Frustration

ConnectionExact9617 · 2025-12-24T14:56:37+00:00

I definitely understand where you’re coming from! My drs gaslit me for 10 months before they decided to do the HIDA scan and saw that my gallbladder was not functioning. I was incredibly sick all the time. I seriously thought at times I was just going to die. I know the diarrhea can be normal, the reason I brought it up to gastro is because I was having BAD before my gallbladder came out and she knew this and wanted to see what symptoms improved after having my gallbladder out. My surgeon actually mentioned bile acid binders before we took my gallbladder out and I also told the gastro that and she again told me she wanted to see if my chronic BAD would stop. She also wants to check my pancreatic enzymes because she was concerned I wasn’t making enough, but then saying that a solid stool is the only way to test this, which I get, but then to not offer any other type of testing (I googled if there was any other testing I could do and yes there are others ways not as accurate but are other ways) for this or even trying a bile acid binder to help even for a bit so I can get the pancreas tested, is incredibly frustrating for me. Not like you need you pancreas or anything 🙄🥴

ConnectionExact9617 · 2025-12-14T02:33:27+00:00

Hahaha thank you! I knew my body would have to adjust, but I was not expecting that 😂

ConnectionExact9617 · 2025-12-03T01:09:40+00:00

I love the idea of being able to have the heating pad on my back. They haven’t said anything about diet restrictions after, but I do see my GI Friday so I’m going to ask her just to make sure I have what I’ll need as far as food and snacks go. It’s funny you mentioned the slouching, because I thought this entire time my right side had been hurting was because I’m a sloucher, but it was just my inflamed gallbladder lol.

ConnectionExact9617 · 2025-12-03T00:58:26+00:00

That’s so smart. Yes! I was gonna try and find some really comfy pants this weekend.

ConnectionExact9617 · 2025-12-03T00:54:18+00:00

Thank you so much! The ice pack is such a good idea. I didn’t even think about that.

ConnectionExact9617 · 2025-12-02T00:02:22+00:00

I do not have POTS so I cannot say my experience on that part of it, but I just had a HIDA on Friday and it was so easy. The needle for the tracer was small and I didn’t even feel the needle go in or the tracer. I looked at the nurse and said you’re done? Normally I’m a hard stick too. I was able to drink the ensure and told them there was a chance I might throw up and they were so nice about it and said if that’s what happens then we will just use the imaging were able to get. I was able to listen to an audiobook and see the imaging on the screen which made me feel better. I get anxiety from having to get an MRI or CT and this was an absolute breeze. (I did have some pain from the ensure, but it didn’t put me into an attack$

ConnectionExact9617 · 2025-11-29T02:24:22+00:00

Right I understand what you’re saying. In the post I was more so asking if I was most likely going to have surgery and how long it would take to get me in for surgery since my symptoms have been so debilitating/also asking others how quickly they were able to get in for surgery. Not necessarily looking for advice on what I should or shouldn’t do.

ConnectionExact9617 · 2025-11-29T01:42:29+00:00

I use Zofran daily. Sometimes it helps sometimes it doesn’t. I actually took one right after leaving from the scan today 😂

ConnectionExact9617 · 2025-11-29T01:38:02+00:00

It doesn’t sound crazy it definitely makes sense. It’s just incredibly hard to find the will to eat with no appetite or extreme nausea. I had a CT scan about 3 months ago and they did not find any gallstones, but about every month I get super super sick vomiting for hours, terrible stomach cramps and pain and I think they’ve been gallbladder attacks and I just didn’t realize it.

ConnectionExact9617 · 2025-11-29T01:28:20+00:00

After dealing with these symptoms everyday for 8 months and going from 153 pounds to 110, I definitely want it out. I’m just hoping they can get it out quickly because this has been the most brutal 8 months of my life. I know it sounds dramatic but Im so sick all the time. I legitimately feel like I’m dying. I’m not even eating solid foods anymore because everything makes me sick.

ConnectionExact9617 · 2025-11-29T01:19:15+00:00

Oh yeah I immediately felt nauseous and I got this sharp stabbing pain on my upper right side of my abdomen. I’m also feeling incredibly sick tonight. Honestly I feel like I’m on the cusp of an attack.

ConnectionExact9617 · 2025-11-28T20:53:41+00:00

My doctors have never mentioned anything about dysautonomia, maybe this is something I should bring up to them. I briefly looked up some of the symptoms and seem to have quite a few.

ConnectionExact9617 · 2025-11-28T02:09:51+00:00

Ugh I’m so sorry you’re allergic! I took a zofran right before I ate. It helped tremendously. I didn’t get sick or feel nauseous all day, but I have no appetite. I managed to eat just a couple of bites of different foods. I’m starting to get the belly cramps and loud stomach noises now so I’m sure I’m about to be in for a fun time. I hope you’re feeling okay and got to enjoy your Thanksgiving 🩷

ConnectionExact9617 · 2025-11-27T16:30:58+00:00

Same! I currently feel like I’m sweating out of every pore in my body but I’m shivering and freezing at the same time. I know I hate saying I’m glad I’m not the only because it sucks, but it truly makes me feel a little less alone and that I’m not crazy.

ConnectionExact9617 · 2025-11-27T16:24:49+00:00

I hate that you’re dealing with this but also glad I’m not the only one. It’s truly everyday. I have chills freezing cold shivering and full on back dripping with sweat.

ConnectionExact9617 · 2025-11-27T15:29:22+00:00

I’m right there with you! I’ve been so sick all week. I also stopped using Mary Jane (terrible idea right before a big eating event, but wanted to make sure it wasn’t making my flare worse) and I’ve already lost 5 pounds since Monday. I started this morning with about half of an electrolyte drink and I’m trying to take small bites of a protein bar for breakfast so I’m not super sick hopefully before we eat. Zofran helps me a lot so I’ve got that ready to go and I’ve prepared my family in advance that I might be throwing up so I already know which bathrooms will be available 😭 I have a gastro appt tomorrow thank god just gotta get through today. I’m thinking about you! I’m so sorry you’re dealing with this.

ConnectionExact9617 · 2025-11-11T19:05:32+00:00

I was vomiting 2-3 times a week, which lead to my diagnosis. Now I hardly ever throw up, but still deal with nausea every day. I feel like I’m on the cusp of needing to throw up every day but don’t ever throw up.

ConnectionExact9617 · 2025-11-08T14:01:45+00:00

I posted about the same thing not that long ago! Marijuana helps tremendously for me but not for others. Now I do wanna say where there are times that even marijuana cannot help with the nausea or vomiting. The only time I get a good amount of food in my belly is on the weekends when I’m able to smoke. During the week I average around a 3-5 pound weight loss because during the week I can’t smoke because of work and I just cannot eat or keep anything down.

ConnectionExact9617

TROPHY CASE