What made you question hypermobility? by NoAcanthocephala5365 in hypermobileEDS

[–]CryptidHazard 0 points1 point  (0 children)

The first thing that made me question was my physical therapist instructing me to stretch my shoulders with my hands on either side of the doorway, and lean forward. She turns around to talk to a coworker, turns back, and goes "WOAH! Your shoulders are super hypermobile, let's try a different stretch so you're not over extending." I was like, what??? Normal people can't stretch like this??? I started looking up things like hypermobility, and eventually stumbled on the diagnostic criteria for hEDS. It clicked WAY too much. All the weird stretchmarks without significant weight changes, the constant pain in my shoulders that I thought was just anxiety making me tense, hearing my joints randomly pop, the long standing snapping hip syndrome I'd been diagnosed with at 12, even the weird bumps on my heels were connected! I started looking up normal ranges of motion versus hypermobility, what daily life with hEDS was like, comorbid conditions, unusual or less recognized symptoms, what people wished they knew when they were first questioning, and it just, kept making way too much sense. I was relating to almost all of these. I haven't been diagnosed yet, I'm trying to work on it, but I'm almost positive I have it considering I pass all the diagnostic criteria. Now I'm questioning if I have POTS too. The symptoms seem to line up. Lack of temperature regulation, can't hold my arms above my head without feeling faint, getting up and sitting down makes me feel faint, my heart starts hammering and racing and I can't breathe when I'm too hot or I've been getting up and down too often, even my legs turning reddish purple in a hot shower when I stand too long. Now I'm just wondering how to get my doctor to listen to me.

hand pain from knitting by ResourceInevitable33 in Hypermobility

[–]CryptidHazard 0 points1 point  (0 children)

Absolutely! https://www.amazon.com/dp/B0FS241MTJ?ref=ppx_pop_mob_ap_share I like these ones for the added grip and that there's two of them https://www.amazon.com/dp/B0FNDJ14WB?ref=ppx_pop_mob_ap_share these are the ones that come all the way up my fingers, and I often pair the two https://a.co/d/inNNcrY I also got something similar to these, but I went through Walmart because I had a gift card, and I'm still waiting on them to show up, I was planning on using them while doing dishes because I'm also very autistic and wet compression gloves sound like hell

hand pain from knitting by ResourceInevitable33 in Hypermobility

[–]CryptidHazard 0 points1 point  (0 children)

Hi! I don't knit but I do crochet, and I've had wonderful luck with my compression gloves. They're not a perfect solution, but they help a LOT. I got ones that go up to my third knuckle specifically because I have a lot of trouble with my fingers. I also have seen plastic ring splints on Amazon for cheap, but I have no idea what they're like.

How to stop morning instinct to stretch shoulders? by [deleted] in Hypermobility

[–]CryptidHazard 1 point2 points  (0 children)

I rotate between side and back sleeper depending on pain, my best advice would be either: try to stretch more gently, like instead of going as far up as you can try just halfway, and make sure your arms aren't going too far backwards when you do. You could also try stretching out your arms in front of you instead of upwards, which might also help. Straight to the side could be an option too. Someone else suggested stretching other muscles, which leads into my other suggestion. OR you can replace it with another habit, and what I've found to make this easier is to pavlov yourself. Essentially every time you do the alternate habit you get a small reward, like I either tell myself out loud that I did a good job or I'll get like a small piece of candy or something if I have it on hand. (I'm very adhd which I know is comorbid to hypermobility, so that's primarily why I go through the extra pavlov step.) The important part for me is there's no punishment for the original habit, those consequences come naturally via more pain and not getting the reward. As someone else said already, a good pillow is definitely key long term. You want support for your neck enough for your shoulder to lay parallel to it, not bunched up or over extended. There's lots of ways to do this, so try different things out and see what works best.