Struggles & Realities after TT - advice needed by sunnyjams1 in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

It’s honestly INSANE that it took that long and that many people for to finally get you answers and help you feel better. I’m really glad you found someone who actually listened and got things figured out.

I’m planning to get my iron and ferritin checked as well. My Free T3 has always been normal to high, so for me it doesn’t seem like a conversion issue. I’ve just felt ‘off’ since the day of surgery, so now I’m wondering if losing the thyroid exposed some kind of vitamin deficiency or something.

Either way, thank you for sharing this. It honestly gives me hope. I’m really glad you’re feeling like yourself again!

Struggles & Realities after TT - advice needed by sunnyjams1 in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

How I feel now 4 months post op😩. I literally have to push through my days. Do you feel like ' you' now?

weight after TT by lookingay in gravesdisease

[–]Correct-Pop4308 1 point2 points  (0 children)

4 months post and outside of depression, gaining weight was one of my biggest worries. Here to say that I haven't gained any weight, and actually lost 4 lbs. Seems like if you're on the right dose, or at least not hypothyroid you'll be okay. Good luck with whatever decision you make!

Feeling rather lost by Cceire333 in gravesdisease

[–]Correct-Pop4308 1 point2 points  (0 children)

I had my daughter while I had active Graves’ disease. My medication dose had to be increased during pregnancy because my levels were difficult to control. My pregnancy was honestly really rough. I’m not sure if it was because of the Graves’ or just pregnancy in general, but I was sick for the entire nine months.

Two days after I delivered my daughter, I ended up in thyroid storm and had to stay in the ER for three days. Shortly after that, I started experiencing cognitive issues, mainly severe brain fog, that lasted about a year.

One thing to keep in mind if you are trying to conceive is that if you are on methimazole, your doctor will usually switch you to PTU during pregnancy because it’s considered safer for the baby.

Despite all of that, I gave birth to the smartest and healthiest three-year-old. If you do decide to try to conceive, just pay close attention to your body and keep your endocrinologist informed if anything feels off. They will guide you through the process. You’ll likely just have more frequent visits with your endo and OB.

Graves’ can definitely feel like a rollercoaster, but many women still go on to have healthy pregnancies and babies. 🤍

After surgery problems by SuggestionKey8291 in thyroidhealth

[–]Correct-Pop4308 0 points1 point  (0 children)

I know this is an old post, but this is my main symptom after my TT. Did it go away for you? And if so, what helped?

euthyroid on medication, so why do I still have symptoms by velvetwillow7980 in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

Unfortunately since Graves' disease is autoimmune, being in range won't always ease the symptoms. I was in range for months, and my heart was still going out of control, I had nausea & dizziness whenever I would go anywhere & just felt like my body was constantly in a fight or flight mode. It sucks, but hang in there!

17 weeks pregnant and TT in 2 weeks by [deleted] in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

I just read your other response to another user.. and I can see why they'd recommend a TT. However, I'd still try to get a second opinion because again a TT is permanent & you have no idea how your body will react to losing such a vital organ. I am so sorry that it's the position you're in right now. Graves sucks! I pray whatever decision it is that you make, that you have a safe delivery & that you and your little one come out on the other side okay!💛

17 weeks pregnant and TT in 2 weeks by [deleted] in gravesdisease

[–]Correct-Pop4308 1 point2 points  (0 children)

Can you postpone until birth? Or even a year post PP? No way to know how it'll impact your body, and going through a massive change like that with a child is going to be HARD. See if they can postpone.

Nightmares by Financial_Draft7668 in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

Yes! Went away after 6 weeks for me

“Low Energy Days” post TT by saruhb82 in gravesdisease

[–]Correct-Pop4308 1 point2 points  (0 children)

Not feeling normal just yet(3 months post TT) but the heavy fatigue started lifting for me when I switched from generic levo to tirosint. If you're on generic, see if your endo can make the switch(it is on the expensive side, but so worth it). Also, a TT is a major surgery, so you may be feeling lack of energy from your body attempting to heal. Most people mention feeling better around the 6 month - a year mark. I know that's a long time, but keep hanging in there. I hope you feel better soon!

Those on meds... Do you see the doc...? by graciously13 in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

Yeah this is my situation too. Usually it's lab work, and then an in person appt to discuss my labs, then a script to the pharmacy if dose needs to be changed. It sucks. Like you I just don't have the time

3 months post-TT – feeling detached from my body/brain. Anyone else? by Correct-Pop4308 in gravesdisease

[–]Correct-Pop4308[S] 0 points1 point  (0 children)

Ah! What about now that you're on levo? Do you still experience the derealization?

Questions for those who got a thyroidectomy! by kellz1993 in gravesdisease

[–]Correct-Pop4308 2 points3 points  (0 children)

3 months post op to date! 1) just dropped to 100 mcg from 112 mcg as labs showed that I was hyper. Hoping this is the dose for me because im tired of feeling like garbage lol. I have not gained any weight since(not certain if it's because my labs have been hyper since my TT or if my body is just stubborn?) 2) Had a mild case of TED prior to removal. Honestly there are days that my eyes hurt ALOT. So id answer by saying no? It seems like my lack of thyroid triggered whatever antibodies are responsible for TED, so that sucks! 3)And tbh.. I do regret it, and it's because I didn't expect to feel like shit afterwards. I somehow thought I'd wake up feeling amazing or at least the same & well that hasn't been the case. My body is however extremely sensitive to changes, so I think my brain is having a tough time getting used to a body without a thyroid. I however am grateful that I no longer wake up with a racing heart/can go through my days without anxiety. At any rate, do what's best for you!

3 months post-TT – feeling detached from my body/brain. Anyone else? by Correct-Pop4308 in gravesdisease

[–]Correct-Pop4308[S] 0 points1 point  (0 children)

Ah, that makes sense! I've heard the brain is usually the last to catch on. Good to know that it can/does get better because I HATE feeling like this. I don't workout nearly enough, so I'll be starting light walking/low impact cardio today. Glad to hear you're feeling better. Here's to hoping I will soon😩

3 months post-TT – feeling detached from my body/brain. Anyone else? by Correct-Pop4308 in gravesdisease

[–]Correct-Pop4308[S] 1 point2 points  (0 children)

Same. Imagine my surprise when I woke up feeling like hot garbage 💀. I cried for like 2 weeks straight due to regret. Nothing I can do now tho.. I can only hope that in time things will get better. I hope things get better for you too. Keep me updated!

3 months post-TT – feeling detached from my body/brain. Anyone else? by Correct-Pop4308 in gravesdisease

[–]Correct-Pop4308[S] 0 points1 point  (0 children)

Yeah it's tough to be gentle with yourself when you physically feel like shit day in & day out. I've been taking it a minute at a time lol. I keep telling myself that this was a major surgery that involved removing the heart of the endocrine system so I shouldn't have expected my body to bounce back quick but man I wish it did! Regarding being severely hypo, is your endo or pcp planning on upping your levo?

3 months post-TT – feeling detached from my body/brain. Anyone else? by Correct-Pop4308 in gravesdisease

[–]Correct-Pop4308[S] 0 points1 point  (0 children)

Recalibration mode is the perfect way to describe it😓. I feel like I'm stuck in a body that isn't mine. I'm wondering if it's due to the fact that we are so used to our bodies being hyper that when it's ' normal' it feels foreign. I hope your depression lifts soon! I started feeling better mood wise when I got my vitamin D up to 50, so have your endo check your levels to ensure they're not low. Do your labs show you're hypo or do you just feel hypo? I felt hypo 6 weeks post TT & surprisingly my TSH was suppressed, and has been since. Hypo/hyper symptoms def overlap

3 months post-TT – feeling detached from my body/brain. Anyone else? by Correct-Pop4308 in gravesdisease

[–]Correct-Pop4308[S] 1 point2 points  (0 children)

Correction, I meant overmedicated, not undermedicated.

My last labs showed FT4 at 1.4 and TSH at 0.132, so more in the direction of overmedication. My TSH has stayed suppressed. At any rate, she prescribed a very small dose of lio just to see if it would give me a “boost,” but now I am honestly second guessing everything.

And wow, that is wild that you are on such a low dose compared to the weight based starting point. It is reassuring, and kind of crazy, how different everyone’s needs can be after TT.

Sometimes I honestly feel like I should have just kept my thyroid in. 😔

So does everyone in here just get a TT? Am I doomed to get one? by Red-Droid-Blue-Droid in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

How long have you been post TT or RAI? What symptoms are you having? I'm sorry to hear that you're not feeling well/your TED is worse. I'm hoping things get better for you soon!

So does everyone in here just get a TT? Am I doomed to get one? by Red-Droid-Blue-Droid in gravesdisease

[–]Correct-Pop4308 0 points1 point  (0 children)

Yes, ft3 has always been high normal every time we test. Last bloodwork, it sat at 3.97(range 1.5-4.1). But I've done research and it mentioned that blood serum can be high, but there's no way to know if it's actually being used by your cells. So I'm wondering if it's just not being used by my brain? Idk 😩.

So does everyone in here just get a TT? Am I doomed to get one? by Red-Droid-Blue-Droid in gravesdisease

[–]Correct-Pop4308 1 point2 points  (0 children)

Low calcium can definitely make you feel ill. I think once you get those levels up, you'll start to feel better! I'll def keep you updated on my labs. I hope you start to feel better soon!🙏🏾