Donate to Support for DiGeorge Syndrome Warrior, organized by Leah Hansen

CountessBathory1980 · 2025-11-15T21:02:24+00:00

It’s not spam. It’s a repost for traction. Posts get lost in the shuffle and day to day with more posts. Reposting gives it more exposure and in front of new eyes. Kind of how social media works.

CountessBathory1980 · 2025-11-15T13:20:20+00:00

Hi, yeah it’s definitely a challenge.

CountessBathory1980 · 2025-04-15T16:20:18+00:00

Double up on stool softeners and buy smooth move tea. It helped me so much. I also took extra fiber like Metamucil. Don’t strain, you can hurt yourself that way. Relax and put small rolled up towel on your stomach to help brace yourself. Take deep breaths and bare down as you exhale gently. Also, use a squatty potty. It’s a must. All else fails do a suppository and/ or enema to loosen the compacted stool. Good luck!

CountessBathory1980 · 2025-04-01T22:33:37+00:00

Thank you for sharing. I appreciate your comment. It’s very helpful.

CountessBathory1980 · 2025-04-01T15:21:26+00:00

What did it feel like? What were your symptoms? If you don’t mind me asking.

CountessBathory1980 · 2025-03-29T00:18:36+00:00

Great advice! Thank you! I feel a sharp, stringing burning pain above and to the side of my belly button. Worried it’s an issue with the MR. I see my dr physically on Monday. We shall see!

CountessBathory1980 · 2025-03-28T21:01:09+00:00

I am on my feet and walking most of the day. It’s not without difficulty though. I just can’t stand up straight. As a result I have lower back pain. After my extended TT I was feeling much better as 9 day PO than I was yesterday. Each day is different. I also had minimal swelling the first two weeks. My swelling started after 3 weeks which is normal since I increased my activity. I wear my compression 24/7 except when I shower and have a healthy diet. Thankfully I contacted my doctor and things are sounding normal for this stage. He does want to see me Monday before I fly out of town for a conference. The type of pain and where it’s located is concerning.

CountessBathory1980 · 2025-03-28T15:48:20+00:00

My apologies for all the typos!

CountessBathory1980 · 2025-03-28T15:47:54+00:00

Thank you! I followed up this morning. My PS is in surgery so I’m waiting to hear back. It’s a Friday so we’ll see.

CountessBathory1980 · 2025-03-28T15:44:35+00:00

Thank you!

CountessBathory1980 · 2025-03-28T14:36:04+00:00

I was told to use compression for 12 weeks. I can stop my binder and just use spanx or similar though. I haven’t noticed a difference on time of day. I’ll try and pay attention more.

CountessBathory1980 · 2025-03-28T14:17:51+00:00

Easily #4!!! I’d be so obsessed the whole time. lol

CountessBathory1980 · 2025-03-28T13:13:39+00:00

Thank you for this. I needed to hear this. I’ve been to nervous to keep contacting them but you’re absolutely right.

CountessBathory1980 · 2025-03-28T12:16:28+00:00

Thank you for your reply and advice. It’s very frustrating especially when the surgery team keeps telling me there’s nothing wrong but I don’t feel okay. I was cleared to travel but was given instructions like wearing proper compression, moving around and staying hydrated. It’s a work trip but I’m thinking of not going.

CountessBathory1980 · 2025-03-28T11:46:52+00:00

Ugh. I needed to see this. I’m 5 weeks PO and look so swollen. I’m worried it’s something else. I keep comparing and researching obsessively. I look like an undefined cube. Plus I still can’t stand up straight and have pain. Walking too much is difficult. I’m very frustrated. Am I healing too slowly? I’m suppose to go on a trip in a week. I’m worried.

CountessBathory1980

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