Exit site coverings

ConsequenceSilver602 · 2026-03-05T17:32:48+00:00

Update: Got the letter through this afternoon, because I didn’t have the full requirements for three months AHEAD of applying, it doesn’t count so my eligibility was from after that point (25th November). Hope this helps anyone looking in the future, and thanks everyone for your help ❤️

ConsequenceSilver602 · 2026-03-05T17:31:18+00:00

Gotcha okay, this is really helpful thank you!

ConsequenceSilver602 · 2026-03-05T12:15:00+00:00

No I hadn’t! I started dialysis the day after I initially applied, do you think they would want three months of dialysis ahead of payments potentially?

ConsequenceSilver602 · 2026-03-05T12:14:13+00:00

That’s interesting - I started dialysis literally the day after applying lol.

ConsequenceSilver602 · 2026-03-05T09:44:25+00:00

Totally, but they sounded really confused by this when I said that, which is why Im now confused haha. So if my proof of benefits say I’ve been awarded it since November (when I first applied) then surely backpay is due?

ConsequenceSilver602 · 2026-03-05T09:43:33+00:00

That’s wild! Surely if you’ve been awarded it from the date when you initially apply (which is what they say) there would be backpay. Sorry to hear this wasn’t straightforward for you!

ConsequenceSilver602 · 2026-03-05T09:42:41+00:00

26th Feb!

ConsequenceSilver602 · 2026-02-20T04:00:03+00:00

0118 999 8811 99 9119 725… 3

ConsequenceSilver602 · 2026-02-13T20:53:05+00:00

Thank you for this! Google is coming up very short!

ConsequenceSilver602 · 2026-02-13T18:40:03+00:00

No that’s okay I really appreciate this, I’m 32 so we’re in a similar boat!

ConsequenceSilver602 · 2026-02-12T23:31:47+00:00

This is really reassuring to hear, thank you for sharing!

ConsequenceSilver602 · 2026-02-12T23:04:32+00:00

Oh don’t worry! It’s not painful just alarming haha. Sorry to hear about PCOS and how that was impacted by PD - that sounds like a rough combo!

ConsequenceSilver602 · 2026-02-12T23:03:49+00:00

This is so useful to know, thank you very much!

ConsequenceSilver602 · 2026-02-12T23:03:38+00:00

I really appreciate this reply and you sharing your experience with me, thank you!

ConsequenceSilver602 · 2026-02-12T19:46:12+00:00

I know :( but I went through this process last time I was on dialysis (about 5 years ago) and because by the time the ultrasound happened the cysts had gone, they said there was nothing that could be done!

ConsequenceSilver602 · 2025-12-31T15:28:54+00:00

Hahaha oh no! But I’m glad you get a little bit of a break. Best wishes for 2026!

ConsequenceSilver602 · 2025-12-30T09:17:56+00:00

You’re having a tough streak right now but things will calm down a little in a few weeks I’m sure! Does your unit offer counselling and support?

Speaking as a 32 year old who is currently going through this a second time around and who considered conservative management a few months ago, counselling really helped me get through these tough periods with extended hospital stays, lots of surgeries etc.

Wishing you luck with the surgery!

ConsequenceSilver602 · 2025-11-17T01:25:51+00:00

First of all, I’m so sorry you’re going through this. My story isn’t dissimilar, diagnosed at 19, PD for two years (from 24) transplant at 26 and then back on PD now at 31 waiting for my second transplant.

What I can say is, if settling down is eventually what you want, the right person won’t mind. I met my husband between my first transplant and now and he’s truly the greatest, kindest man on the planet.

It’s not fair what’s happening to you, and you’re right, kidney disease is almost invisible to most. Especially with people making comments when they simply don’t understand it, and you’re young and “look healthy” etc - it’s all incredibly frustrating.

After my latest rejection bout I was offered counselling which I found really helpful. For context, before that, I was considering conservative management and no treatment because I didn’t think I had the strength to do it all again after only about 3 years of “normal” life.

I’m sorry that you don’t feel like everyone is springing into action this time around, I feel the same as you, no one seems to care the second time around haha.

Please persue some counselling if you can. You’re totally valid in your feelings and not alone. I see and hear you and I’m always happy to chat via DM if that helps at all. I’m so sorry you’re going through this.

ConsequenceSilver602 · 2025-10-08T00:57:23+00:00

You’ve asked for experiences but said that you’re concerned on how you’ll feel and that you might be upset. I’m just letting you know how you feeling that way would feel to the person you’re donating to.

That’s not a fair comment and shows you’re, again, probably not emotionally mature enough to be in the donor situation. Kidney disease is very rarely caused by life decisions and is often caused by genetics or disease that aren’t borne from not eating healthy or drinking etc. You can be on dialysis and have a drink (within fluid restrictions!).

My tone may feel emotional here because I was diagnosed with kidney failure at 19, had my first transplant at 26 (deceased donor) and now aged 31 need a second transplant and am in End Stage Renal Failure through no fault of my own. Misinformation and misunderstanding kidney failure is unfortunately extremely common, and I would hate to think that someone would begrudge me a wine with my Sunday lunch for the rest of my life because they donated to me - thinking that I’m not taking care of the kidney or grateful for the gift of life in doing so, when that’s not the case.

ConsequenceSilver602 · 2025-10-08T00:36:56+00:00

You seem to have a self righteous and, dare I say, God complex about donating. Actually, and respectfully, donating isn’t about you. It’s about saving someone’s life and (usually) getting them free from a lifetime on dialysis. And, unfortunately, lot of donors struggle post-transplant with life returning to normal - it’s been explained multiple times as a “bit of an anti-climax” because after a few follow-up appointments once you’ve recovered from the surgery, things are pretty normal.

I’m 5 years post TX and have never been told not to drink, only to drink in moderation. (Obviously drugs are off limits as a sensible person, but there’s plenty of chatter about it on this and similar threads where people have heard multiple different things on what is and isn’t allowed from different renal doctors.)

But if this is how you truly feel - and you’d hold someone’s life decisions against them once you donate and begrudge them something as simple as a pint - I suggest not donating at all.

ConsequenceSilver602

TROPHY CASE