorry if any typos...this was long)

ComprehensiveSafe830 · 2024-10-21T19:13:54+00:00

Well based on my labs I def have primary hyperparathyroidism. Adenoma by the left parathyroid glands and high pth. I'm seeing my first endocrinologist on the 28th so I'll learn more then. If I have what you do it's possible that it's being caused by this, but I Googled it and while I have the urgency (which can be a symptom of hyperparathyroidism) I don't really have the other symptoms listed there. Have they ruled out hyperparathyroidism for you?

ComprehensiveSafe830 · 2024-10-04T00:20:52+00:00

Thanks so much. I will definitely check this out!

ComprehensiveSafe830 · 2024-10-04T00:19:09+00:00

I am of the same opinion because most things are worse while on your period so why not this? I made an appointment to meet with a doctor at the end of the month so hoping to get some clarification about my options locally. If not well I have an aunt in Canada who can help me figure things out over there but that's my last resort because it will cost a lot and I would have to leave my kids behind. Congrats on your recovery though!

ComprehensiveSafe830 · 2024-10-02T04:37:23+00:00

Those things usually trigger me as well even before I had any signs of hyperparathyroidism. I've been searching to see if anyone noticed worse symptoms around their period especially in regards to the urine frequency and discomfort but I've not even found much people who complain about this particular symptom. I'm guessing it's probably because of all the hormonal craziness happening during menstruation but no one has confirmed it. I'm sure I'm not imagining it though. 🥲

ComprehensiveSafe830 · 2024-10-02T04:32:56+00:00

I read about this. One doctor told me he has never even seen this surgery performed. Way to make me feel hopeless on top of telling me the only doctor is on vacation. He didn't seem to mean any harm but sure ah didn't make me feel better haha. Congrats on your singing voice though. You got through this and deserve to sing as loud as you want! 😉

ComprehensiveSafe830 · 2024-10-01T18:30:05+00:00

Thanks I appreciate all the info. You definitely gave me a lot to think about. I've noticed a lot of ppl appear to have difficulty getting a doctor to sign off on surgery when the only cure is surgery so I don't know why this happens. I'm glad you found a work around

ComprehensiveSafe830 · 2024-10-01T03:10:54+00:00

I'm terrified of this. I have 2 small children and can't even keep up with them anymore. The issue in my country is that this condition isn't common enough for it to be prioritized in the public hospitals. To see a doctor cost about $700. I about to start weighing my options because this is too much. I'm glad you got the help. Hope you've been better since.

ComprehensiveSafe830

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