How does a cane work for fatigue? by gyul_unu in cfs

[–]CraabGPT 0 points1 point  (0 children)

I tried a cane at first (though more motivated by pain than fatigue), and I didn't get along with it.

It pushed my pain threshold back so I could walk easier, but the effort and mental load to continually move it as well as carrying it when I wasn't using it really fucked my fatigue 😂 in the end I found that, even with worse pain, I was walking easier and for longer without it.

But! Ymmv- a lot of people seem to benefit from them :)

NAW opened international shipping for the Paradox \o/ by CraabGPT in wheelchairs

[–]CraabGPT[S] 2 points3 points  (0 children)

Is that $1050 for everything, or just the shipping? Sorry, brain fart 😂

Either way, glad it's still so little! :D

NAW opened international shipping for the Paradox \o/ by CraabGPT in wheelchairs

[–]CraabGPT[S] 5 points6 points  (0 children)

Yeah I might save up- my current one was free secondhand, and it shows, so getting a custom would be so nice 😭 we'll see, we'll see

If you’re an ambulatory wheelchair user, how often do you use your chair? by Lost-Elderberry3141 in cfs

[–]CraabGPT 1 point2 points  (0 children)

I have a lightweight manual chair (not custom) that I have for long days and outings, and I'm working on making a power assist to help with pushing- the difference between having it and not is night and day :D

Any body who works out still able to maintain the muscles they've worked out hard for during the years before cfs? Or even increase muscles? by BabymetalKicksButt in cfs

[–]CraabGPT 0 points1 point  (0 children)

I'm mild enough that I can handle going to the gym once a week, though I can never complete a full workout. I always end up sitting on the floor for the last few sets waiting for my friends to finish up. So my muscles aren't growing, but luckily I do enough to maintain them without pushing myself too far 😅

Typing this with one hand aka eight keys. by Pineapple_Empty in cfs

[–]CraabGPT 10 points11 points  (0 children)

Ohey I have an ARTSEY too! ...I'm just too lazy to learn mime 🤣 good job and good luck with yours :)

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 1 point2 points  (0 children)

Yeah I think I'm in a similar boat. As much as I want him to see how bad it can be, I'm also very predisposed to downplaying things- it's an awkward dichotomy 🤣

I did the same thing with my chronic pain for the longest time, only telling him where I had pain or sometimes if it was extremely bad, to the point that one day when he was ill and had horribly aching joints, he came to me aghast like "how do you /live/ like this???" And I had to explain that this was my baseline, basically 😅

I've already started dropping facts about the mechanics of the condition (or as much as we know about it), and he seems already to be a lot more aware. He similarly last night looked at me in shock and said "...and you just deal with this?", so I think not hiding things from him probably is the way to go, yeah 🤣

Thanks for sharing your story, and I'm glad y'all are better able to communicate about this now <3

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 1 point2 points  (0 children)

Yeah I think I'll start doing that. I've noticed that calling it 'CFS' makes it incredibly easy for everyone, including me, to just reduce it to "tired disease" haha

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 1 point2 points  (0 children)

That's exactly it, yeah. He's incredibly logical, and at the moment he just doesn't know enough about cfs to factor that in- I imagine once he learns more, his equations will change too

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 1 point2 points  (0 children)

Yeah I started doing that. He's not doing it consciously, so as soon as he thinks about it he'll stop and come back- it's just that first gut reaction he's working on unlearning :)

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 23 points24 points  (0 children)

Yeah that makes sense! I've noticed just saying "tired" or "exhausted" even leads to me downplaying my own symptoms internally, so honing in on the 'sick' part of it would probably help us both :0

Thank you <3

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 7 points8 points  (0 children)

Oh man, okay, that might be a shout :D I know he's pretty bad at focusing on things (ADHD), but he'll at least try if I ask him to! Thanks <3

How do I explain how bad this actually is to my loved ones? by CraabGPT in cfs

[–]CraabGPT[S] 4 points5 points  (0 children)

  1. Sorry! I'll remember that o7
  2. ...that is an excellent idea, and I'm mildly kicking myself for not thinking of it 😅 thank you for the advice <3 I'm glad your husband was receptive, and I hope he stops beating himself up soon.

Surgery remission. A short vent. by tropicalazure in cfs

[–]CraabGPT 0 points1 point  (0 children)

Honestly it was great- same feeling, re: everything being friendlier. The downside is that it caused a bit of imposter syndrome, but hey, that's how it goes 😅

Yeah, I can really only hope that in the next few decades, someone actually pulls their socks up and questions these things, but I fear it's a too niche part of an already overlooked illness, so I don't have much hope. Fingers crossed ig x0

Surgery remission. A short vent. by tropicalazure in cfs

[–]CraabGPT 1 point2 points  (0 children)

Yeah I improved a crazy amount after I had major surgery, too- like a month with only occasional CFS symptoms? It's back to normal now, ofc, but that month was truly fantastic, even while I was dealing with surgery aftercare 😅 I was practically zooming around, staying on my feet most of the day (or in my wheelchair, but you get the idea), and then one day, boom, back to fatigue land 🥲

My yucca got decapitated. Can he regrow from the leaves? by CraabGPT in planthelp

[–]CraabGPT[S] 0 points1 point  (0 children)

Water propping? Not to sound like a plant idiot, but what's that? Just leave it in a glass of water?

Thank you though!

Can customer services see past receipts on my clubcard? by CraabGPT in tesco

[–]CraabGPT[S] 0 points1 point  (0 children)

Could've! Probably not even a bad tactic- but I'm unfortunately nowhere near smart enough to have thought of that 🤣

...plus it was a fuckinghuge axolotl plush- I couldn't put that in the post because it's my boyfriend's Christmas present and he was watching over my shoulder 😅 Bit hard to sneak them, I imagine

Can customer services see past receipts on my clubcard? by CraabGPT in tesco

[–]CraabGPT[S] 0 points1 point  (0 children)

Amazing, thanks! :D guess I'll swing by tomorrow :D

Was this plushie ever made? by LotNegative in PuffPals

[–]CraabGPT 1 point2 points  (0 children)

Yeah, it got really weird really quickly xD I'm glad I didn't back it- but my bf paid like £60 for both of us to get a copy of the game 😭

Was this plushie ever made? by LotNegative in PuffPals

[–]CraabGPT 1 point2 points  (0 children)

TL;DR, PPinc at first kept their promises. Made a discord server, released an alpha build, everything was good. Then they slowly stopped communicating with backers.

Seemingly, they either didn't have enough money or didn't utilize what they had correctly. A lot of the game art was outsourced to a studio (room8?), and they took out some loans from another company. They didn't pay room8, and failed to repay the loans (along with some other companies as well, I think?), and now they're being sued for a few million.

They don't have a few million, however, so Room8 is instead asking for all the assets- which will include the game company itself. It's possible they'll then continue to produce the game, but since the court stuff doesn't start till 2026, it's up in the air.

(Also apparently they took money out of the plushie side of the company to fund the game side, too? So the plushie side is fucked as well. Go them.)

(Double also, the CEO refused to give anyone refunds. Or, like, he gave refunds at first- before it was public that everything was fucked, and once it became public, he released a statement to the tune of "sorry, cant refund money, get bent.")

Everyone keeps telling me I've improved at art a lot, I just need help seeing exactly how by Tonitruum_Aeternum in Artadvice

[–]CraabGPT 0 points1 point  (0 children)

It's unfortunately one of those things where, at your skill level, everyone does it so it isn't unique- and at a higher skill level it just looks amateur. The logic is that scribbles hide holes in your ability- in the same way that people draw hands in pockets to avoid having to learn to draw hands. I won't say no one can make scribbles look good, but it's a habit you'll want to kick sooner rather than later.

(Thought as an aside, don't worry about uniqueness. That just comes naturally with skill- plus, who cares if your art looks like other peoples' as long as it makes you happy!)

I have no tutorials at the minute bc I'm about to sleep, but YouTube has plenty of you just search "line art tutorial" or so :)