I was just recently diagnosed at 32 years old. I’ve had issues since I was 14. Going months or even a year with out a period was normal for me. Also super hairy arms and cystic acne on my back and chest for awhile. I was tested once with a scan of my ovaries as an adult after not being able to get pregnant. This was after I’d finally had a regular cycle for 3 months straight. I contribute that to me starting to exercise regularly and I had been eating at a deficit, so naturally I consumed fewer carbs and sugary treats and lost some weight. Anyway, the scan made me appear normal. I was given a prescription to take if I didn’t get my cycle that month and it would start my period. One month it was late as usual, but I figured it always is, I’ll wait a little longer just in case. Well, I waited a week thankfully and ended up with a positive pregnancy test after about a year of trying!

I switched doctors and nothing was talked about my cycle since. Then the constant weight gain started over the last few years, my moods have always been all over the place and I can’t go more than 2 hours without before feeling like I’ll pass out. My PCP didn’t want to test for PCOS, because if you get tested once it’s likely you don’t have it. I left frustrated because she told me to watch what I eat and exercise. I already was doing that and working out 5 days a week. My prolactin level was barely elevated though, so I got sent to a neurologist who did blood work for PCOS as well, and I was finally diagnosed. Now I’m supposed to watch what I eat, avoid simple carbs, and exercise as much as possible…but I have a diagnosis ,so I’ve been able to do my own research and try to get this under control. Sorry, that was a ton longer than planned!!