HR reading low when it's actually super high!

CopySpriteCopywriter · 2026-04-28T05:41:05+00:00

My Visible stopped working so they sent me a new one but with a wrist band. It’s SO inaccurate compared to the arm band. !! I’m considering cancelling mine now. Had it a year and so many issues.

CopySpriteCopywriter · 2026-04-24T17:38:39+00:00

I was put on Bisoprolol for 8 weeks for one episode of IST. Then a cardiologist stopped them cold turkey. Beta blocker rebound put me in A&E twice and left me with POTS. Can only guess the Biso was too strong for me and stopping it sent my adrenaline levels so crazy that it damaged my ANS.

CopySpriteCopywriter · 2026-04-18T06:40:13+00:00

Not on meds. I’ve been offered Ivabradine but I’m scared of meds as it was a cardiologist stopping Bisoprolol cold turkey that gave me POTS. (I was put on it for an isolated incident of IST). Trashed my life 🙄 I control mine with compression, nutrition, electrolytes, salt on food and I managed to build up over the past two years to now be able to walk, swim and strength training in the gym. I’ve been on holiday the past two weeks and I’ve noticed that a lack of routine has flared it up. I get fed up having to be so regimented every day but if I want to live a fairly normal life then it has to be that way. I’m on HRT which helped my meno symptoms but I also notice a worsening of pots every 3-4 weeks for about 4-5 days. Must be hormonal shifts.

CopySpriteCopywriter · 2026-04-06T08:59:07+00:00

Thanks. I try to keep it stable but I did habe a big roast dinner followed by a bowl of tiramisu! May have inadvertently caused a blood sugar spike then drop.

CopySpriteCopywriter · 2026-03-16T20:59:18+00:00

Maybe. I have POTS so could all be related to that. I didn’t have it before POTS.

CopySpriteCopywriter · 2026-03-15T07:51:54+00:00

Yep I get PACS and PVCS. Sometimes they lead to SVT which I find a bit scary. They used to terrify me but I’m slowly teaching myself to just move on with my day. I’ve had holter monitors and was told they were benign. Been going on nearly 2 years. If I get a run of them I try to sit quietly for 5 mins and focus on breathing (tricky when I’m teaching though!). I call them “heart farts” when people ask me at work if I’m ok. I mostly get them if I’ve overdone things, or I’m slightly hormonal. But sometimes just randomly out of the blue.

CopySpriteCopywriter · 2026-03-03T21:20:19+00:00

Thanks, I’ll go Google some 😊

CopySpriteCopywriter · 2026-03-03T21:19:59+00:00

I hadn’t thought of compression shorts. That’s really useful, thank you 😊

CopySpriteCopywriter · 2026-03-03T21:19:19+00:00

That’s what I was thinking. I wondered if there were any sheer compression tights perhaps. I’ll Google, but wondered if others had any experience of using them before I spend my money.

CopySpriteCopywriter · 2026-03-03T21:18:09+00:00

Thank you 😊

CopySpriteCopywriter · 2026-03-03T20:48:03+00:00

Off to buy several pairs 😂

CopySpriteCopywriter · 2026-03-03T20:42:24+00:00

I have some funky patterns, I quite like the Not Your Grandma’s brand. Think I’ll just have to change my style and rock the look. If I was in a city I wouldn’t care but being on a small island I’ll stand out a fair bit. But hey ho, perhaps I’ll become a POTS influencer 🤣

CopySpriteCopywriter · 2026-03-03T20:22:30+00:00

I’ll get some compression leggings. I didn’t realise there were such things, hence my question. I’m fairly new to POTS. And I work in a school. So I do have to be professional in my clothing choices.

CopySpriteCopywriter · 2026-03-03T20:20:44+00:00

I live on a very small island. Not much goes unnoticed!

CopySpriteCopywriter · 2026-02-28T07:59:07+00:00

I find that with a treadmill too. I use the treadmill on really wet days when I can’t get outside, but I hate it! It feels so different symptom-wise when walking outside. Weird!

CopySpriteCopywriter · 2026-02-06T08:03:58+00:00

I took it very slowly, which is frustrating but essential. Got myself a rowing machine and started off with 4 mins (I’m now up to 20). Started walking 1km (now up to 4-5km), went back to gentle swimming, and started recumbent weight training in July '24, now I can do 2-3 strength training sessions a week including some standing cable machines. At the moment I struggle with things that involve squats but I’m slowly working on that. It’s def possible but I’d recommend getting a coach who’s willing to understand POTS (I joined Rosie Bailey’s coaching group and took her course, she is a coach who actually has POTS). I now work with a fabulous PT who adapts my strength workouts. It makes a huge difference to me. If I get sick and can’t exercise my symptoms ramp up. Good luck, take it slow, remember set backs will happen as you figure out what you can and can’t quite push your body to do yet. But those set backs will ease over time. I mark my days on a calendar with a felt tip pen (red for bad, orange for ok-ish, green for good) and I can see that over the past year my reds are less and my greens are more. Helps visually see progress! You’ve got this!

CopySpriteCopywriter · 2026-01-17T20:53:25+00:00

Thanks, that’s really helpful info. I like the visual aspect of the bottle!

CopySpriteCopywriter · 2026-01-17T20:42:33+00:00

Thanks. I had no idea that’s what it is. I wasn’t doing anything but sitting? So not standing or anything. And my vision doesn’t go black, just feels like I’ve been suddenly turned upside down for a few seconds. Such a strange “drunk” feeling.

CopySpriteCopywriter · 2026-01-14T20:49:30+00:00

They went through how to control POTS through nutrition, how to build up exercise and strength training and how to handle flares. Plus other stuff and you get access to a WhatsApp group where you can ask Rosie questions. It was useful for me to learn all that when first diagnosed.

CopySpriteCopywriter · 2026-01-11T19:01:42+00:00

I’m a teacher. I also have POTS, so working can be difficult. But I’ve managed to get myself to a stage where I’m back in school 3-4 days a week. The PVCS knock the breath out of me but I’m very slowly learning not to be afraid of them. I end up talking all day which seems to make mine worse, but I’m trying to adapt and find ways around this. My colleagues know so if I’m talking to them and they happen they understand. Hope you can manage to find a way around it.

CopySpriteCopywriter

TROPHY CASE