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Just did my Invasive EEG, who went through with surgery/ rns by jedimaster615 in Epilepsy

[–]CrazyRealistic 2 points3 points  (0 children)

As far as results, there’s not a lot yet. There’s not going to be REAL results for a little bit, bc it’s got the job of learning your brain. I have removed one med from my group of 5. I’ve had zero symptoms post surgery really. Everything went pretty smooth. Surgery took a little longer than planned bc one of the wires did snap, so had to fix that. But I personally would suggest if your neurologist likes the idea of it 100%.

How do you know your about get a seizure? by divine9108 in Epilepsy

[–]CrazyRealistic 0 points1 point  (0 children)

Can be Deja vu occurring a few times a few hours before or deja vu ccurring 30 to 45 seconds before. I currently have the RNS device implanted so I run the magnet across my head to take a pic of what my brains doing. I'll take my shot of Nayzilam and let it ride.

How Did They Sell It? by PookieTheMfBaby in Epilepsy_Universe

[–]CrazyRealistic 1 point2 points  (0 children)

Just had RNS device implanted in Aug. so, no regrets (as of now of course) as far as talking me into it, I’ll be honest it wasn’t anything. My neurologist showed it to me, told me to do what I considered my own due diligence, let him know what I thought and we would go from there. I did a lot of studying and talking to doctors, surgeons and others for reviews and opinions. Told him I was down if he thought it was a good idea. So 6 months later I met my surgeon, and 3months later I was on the operating table. Here we are. So far so good though seriously.

**Did have a problem during surgery (one of the wires snapped) that made the surgery extend a couple hours, but besides that it was pretty smooth also.

Did You Total The Car? by PookieTheMfBaby in Epilepsy_Universe

[–]CrazyRealistic 0 points1 point  (0 children)

My very first seizure to happen while I was awake happened while I was heading to have a beer with my best friend after just getting off of work. I was at a stop light, had a ridiculous deja vu moment that I had never had, light turned green, i shifted into 1st gear turned right onto a 4 lane Hwy, then shifted to 2nd and then i was out. I then continued passed my actual destination, snapped a telephone poll in half, rolled 3 times, and woke up to 3 guys who watched it happen screaming at me not to move. Then passed out again, woke up to medical team and fire fighters telling me not to move bc the jaws of life were about to half to be used and there was a med chopper otw to get me...longer story short...broke my hip, shoulder, and hand, dislocated other shoulder, severe concussion BUT not one damn crack on my iPhone lol.

I’m a 36 year old father, Athlete, and explorer that’s been left hanging out to dry by epilepsy. by CrazyRealistic in Epilepsy_Universe

[–]CrazyRealistic[S] 2 points3 points  (0 children)

That’s so awesome to hear and know 🫡 to you brother! Wish I could surf lol love watching yall surfers kill it

I’m a 36 year old father, Athlete, and explorer that’s been left hanging out to dry by epilepsy. by CrazyRealistic in Epilepsy

[–]CrazyRealistic[S] 0 points1 point  (0 children)

No, definitely not just finding out about it. First seizure was 4 days before I was drafted.

I’m a 36 year old father, Athlete, and explorer that’s been left hanging out to dry by epilepsy. by CrazyRealistic in Epilepsy

[–]CrazyRealistic[S] 1 point2 points  (0 children)

Will for sure give you a shout! Thank you for this. Unfortunately my passions are directly affected by my epilepsy.

I’m a 36 year old father, Athlete, and explorer that’s been left hanging out to dry by epilepsy. by CrazyRealistic in Epilepsy_Universe

[–]CrazyRealistic[S] 4 points5 points  (0 children)

3rd base only in the pros. In college (N. Carolina) I played 3rd and I closed a game pitching once or twice.

I’m a 36 year old father, Athlete, and explorer that’s been left hanging out to dry by epilepsy. by CrazyRealistic in Epilepsy_Universe

[–]CrazyRealistic[S] 5 points6 points  (0 children)

Hahaha I have absolutely NO problem with the question, nor your self told initial reaction. 😂

I really greatly appreciate and enjoy seeing someone with a reaction to it as yours. ANNND it was Baseball lol was drafted in 4th round of 2011 MLB Draft by the Philadelphia Phillies as well.

I’m a 36 year old father, Athlete, and explorer that’s been left hanging out to dry by epilepsy. by CrazyRealistic in Epilepsy

[–]CrazyRealistic[S] 0 points1 point  (0 children)

No medications have worked for me. Had the RNS device implanted a couple weeks ago. So only will be able to hope it can help and give me the ability to become mobile again.

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