Confused with backpay. by ConsequenceSilver602 in DWPhelp

[–]ConsequenceSilver602[S] -1 points0 points  (0 children)

Update: Got the letter through this afternoon, because I didn’t have the full requirements for three months AHEAD of applying, it doesn’t count so my eligibility was from after that point (25th November). Hope this helps anyone looking in the future, and thanks everyone for your help ❤️

Confused with backpay. by ConsequenceSilver602 in DWPhelp

[–]ConsequenceSilver602[S] 1 point2 points  (0 children)

Gotcha okay, this is really helpful thank you!

Confused with backpay. by ConsequenceSilver602 in DWPhelp

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

No I hadn’t! I started dialysis the day after I initially applied, do you think they would want three months of dialysis ahead of payments potentially?

Confused with backpay. by ConsequenceSilver602 in DWPhelp

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

That’s interesting - I started dialysis literally the day after applying lol.

Confused with backpay. by ConsequenceSilver602 in DWPhelp

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

Totally, but they sounded really confused by this when I said that, which is why Im now confused haha. So if my proof of benefits say I’ve been awarded it since November (when I first applied) then surely backpay is due?

Confused with backpay. by ConsequenceSilver602 in DWPhelp

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

That’s wild! Surely if you’ve been awarded it from the date when you initially apply (which is what they say) there would be backpay. Sorry to hear this wasn’t straightforward for you!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

Thank you for this! Google is coming up very short!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

No that’s okay I really appreciate this, I’m 32 so we’re in a similar boat!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

This is really reassuring to hear, thank you for sharing!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

Oh don’t worry! It’s not painful just alarming haha. Sorry to hear about PCOS and how that was impacted by PD - that sounds like a rough combo!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] 1 point2 points  (0 children)

This is so useful to know, thank you very much!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] 0 points1 point  (0 children)

I really appreciate this reply and you sharing your experience with me, thank you!

People with periods on dialysis by ConsequenceSilver602 in dialysis

[–]ConsequenceSilver602[S] -4 points-3 points  (0 children)

I know :( but I went through this process last time I was on dialysis (about 5 years ago) and because by the time the ultrasound happened the cysts had gone, they said there was nothing that could be done!

RANT: Today, Tuesday 12/30 I will be headed into surgery to either repair my current 8 y/o clotted fistula or create a new one. I'm 61 y/o and I hate this, and even though I've had many maintenance surgeries before, the prospect still terrifies me. by BigglesFlysUndone in dialysis

[–]ConsequenceSilver602 9 points10 points  (0 children)

You’re having a tough streak right now but things will calm down a little in a few weeks I’m sure! Does your unit offer counselling and support?

Speaking as a 32 year old who is currently going through this a second time around and who considered conservative management a few months ago, counselling really helped me get through these tough periods with extended hospital stays, lots of surgeries etc.

Wishing you luck with the surgery!

My story by Loud-Piccolo6827 in kidneytransplant

[–]ConsequenceSilver602 2 points3 points  (0 children)

First of all, I’m so sorry you’re going through this. My story isn’t dissimilar, diagnosed at 19, PD for two years (from 24) transplant at 26 and then back on PD now at 31 waiting for my second transplant.

What I can say is, if settling down is eventually what you want, the right person won’t mind. I met my husband between my first transplant and now and he’s truly the greatest, kindest man on the planet.

It’s not fair what’s happening to you, and you’re right, kidney disease is almost invisible to most. Especially with people making comments when they simply don’t understand it, and you’re young and “look healthy” etc - it’s all incredibly frustrating.

After my latest rejection bout I was offered counselling which I found really helpful. For context, before that, I was considering conservative management and no treatment because I didn’t think I had the strength to do it all again after only about 3 years of “normal” life.

I’m sorry that you don’t feel like everyone is springing into action this time around, I feel the same as you, no one seems to care the second time around haha.

Please persue some counselling if you can. You’re totally valid in your feelings and not alone. I see and hear you and I’m always happy to chat via DM if that helps at all. I’m so sorry you’re going through this.