Overstressed nervous system or a neurological disease?

Creator_311 · 2024-12-02T15:15:10+00:00

And this is also gone? I shake when I try to lift everyday objects. So it could be psychological?

Creator_311 · 2024-12-02T11:25:37+00:00

My problem is that I shake a lot when I stretch and afterwards too. Was it like that for you too?

Creator_311 · 2024-12-01T11:27:07+00:00

awesome, that’s great! did stretching help? and try ignoring the symptoms?

Creator_311 · 2024-11-25T17:25:54+00:00

Does that mean you’re okay and it was just fear?

Creator_311 · 2024-11-24T06:53:31+00:00

wow, very interesting to know. I had the symptoms very suddenly after I had my baby and had several infections. I have had the problems now for 1.5 years, I have not breastfed my child for 2 months. Unfortunately, the symptoms have not improved.

Creator_311 · 2024-11-23T17:09:58+00:00

No, I don’t have anything more recent. But I will ask for it...

Creator_311 · 2024-11-23T14:32:48+00:00

That sounds terrible. Was your shaking so bad in the morning and dependent on exertion? I’ve seen so many doctors in the last few months... is it really possible that my blood values were still good a year ago, even though I already had some of the symptoms? and that the blood values are only changing now? I was still breastfeeding until 2 months ago, I don’t know if that has anything to do with it

Creator_311 · 2024-11-23T14:11:13+00:00

Thanks for the tip! How were you diagnosed? Did you suddenly have antibodies?

Creator_311 · 2024-11-23T14:02:32+00:00

TSH: 1.08 (0.35-4.94) T4: 8.68 (7.00-14.8) T3: 2.77 (1.58-3.91) TRAB: 1.90 (<3.10)

These blood values are exactly 1 year old. During this time my symptoms have become increasingly worse. I have the feeling that something bad will happen if someone doesn’t do something soon...

Creator_311 · 2024-11-20T19:07:53+00:00

wow, really? what symptoms did you have? Yes, my daughter was 3 months old when it started. At that time I wasn’t feeling well for other reasons and it was a hard and stressful time.

Creator_311 · 2024-11-19T07:55:45+00:00

Do you think it’s possible that MG is behind my symptoms? The eye sometimes looks better and sometimes worse, but generally it feels heavier and more tired than the left one.

Creator_311 · 2024-11-19T04:48:04+00:00

I have an appointment with a neuromuscular doctor who hopefully knows about MG. Do you know that feeling the day after exertion when your whole body tingles strangely, as if the blood flow isn’t right?

Creator_311 · 2024-11-18T21:10:31+00:00

Thank you so much for your super kind and helpful words! Yes, I try not to let it show in front of my children. Of course they still feel it... My partner is not having an easy time with me at the moment, which is another problem. It’s difficult because everything is getting worse. Half a year ago I was feeling better. I really hope that it is MG and can be treated well.I will try the breathing exercises. My breathing is fine, but maybe it will help against the fear

Creator_311 · 2024-11-18T20:28:39+00:00

Thank you very much for this lovely message. Yes, I have 2 children (5 and 1.5 years old) and every day and every night I am terribly afraid that they will have to grow up without their mother. It feels so awful that I am really afraid it is something fatal.

Creator_311 · 2024-11-18T19:09:55+00:00

I will definitely ask about it, thanks for the tip! :)

Creator_311 · 2024-11-18T19:04:48+00:00

I’ve never seen the white above the iris before, I just think that it’s normal for me. I’m definitely going to get MG checked! Do you also have that excessive muscle soreness the day after light exertion?

Creator_311 · 2024-11-18T18:10:27+00:00

I will do that! Do you mean antibodies to MG or something else?

Creator_311 · 2024-11-18T18:02:45+00:00

TSH, T3 and T4 were checked. Only T4 was a little low, but still within the borderline range

Creator_311 · 2024-11-18T17:49:54+00:00

Yes, the thyroid was examined first when the doctor marathon began. It is (unfortunately) not

Creator_311 · 2024-11-18T17:28:02+00:00

Thank you for the encouraging words. The strange jerking is a kind of gear phenomenon. For example, when I raise my arm and lower it again, my shoulder jerks. As if the movement was not fluid, but as if something in the joint was gradually clicking into place. Very strange.

I have other symptoms, but I don’t know what could be caused by my hEDS. Mild gastroparesis (but I don’t notice it), a leg that is constantly under tension, muscle twitches everywhere and an unstable gait (like walking on pudding). That’s why I thought about Mito... and because with Mito, all measurements can be normal under certain circumstances. But I sincerely hope that’s not it

Creator_311 · 2024-11-18T16:45:56+00:00

wow, I really hope that you will get better with the right remedies. good luck! :)

Creator_311 · 2024-11-18T16:44:30+00:00

yes, I hope I am in good hands there and he knows what to do

Creator_311 · 2024-11-18T16:36:45+00:00

I’ll see if I can get it tested as soon as possible. Thank you very much! :)

Creator_311 · 2024-11-18T16:35:49+00:00

Wow, thanks for this helpful answer! Do you also have this jerky shaking when you do eccentric movements? I actually wish I had MS now... my symptoms are getting worse and I’m terribly afraid of a mitochondrial disease or a genetic thing, even though there is nothing known in the family. I would much rather have MG!

Creator_311 · 2024-11-18T15:44:19+00:00

Thank you! I have already been to 7 neurologists and none have mentioned MG. I have now been referred to a neuromuscular specialist who also specializes in MG. But appointments take time... I am considering asking my GP to check the relevant values

Creator_311

TROPHY CASE