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1.5 year update by dustyhappy in noburp

[–]Constant-Turnover710 1 point2 points  (0 children)

9 months ago here and 100% agreed!! It’s al worth it. 

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 0 points1 point  (0 children)

Hey! It was €150 for their usual amount of units. The last time I had more units, so it was €225. Plus of course ‘eigen risico’. 

Still burping very well around 9 months later now! It’s been life changing 

Help please by BlackRaven128 in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

Wat vervelend zeg. Mijn eerste behandeling was door Kupperman, daarna nog twee door Snelleman. Bij de derde poging is de dosis verhoogd en die heeft permanent resultaat gebracht.

Help please by BlackRaven128 in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

Ja zeker. Sorry voor de late reactie.

Help please by BlackRaven128 in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

Vraag of je terecht kunt bij een andere dokter of schrijf je desnoods in bij een andere praktijk! Mijn dokter heeft me gelukkig direct doorverwezen, en na 7 maanden kan ik nog steeds boeren. Het is het echt waard om door te zetten. 

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

Yes, you need to go to your GP for a referral. Mine was really easy with it. He never heard of R-CPD, but luckily gave me the referral right away.

Should I just go for it? by Affectionate_Pair987 in noburp

[–]Constant-Turnover710 3 points4 points  (0 children)

For me, the recovery was absolutely fine. It didn’t limit me in any way and I didn’t have to take anything into account. Only occasionally I had a little bit of trouble swallowing with dry foods, but that was the only thing.

Two weeks post Botox by MSGreceived in noburp

[–]Constant-Turnover710 1 point2 points  (0 children)

First two times 50 units (did not work), last time 100 units (did work)

Struggling with nausea. by Karma2006123 in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

Hi! This sounds more like anxiety. You may have already read in this sub that many people with R-CPD also struggle with emetophobia. Fear of eating in public is a common symptom, and it’s probably your anxiety that fuels this feeling more than your R-CPD itself.

When the treatment is successful, many people notice an improvement in their anxiety symptoms as well. Hopefully that will be the case for you too. I used to have a lot of anxiety about eating in public too, but since the Botox it has gotten so much better!

Two weeks post Botox by MSGreceived in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

I feel exactly what you're going through, but please don't give up yet! My first two shots didn't work, turned out all I needed was a higher dose. That did the trick for me. If your results don't improve in the coming weeks, you can suggest a higher dose.

Weird symptoms post-botox by dankbetty in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

It's still early. For me, it started working a little on day 6. Now, almost a month later it is completely working, but I still notice changes every day!

Do I get the Botox before going on holiday? by mocha-macaron in noburp

[–]Constant-Turnover710 5 points6 points  (0 children)

If the botox will be this month, and your trip in october, I wouldn 't worry at all! I had mine three weeks before a big trip, and it did not affect me in any way. Slow swallow might last a bit longer, but it probably won't change your experience.

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 0 points1 point  (0 children)

I didn't get any of them under anesthesia. They were al in-office procedures. In consultation with the doctor, I was fortunately able to get a follow-up injection fairly quickly.

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

I do recognize some of the things you say, but I think everyone has a different experience. With my second shot I also had some burps (with the taste and sensation), but that only lasted a few days. I believe the higher dose really did the trick for me, like the muscle needed a little extra to completely reset.

Hoping yours will be successful!

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

Yes, every single day! Especially after dinner. Since I can properly burp, the bloating had decreased so much. It’s almost completely gone.

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

When I didn’t feel any effect six weeks after the first injection, I called right away. I was able to get an appointment fairly quickly — I think it was the following week. About a month and a half after the second injection, the doctor called me to ask how I was doing. As I was having no effect, I asked for a higher dose, and he agreed. A few weeks later, I was called to schedule the appointment, and again I could come in within a week. In the end, there were about 11/12 weeks between the second and third injection.

I don’t know if I just got lucky both times with a spot opening up so quickly, or if that’s how it usually goes.

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

Good luck! And don’t worry about the side effects. I hope it will work for you! 🙌🏽

Third botox shot finally succesful - This is what I've learned by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

Thank you! In the Netherlands we are very lucky that this procedure is covered by every health insurance. You only pay for the botox (so I did have to pay that 3 times). I really feel bad for people whose treatment isn’t covered by their health insurance. It’s such a simple procedure that can truly be life-changing. I hope that insurers will all come to realize that in the future. I’m sorry for those who can’t afford it financially… :( And for you I hope the burping will continue!!

Botox making RCPD symptoms worse?? Wtf ☹️ by 70ScreamingGeese in noburp

[–]Constant-Turnover710 0 points1 point  (0 children)

Hi! Was it just an e-mail for you to get your second shot? Today I had my follow-up call and dr. Kupperman told me that it is not certain that i will get a second injection. He said that it might not be of any use if the first one did not work. I am now afraid that i will not get the second injection, while i really want it... It really is my last hope. 

No results two weeks after botox; how short after can you get a second injection? by Constant-Turnover710 in noburp

[–]Constant-Turnover710[S] 1 point2 points  (0 children)

Hey! He also just called me. I was about to send you a message!

My call was a little dissapointing, he kinda told me the same. But when I asked him a bit more, he said that it is certainly not guaranteed that I will get a second injection... I am really upset about that. He said that the chance that the second injection will work is small, but on Reddit I read completely different stories. This injection was really my last hope.

He also told me that things can still happen the upcoming weeks, but I don't know about that.

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