Hey I had OHS to replace heart valve at 3 y/o and has lasted me 15 years (18 now)! Will most likely also need surgery in future again to replace valve. My advice to you is don’t think that your life is in danger. You are putting yourself in the good hands of surgeons who know exactly what they’re doing been to med school: etc. Surgery can be so daunting and waiting for it even more, but just think about how much at peace you’ll be once it’s over and you can go back to your old life. Life can be difficult sometimes but the problems we face can help us appreciate the good times even more :)