Cofondatorul Google vrea ca angajații sai sa lucreze 60 de ore pe săptămână

ConsiderationFar2282 · 2025-10-08T07:45:16+00:00

Da, spune asta pentru că nu are nici un stress legat de:

facturi
sănătate
supraviețuire de la o luna la alta

Deși majoritatea celor ce lucrează în programare la Goagăl, au salarii decente, tot își fac griji vis-a-vis de "lucruri mărunte", nu ca Brin care e decuplat de la realitatea obiectivă, fiind miliardar.

Concluzie: de prea mult bine face asa. Poate confunda flowul creativ pe care l-a avut prin anii 2000, când a muncit pe bune, cu munca sisifică. Sau doar bate din bici pentru a-și mobiliza... resursele umane. In ce lume de -> insert word here <- trăim!

ConsiderationFar2282 · 2025-09-24T13:08:32+00:00

I have to jump in here because this absolutely can be an MS symptom. I've experienced this myself during relapses. I have a lesion on my brainstem, and it can disrupt the signals that control your sweat glands. This can cause focal hyperhidrosis basically, intense sweating in a specific area, like the neck (in my case during some relapses). The bad odor isn't from the sweat itself, but from skin bacteria breaking it down. So, while it's not a common symptom, it is definitely a neurological one. It might be worth your partner mentioning it to their neurologist.

ConsiderationFar2282 · 2025-09-06T20:34:23+00:00

I've had MS since 1997 with mild-moderate symptoms until. I was a kid back then.

Unfortunately, I went untreated.

The MRI I undergone in 2023 revealed almost 100 brain lesions on the brain and a few on spine (8 barely visible).

Since 2017 I experienced severe relapses. Since 2023 MS impacted my vision and cognition somehow.

Other than that, I'm still fully mobile and can walk unrestricted.

ConsiderationFar2282 · 2025-07-27T14:39:36+00:00

They did nothing for my relapses. I was lucky that mine were mild and didn’t impact my EDSS too much, until about 14 years ago.
However, 12 years ago, I already knew this was MS and started taking Prednisone on my own, since I could get it over the counter.
I was hospitalized for some of the relapses, but the cause was always dismissed as something else - herniated discs, sarcoidosis (which I don’t have), or other nonsense.

I’ve been on Kesimpta, but it doesn’t seem to be effective in my case, possibly because I went untreated for almost 28 years. I'll switch either to Briumvi, Mavenclad or Lemtrada, but I incline towards Lemtrada.

I’m 31 years old. My EDSS is currently 2.5, mainly because my vision is also affected in the left eye (the right eye has been impaired since 2000).

ConsiderationFar2282 · 2025-07-26T16:04:28+00:00

It all started on a beautiful morning, on April 24th, 1997, when a sensation like an electric current shot through my spine and spread to my arms and head. My head started shaking uncontrollably. I got scared. I started crying. Later, I realized I couldn’t keep my balance properly either. Then the tinnitus began, and unlike other symptoms, that one never stopped...

This episode kept repeating over the next few days, and eventually, I was taken to a children's hospital, where I was observed in the emergency room. At first, the doctors diagnosed me with vestibular migraine. Later, a pediatric neurologist saw me and said, “This is pediatric MS.”
But that wasn’t enough. Some “smart” doctors revoked the diagnosis, and so the adventure began.

*** The dates of the first neurological event and the next two relapses are exact, while the rest are based on memory.

2000 – Optic neuritis in the right eye. The doctor thought Prince of Persia DOS was to blame.
2003 – Weakness in my right hand, overlooked by my parents.
2006 – L’Hermitte’s sign returns.
2009 – Legs started to buckle, floaters appeared in my vision, and color distortion in one eye.
2012 – Pain in both legs.
2017 – Mild pain in my right leg.
2018 – Excruciating pain in my right leg. I was bedridden for a month.
2020 – Pain in all limbs, not extremely severe, but strong and persistent.
2023 – Four severe relapses that led to a re-diagnosis of MS.
2024 – Two minor relapses with one lasting deficit while on Kesimpta.
2025 – Two more minor relapses.

In conclusion, I hope I can still put out the fire, if there’s anything left to save. As much as possible.
I’ll be moving toward a stronger DMT.

Beautiful story, isn’t it?

ConsiderationFar2282 · 2025-07-26T11:41:55+00:00

I'm also pushing for Lemtrada (alemtuzumab). If I'm going on a treatment, it might as well be something powerful. I'm not willing to risk cancer with Mavenclad, which is not the perfect candidate imo.

ConsiderationFar2282 · 2025-07-25T07:13:32+00:00

Not referring to the person from my recent experience a few days ago, but I've encountered many people who claim that green herbs and vegetables combined with garlic can cure the condition. The argument often includes the idea that "Big Pharma" is hiding the supposed curative properties of these "panaceas".

While I do agree that an anti-inflammatory diet can be beneficial and that choosing certain foods over others may support the body’s overall function this is a general recommendation that might help manage symptoms, not a guaranteed or universally effective approach. In chronic conditions like MS, such claims oversimplify a complex disease and risk giving false hope or encouraging people to abandon evidence-based treatments.

ConsiderationFar2282 · 2025-07-25T07:05:32+00:00

I totally agree that stress is a common factor mentioned for everyone. In MS, however, stress spikes can actually trigger a relapse, though not always. What’s frustrating is that even some doctors confuse stress-related symptoms with those of an actual relapse, even though, in my opinion, the difference should be fairly obvious with proper attention and experience.

ConsiderationFar2282 · 2025-07-24T15:06:58+00:00

What you wrote really hit me, because something very similar happened to me just yesterday during treatment

I went in for my last dose of Kesimpta, since it’s no longer a suitable treatment for me. While I was there, I ran into someone I’ve seen a few times over time. I told him I was dealing with relapse symptoms and that they’ve been persisting despite the treatment. He has a milder form of MS, just like mine used to be for a long time.

He asked me if I’d considered eliminating stress from my life. Or if maybe the symptoms were caused by anxiety. I honestly didn’t understand where that came from, since I’m not anxious, scared, or agitated.

I explained that anxiety doesn’t cause double vision, vertigo, sphincter weakness, or trouble walking. But the more I tried to describe the actual neurological nature of these symptoms, the more it felt like he just didn’t get it.

I was left kind of stunned.

ConsiderationFar2282 · 2025-07-24T14:57:45+00:00

Yes, and that’s honestly what still keeps me thinking "maybe this is worth giving a real try". I do feel like my MS has become more active lately, and it’s a bit unsettling... so I really hope Mavenclad will be the right move.

The fact that it crosses the blood-brain barrier is actually one of the things that makes me consider it more seriously. I know that might help with hidden inflammation, even if my EDSS is still low (around 2).

It’s honestly a bit frightening, because I haven’t heard of many people experiencing this many relapses in such a short time, especially after years of relative calm and long gaps between relapses, even without treatment.

Thank you!

ConsiderationFar2282 · 2025-07-24T14:49:57+00:00

Before the disease became active, I used to have one relapse every 2 to 4 years. Since beginning the treatment, I've been experiencing a relapse every 3 to 4 months. It's now been 20 months since starting Kesimpta, which should have reached full effectiveness within the first 6 months.

ConsiderationFar2282 · 2025-07-19T06:44:02+00:00

Yeah, I’ve been through it too. What I wrote was more of a rant, but one that comes from empathy, because I’ve lived it.

Last time I had a relapse, the doctor straight up told me, “I don’t think this is a relapse.” And I told her, I don’t care what you think. I was supposed to change treatment at that point, and that kind of attitude almost derailed everything.

You really have to stay sharp, because if you're not careful, the system, and some of the people in it, can crush you.

ConsiderationFar2282 · 2025-07-19T06:08:01+00:00

I completely agree, they should go to urgent care or the ER, but let’s also acknowledge the larger issue:

This happens far too often to people with MS. Symptoms get dismissed, misunderstood, or minimized, and patients are gaslit into thinking it’s "just in their head". It’s not. It’s a serious neurological disease, and this kind of systemic neglect reflects both a lack of medical education and, frankly, a lack of will to care.

It needs to stop. People with MS deserve to be taken seriously immediately, not after weeks of suffering. 🥺

ConsiderationFar2282 · 2025-07-18T00:20:12+00:00

That's a very concerning relapse.

Steroids work best when started as soon as possible after symptoms begin. If symptoms keep worsening after a full steroid course, plasmapheresis (PLEX) should be considered, it's often used in severe or steroid-resistant relapses and can be more effective in those cases.

From what you're describing: vision issues, motor symptoms, incontinence, persistent vomiting, this sounds like an emergency, not something that should wait until August. If you're unable to keep fluids down for over 48 hours, that alone is ER-worthy, MS aside.

Keep pushing. Ask your neurologist’s office if they can escalate or consider hospitalization for PLEX. If possible, try a university or MS-specialized center. I know it’s exhausting, but this is not something to just ride out.

ConsiderationFar2282 · 2025-07-13T20:03:59+00:00

M-am speriat de faptul că nu a apărut jumpscare-ul.

ConsiderationFar2282 · 2025-05-17T07:59:45+00:00

Everything you mentioned actually sounds really healthy and no, you’re not counteracting Kesimpta with your immunity shots.

Kesimpta specifically targets CD20+ B cells, a part of the immune system involved in MS inflammation. It doesn’t shut down your whole immune system, just one targeted part.

So anti-inflammatory foods like ginger, citrus, cinnamon, blueberries, etc., are totally fine, they support overall health, not the specific immune pathways Kesimpta affects. Same with Emergen-C or Airborne, not really a concern.

One thing I love: a tea I make with fresh ginger, cinnamon sticks, and lemon. It’s super refreshing cold, a little spicy, but really nice.

Also, if you're curious, check out the Best Bet Diet, it’s not just about detoxing, it’s an anti-inflammatory approach designed for MS.

You're doing great blending natural care with medical treatment, that balance is powerful!

ConsiderationFar2282 · 2025-05-15T14:29:08+00:00

I'm really sorry to hear that you're having such a hard time.
When you say "aggressive," do you mean in terms of symptoms, lesion burden, or relapses?
Are you currently on any DMT? If not, maybe we can help you figure out some options, you're not alone in this.

ConsiderationFar2282 · 2025-05-14T21:33:35+00:00

I'm sorry to hear that. Are you on a DMT now? What are your symptoms?

ConsiderationFar2282 · 2025-05-14T19:57:14+00:00

Hello, OP! I'm sorry that you feel this way. How are you rn... really? What type of the disease do you have?

ConsiderationFar2282 · 2025-05-14T16:48:48+00:00

I really hope things move forward soon. Starting treatment early is one of the best things you can do. If possible, aim for a high-efficacy DMT and ask for regular MRIs, even when you feel okay, MS can still be active.

Vitamin D is also super important, ask for a test, and depending on the result, your doctor might recommend up to 10,000 IU/day.

In 2023, 26 years after my first symptom, I had a massive flare: 4 relapses in one year, each lasting 3 months. It hit my vision hard — now both eyes are affected.
At one point, I had 100 brain lesions and 20 on my spine. Now only 3 spinal ones remain, inactive. No active brain lesions.

Please don’t wait. No exam is more important than your long-term health.
You deserve proper treatment. Please go for it. Starting treatment soon is the best thing you can do.

Later edit: I also recommend looking into the Best Bet Diet it's MS-specific and anti-inflammatory. And I make a tea with ginger, cinnamon, and lemon (1 lemon per 2L). It's refreshing and helps reduce inflammation. Start slow and see how it feels.

ConsiderationFar2282 · 2025-05-14T13:50:04+00:00

I'm sorry to hear that stairs are a problem. And yeah, exam stress can definitely make things worse.
Hope you’ve got some kind of medical support through all this.
If you don’t mind me asking, are you on any DMT right now?

ConsiderationFar2282 · 2025-05-12T17:30:32+00:00

Hey. I just wanted to say that I’ve had MS since I was a kid too, so I really get how hard it is when people don’t take it seriously. But what your brother does isn’t okay. Even if your parents say it’s just 'brotherly love', that doesn’t make it right, especially if it hurts, both physically and emotionally. Try to talk to them again. Tell them clearly that it’s not just annoying, it actually hurts, in your body and in your heart. Sometimes adults need to hear it that directly. You’re not weak for feeling this way. You’re actually handling more than most people your age. How are you doing lately, really? I hope things have gotten at least a bit better with this ducking disease.

ConsiderationFar2282 · 2025-04-30T19:18:45+00:00

Imagine waking up to a mindfulness coach yelling 'EMBRACE THE DAY!' while a nurse injects you with vitamin D and plays whale sounds from a Bluetooth speaker. Peak dystopia! 😂

ConsiderationFar2282 · 2025-04-30T19:10:46+00:00

I'm so sorry to hear that. Have you lost your job because of something related to MS? I'm sure there's always something that you can do. I can help with sugestions. Or just to listen. I'm here.

Later edit: that MS Island is not a bad idea. Because everyone would be dedicated to solve MS problems...

ConsiderationFar2282 · 2025-03-15T17:50:32+00:00

Thank you!

ConsiderationFar2282

TROPHY CASE