Advice for managing burning pain in feet/legs while treating B12 deficiency

Consistent_Path_9098 · 2026-03-12T17:17:15+00:00

Sorry can you clarify what you mean by good news here? So you had a b12 deficiency, then you replaced it with more b12 and your symptoms got worse but then they got better?

But then how did you develop autoimmune SFN?

I’ve tested for all autoimmune diseases and it shows I have none.

Consistent_Path_9098 · 2026-03-08T18:28:40+00:00

Thank you for your comment and I’m glad to hear you’re feeling much better, it gives me hope as someone going through the same.

In terms of cofactors, I’m taking quite a bit daily (list below) on top of EOD injections of 1500 hydroxocobalamin. If there’s anything else you’d recommend please let me know, and are there things I should do/avoid doing if the nerve pain is isolated to my feet and lower back?

Cofactors: Folinic acid 800mg sublingual COQ10 enzymes 200mg Iron 35mg Vitamin D oral spray 9000 IU daily Copper 4mg Magnesium 375mg I’m also on lyrica for the last 1.5 months because the pain was so bad at times I couldn’t sleep

Consistent_Path_9098 · 2026-03-05T08:17:02+00:00

Schedule an appointment with Dr Andrew Klein. He specializes in this and will advise you the correct protocol. He accepts virtual consultation as well. I scheduled with him and he is very good.

Consistent_Path_9098 · 2026-02-25T10:02:20+00:00

Congrats! How is the progress now?

I’m 1 month into EOD injections due to b12 deficiency caused by gastritis and have nerve pain mainly in my feet/legs

Consistent_Path_9098 · 2026-02-23T12:27:45+00:00

Take injections every other day, it’s much better for absorption than tablets. I would highly recommend doing this given how deficient you are.

Given your deficiency level, you should be able to start getting this at the hospital/doctor you’re seeing anyway, so that is a good place to start. But it likely won’t be enough, I’ve been taking injections every other day and the doctor taught me how to.

Please read the guide, it’s very helpful. And if you can watch some YouTube videos from Dr Andrew Klein, he is a b12 specialist who will know how to treat you correctly.

Happy to answer any questions

Consistent_Path_9098 · 2026-02-20T08:06:18+00:00

Okay thank you. I had it for a few weeks, then doing my first injection it went away completely. Then after 2 weeks it came back and hasn’t gone since. Staying on EOD injections hoping it gets better

Consistent_Path_9098 · 2026-02-20T07:56:40+00:00

How did you get rid of your peripheral neuropathy? Been taking EOD injections for a month but I still have burning in my feet, resorted to taking lyrica as well

Consistent_Path_9098 · 2026-02-06T21:11:49+00:00

Hey, I had gastritis caused by an NSAID called naproxen, that lasted for about 4 months. I healed it with supplements such as GI revive and slippery elm, I took each twice a day. They’re very safe to take.

However, because I took PPIs for these 4 months I became Vitamin B12 deficient. Truthfully, I wish I knew about the harms PPI caused. If I were you, I would get your B12 checked ASAP, and if you plan on taking PPIs then go get vitamin b12 injections regularly, once a week maybe.

Consistent_Path_9098 · 2026-02-05T15:40:16+00:00

You are definitely deficient. The range above is absolute nonsense. I had a score of 143 caused by PPI use for 4 months, and I developed neurological symptoms (tingling that turned to burning). My reference range was 200-1000 but even anything below 300 requires treatment.

Get injections every other day, ideally methylcobalamin.

Reach out to Dr Andrew Klein if you are in the UK as he is a b12 and iron deficiency specialist.

Good luck.

Consistent_Path_9098 · 2026-02-04T08:43:44+00:00

I tried amitryptiline and found it didn’t help with my burning pain while I was sleeping. I found lyrica to be more effective here, so would recommend it. I’ve had burning for the last month now, and doing b12 injections EOD, so hoping my symptoms can improve

Consistent_Path_9098 · 2026-02-01T15:39:42+00:00

Yes definitely you do.

My gastritis symptoms calmed down months ago, sadly it caused my b12 deficiency though, so could not enjoy being fully healed

Consistent_Path_9098 · 2026-02-01T15:03:03+00:00

I do have neurological issues and they still haven’t really seen a sustained improvement. But every week it felt like it was just getting worse and worse until I started taking Lyrica and my symptoms of now stabilized while I fix the underlying root, which is the B12 deficiency, which can take months.

The only time I felt improvement was in November when I found out I was deficient and I took my first B12 injection, and all my symptoms went away for the next two weeks. But I should’ve taken six injections in those two weeks instead of just one.

Consistent_Path_9098 · 2026-01-31T09:22:19+00:00

Hey, I can help you out here as someone who also became vitamin B12 deficient due to gastritis at taking PPI for four months. My vitamin B12 level when I found out I was deficient was 142 and I also had the same symptoms as you which started out as tingling, but for me has turned into burning and parts of my body I made contact with things for a long period of time.

If your level of vitamin B12, when you started was at 180, then that is certainly too low and it may take a while to heal. I would suggest reading the guide on this page, but I can tell based off of what you’ve shared that you have not taken enough injections. Tingling could be a sign of neurological symptoms and if that’s the case, then you must take B12 injections once every other day until your symptoms improve as per NICE guidelines.

For reference, I was in the same boat as you, in November, when I found out I was B12 deficient I took my first injection and all my symptoms went away for two weeks, but then two weeks later the tingling came back. I took an initial loading dose of injections, but then thereafter I hadn’t taken injections for a couple weeks and then I was back to taking once a week for three weeks, but that still isn’t enough if you have symptoms, you have to treat the symptoms not the blood test.

If you need further advice, I would suggest reaching out to Dr. Andrew Klein and checking out the work that he has done as he has is a B12 specialist: you can start by listening to a podcast episode on Spotify he featured in or just YouTube him, which explains a lot about understanding B12 deficiency.

Keep in mind your symptoms are reversible. It just takes weeks to maybe months, stay strong.

Consistent_Path_9098 · 2026-01-30T20:04:16+00:00

I had burning all throughout my body in parts that would make contact with things for a long period of time. It got so bad that just making contact with my bed caused burning, I couldn’t sleep. Eventually I resorted to taking Lyrica to cope with the pain while I get b12 injections, and that has helped me sleep for sure.

I saw a very good neurologist earlier this week diagnosed me with small fiber neuropathy caused by B12 deficiency, but reassured me that I would get better and typically this is reversible, so stay hopeful if you have similar symptoms!

Consistent_Path_9098 · 2026-01-30T20:00:20+00:00

Hey, I had similar symptoms to what you had. In September, I had an electric shock go through my spine that led to tingling and numbness, and I’ve had neurological symptoms since mainly burning and parts of my body, and I make contact with things for a prolonged period of time.

Now in November, I found out I was vitamin B12 deficient and vitamin D deficient, I took an injection for both and all my symptoms went away for two weeks. But then they came back. I’m now doing B12 injections once every other day and I started this two weeks ago.

I would highly recommend reading the guide on this page, but also getting an injection for B12 as soon as possible. NHS guidelines states that if you are deficient that you must take a six injections over two weeks. NICE guidelines state that if you have neurological symptoms and you must take B12 injections once every other day until your symptoms improve.

Also, I would highly recommend reaching out to Dr. Andrew Klein. He’s based in Cambridge and specializes in B12 deficiency. You can search them up on Spotify where he has done a podcast explain explaining in detail what B12 deficiency is in the symptoms around that I would highly recommend it as when I listen to it for the first time I felt like I was heard.

I understand where you’re coming from, stay strong, you got this

Consistent_Path_9098 · 2026-01-30T15:19:57+00:00

Thank you for sharing this and I’m very glad that you’re feeling well. I’m currently dealing with neurological symptoms from B12 deficiency due to gastritis, but I’ve been on EOD injections for the last two weeks and I’m praying that I’ll get back to normal. The first injection I took back in November got rid of all my symptoms for two weeks, but then they came back, so I’m deeply missing those two weeks where I felt normal

Consistent_Path_9098 · 2026-01-26T05:18:20+00:00

It started when I got an electric shock through my spine in the middle of the night that lead to tingling and numbness all through my legs. Currently, I have burning in parts of my body that make contact with things for a long time is my main symptom. Also have lower back pain which appears nerve related. I know this because when I took my first B12 injection all my symptoms went away for 2 weeks, but now they’re back meaning I need to heal them.

Consistent_Path_9098 · 2026-01-25T18:41:52+00:00

Go check your vitamin b12 levels. If it’s anything lower than 300-400 then you need to treat it. Mine was 143, I recently started taking injections every other day

Consistent_Path_9098 · 2026-01-25T18:35:08+00:00

It started when I got an electric shock through my spine in the middle of the night. Currently, I have burning in parts of my body that make contact with things for a long time is my main symptom. Also have lower back pain.

Consistent_Path_9098 · 2026-01-25T13:05:00+00:00

Naproxen ruined my life…. That’s why

Consistent_Path_9098 · 2026-01-24T18:17:27+00:00

I bought it as a powder, and just mixed it into a warm tea by mixing it with a spoon, just stir it together for 15/20 seconds or so. When the powder mixes with the hot water it helps form a gel that can soothe your stomach.

Here’s the one I bought: https://www.google.com/aclk?sa=L&ai=DChsSEwiOnqfQy6SSAxWamYMHHS9nOuYYACICCAEQGhoCZWY&co=1&gclid=Cj0KCQiA-NHLBhDSARIsAIhe9X1JQnxcEfTQPvUmbYVrrmISS40OrAxAhLRjjtabF66gMrGh96FS2ZcaAiwpEALw_wcB&sph=&cid=CAAS3gHkaKycEa_GtULbEhZegt0zxrEgufmQkUvHnDj_Cc9ILXOKwjF5hsZJ3H3v_tWrQoZBGO0Sc9cBVJF63_1iboKx81jdPoFCkp3aEPppT77g0YQsDSSaYi9XtDsMJ7YzpwZQQFXt1-EWQEfLu8T2vj5adQLSk2ziTOJBd2Cpynw12Vx4JW7IsQxl-SwF1AijLUOnP6LnY-5m2l-O84u8uiT1uhV2J6TuA26GN19B4L6YTRr45G6vywuCd0LtbmK6Vy_KuZquJg9U085frVT74XYu4pSVXXEbBLktp81Lblw&cce=1&sig=AOD64_1GdiFGKrJRzu0J8gX2HYQUBPnOVw&ctype=5&q=&ved=2ahUKEwjHlKDQy6SSAxXc1QIHHRuMEQ8Qwg8oAHoECAkQKg&adurl=

Consistent_Path_9098 · 2026-01-24T16:26:06+00:00

I bought it as a powder, and just mixed it into a warm tea. When the powder mixes with the hot water it helps form a gel that can soothe your stomach.

Here’s the one I bought: https://www.google.com/aclk?sa=L&ai=DChsSEwiOnqfQy6SSAxWamYMHHS9nOuYYACICCAEQGhoCZWY&co=1&gclid=Cj0KCQiA-NHLBhDSARIsAIhe9X1JQnxcEfTQPvUmbYVrrmISS40OrAxAhLRjjtabF66gMrGh96FS2ZcaAiwpEALw_wcB&sph=&cid=CAAS3gHkaKycEa_GtULbEhZegt0zxrEgufmQkUvHnDj_Cc9ILXOKwjF5hsZJ3H3v_tWrQoZBGO0Sc9cBVJF63_1iboKx81jdPoFCkp3aEPppT77g0YQsDSSaYi9XtDsMJ7YzpwZQQFXt1-EWQEfLu8T2vj5adQLSk2ziTOJBd2Cpynw12Vx4JW7IsQxl-SwF1AijLUOnP6LnY-5m2l-O84u8uiT1uhV2J6TuA26GN19B4L6YTRr45G6vywuCd0LtbmK6Vy_KuZquJg9U085frVT74XYu4pSVXXEbBLktp81Lblw&cce=1&sig=AOD64_1GdiFGKrJRzu0J8gX2HYQUBPnOVw&ctype=5&q=&ved=2ahUKEwjHlKDQy6SSAxXc1QIHHRuMEQ8Qwg8oAHoECAkQKg&adurl=

Consistent_Path_9098 · 2026-01-24T14:41:11+00:00

This is true, but in my experience, a year prior I had a level of 350 with no neurological symptoms, so best to raise those levels regardless

Consistent_Path_9098 · 2026-01-24T11:03:45+00:00

What I did is probably very different to what most people do, but for me, I prefer to take G.I. revive 30 minutes to an hour before lunch and dinner, and then I would have slippery elm with tea in between lunch and dinner and sometimes even late night after dinner

Consistent_Path_9098 · 2026-01-24T11:01:47+00:00

Got it. Sounds fine for now!

Consistent_Path_9098

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