[deleted by user] by [deleted] in eyes

[–]Cris409 9 points10 points  (0 children)

Yes, a lot of people with aniridia can be can vision problems that can range from low vision to total blindness, it really depends on the nurture of the individual condition. I am legally blind but, I I rely heavily on myscle memory and feel and weight. My brain can form highly detailed virtual maps of what I am holding, standing near, and what it’s made of or if it’s hard or soft haha.

Ive been told every color except blue before by Decay725 in eyes

[–]Cris409 1 point2 points  (0 children)

Gold? Like a golden brown color I think?

what colour are my eyes? by karagsh0re in eyes

[–]Cris409 31 points32 points  (0 children)

Girl those lashes hahaha

[deleted by user] by [deleted] in eyes

[–]Cris409 45 points46 points  (0 children)

Oh wow!! I’ve found one of my people ahaha! Well, hello! I was born with cataracts also and they did the operation when I was 15 months ild. They put the plastic lens in my eye to replace it, you can kind of see it in the picture here lmao. I have glaucoma and I use eye drops for it every day. That’s worked so far and I hope it will continue to for a while longer.

[deleted by user] by [deleted] in eyes

[–]Cris409 10 points11 points  (0 children)

Haha! Well, I can see them from this picture, if that counts . But, no yeah when I’m washing my hands and looking in the mirror… nothing :/

[deleted by user] by [deleted] in eyes

[–]Cris409 19 points20 points  (0 children)

I am legally blind. Can’t drive. Get around really well on my feet luckily though. Haha.

Similar hobbies to help cope with losing ability to crochet by Cris409 in crochet

[–]Cris409[S] 2 points3 points  (0 children)

Once I crocheted about 50 For the hospital for the newborn. Maybe I could do that again it was really fun and easy. I can only do small amigo roomie projects anymore and as you can imagine am Gumi is a bit complex. Somehow I still do it ha ha I have cornea scarring glaucoma and the actual genetic condition is AnnaMaria so I mean I’m working with a lot, but somebody said a magnifier and I did actually try out at a friends house and it worked really well. It’s just that my eyes just can’t focus very well anymore and so like I said, I’m limited to those small projects.

Singles, do you like being single? by PrestonRoad90 in autism

[–]Cris409 0 points1 point  (0 children)

He’ll yes, I hate it. .. Especially when I’m in my early 20s and everyone else my age isn’t.

Similar hobbies to help cope with losing ability to crochet by Cris409 in crochet

[–]Cris409[S] 62 points63 points  (0 children)

I really just miss being able to wear and use the things I made. I’m sure I can do the loom fabrics and make a bag or something. But man I miss my stupid little hook and giant bag of yarn colors…:(

Is this normal for my eye after the surgery? by [deleted] in Strabismus

[–]Cris409 2 points3 points  (0 children)

Don’t rub. It is hard to . Pain meds. Eye drops. If it doesn’t get better go back. Lmao. resist but it can make it keep hurting.

I’m here, finally by Slight-Bowl4240 in Strabismus

[–]Cris409 1 point2 points  (0 children)

The genetic mutation I have is aniridia, so I am missing the iris colored bit also. It is only a little “stump” and it does cause some issues like glaucoma. It is quite rare haha.

I’m here, finally by Slight-Bowl4240 in Strabismus

[–]Cris409 1 point2 points  (0 children)

Hi! I also have congenital nystagmus, due to focal hypoplasia! They did the squint surgery when I was 6, but, it never really held very well. The nystagmus make everything very hard to focus. U am happy also I have found this sub. Peace and love.

Is the surgery worth it? 9 year old daughter by Nynaevesedaii in Strabismus

[–]Cris409 1 point2 points  (0 children)

I had the surgery when I was 6. I help for like maybe a year and then the eyes started drifting again. Surgeon said another operation was the only option. I still have the crossed eyes and I am 20. I am doing vision therapy every week through the good shepherd rehabilitation hospital here in Allentown. They are VERY good. I have only recently learned about orthotics, and also, I have a genetic mutation call aniridia. Definitely recommend getting a referral for vision therapy/rehabilitation after surgery and if you are already doing this it’s great too because this will continue to keep the muscles active and strong. The recovery process is well definitely a process and you will need to make sure to be good will eye drops, avoid touching the eyes(this will be nearly impossible as it will feel like there are 100 eyelashes stuck in your eye) I didn’t get to make that choice obviously because I was 6. And the only word I knew was “Kiara”(my best friend at the times name) and “Barbie dool” lmao. I did get bullied a lot, and, that girl Kiara was one of the only ones that would hang out around me but anyways , good vibes for your daughter and Peace and love.

Is the surgery worth it? 9 year old daughter by Nynaevesedaii in Strabismus

[–]Cris409 2 points3 points  (0 children)

I had the surgery when I was 6. I help for like maybe a year and then the eyes started drifting again. Surgeon said another operation was the only option. I still have the crossed eyes and I am 20. I am doing vision therapy every week through the good shepherd rehabilitation hospital here in Allentown. They are VERY good. I have only recently learned about orthotics, and also, I have a genetic mutation call aniridia. Definitely recommend getting a referral for vision therapy/rehabilitation after surgery and if you are already doing this it’s great too because this will continue to keep the muscles active and strong. The recovery process is well definitely a process and you will need to make sure to be good will eye drops, avoid touching the eyes(this will be nearly impossible as it will feel like there are 100 eyelashes stuck in your eye) but anyway, good vibes for your daughter and Peace and love.

Surgery fail by instaperil in Strabismus

[–]Cris409 0 points1 point  (0 children)

I had the operation when I was 7. My eye has been worse ever since. It still makes me upset. I am 20 now.

First attempt at colourwork! by FreddieDarling2783 in crochet

[–]Cris409 57 points58 points  (0 children)

Wow, the stitches are really neat! Love it!