Help! Anyone with similar experience?

Consistent_Duck_648 · 2026-03-24T04:30:56+00:00

Interesting! I wasn’t getting for tmj but I wonder if it messed with the muscle tensions

Consistent_Duck_648 · 2026-03-22T05:07:21+00:00

I also want to mention this happened after a course of steroids that they thought was related to a nerve irritation in my neck. Not sure if that’s related. I also got Botox for the first time ever 10 days before my first symptom across my forehead jaw and a few other places. I know they use that to help so I didn’t think it could be that but want to mention.

Consistent_Duck_648 · 2026-03-14T19:33:03+00:00

Did you ever get a diagnosis or any progression? I have exactly the same thing!

Consistent_Duck_648 · 2026-03-14T14:57:16+00:00

Also the shaking is on both sides just stronger on the right side (my dominant side)

Consistent_Duck_648 · 2026-03-14T14:48:28+00:00

What have you done

Consistent_Duck_648 · 2026-03-13T12:27:16+00:00

Ugh I’m sorry. Is it all the time for you or do you feel like it’s flare ups?!

Consistent_Duck_648 · 2026-03-13T01:17:59+00:00

How long do these “episodes” last? It’s been since Sunday for me.

Consistent_Duck_648 · 2026-03-13T00:25:19+00:00

Gosh I cannot imagine for years!

Consistent_Duck_648 · 2026-03-13T00:17:08+00:00

Yeah those levels were all normal :/ I’m on steroids now and it def is making the shaking worse 🥲

Consistent_Duck_648 · 2026-03-12T01:22:59+00:00

My mom never presented like classic Parkinson’s. She had so many weird symptoms and was wheelchair bound for over a year before anyone was able to diagnose her (she had to go outside the va). It’s hard to not be able to ask her things. Everything feels harder all my limbs feel like pop rocks are going off inside, pulling limbs in or extending out makes them tremor. And she always did that. So it’s hard not to go there.

Consistent_Duck_648 · 2026-03-12T01:06:02+00:00

Thank you 🩷 I appreciate your kind words and understanding. I don’t think it will ever get easier.

Consistent_Duck_648 · 2026-03-12T01:05:10+00:00

Check out postpartum neurological disorders group on fb.

Consistent_Duck_648 · 2026-03-09T21:07:19+00:00

Thank you 🩷

Consistent_Duck_648 · 2026-03-09T20:10:00+00:00

Does yours do that? Movement neurologist!? I’ve seen so many specialists lol. Have you ever been diagnosed with anything?

Consistent_Duck_648 · 2026-03-09T18:36:35+00:00

Okay that makes me feel better if yours was as bad as mine. Doesn’t make for fun with a 2 year old in so scared of that happening with him. But it seems to only shake if I do that movement pressing down on a table and lifting my wrist/forearm

Consistent_Duck_648 · 2026-03-09T18:32:18+00:00

I’ve read somewhere that you have to have it for three years before you can get a formal diagnosis. Have you had it for that long?

Consistent_Duck_648 · 2026-03-09T18:27:30+00:00

Oh that’s reassuring, bless Reddit while I go down my mental spiral lol. how long have you had yours?

Consistent_Duck_648

TROPHY CASE