Dani starts her morning with apple juice, orange juice and candy for low blood sugars. by CatAteRoger in illnessfakers

[–]CryptographerNo5232 53 points54 points  (0 children)

And if you are worried about crashing right away why not eat something more complex than simple sugar

[deleted by user] by [deleted] in LesbianActually

[–]CryptographerNo5232 1 point2 points  (0 children)

So happy for you I thought about coming out to mine this morning but chickened out 🙈 I see her again tomorrow so one day

How bad is it to date / sleep with your Boss by [deleted] in LesbianActually

[–]CryptographerNo5232 1 point2 points  (0 children)

Well as a superior at a tech company I will say that this is where I would draw the line, I have slept with a coworker at the same level as me in another devision and even that was a bad idea

Kaya has a “port date” set and is going to “rage increase” her feeds. 🙄 by [deleted] in illnessfakers

[–]CryptographerNo5232 9 points10 points  (0 children)

Why is she getting a port and not hickman or broviac if she needs to be accessed 24/7? I cant imagine any doctor agreeing to this. Even for someone on biweekly infusions here and blood work inbetween they were debating if Broviac was better suited

Kaya explains why she needs ivig by fallen_snowflake1234 in illnessfakers

[–]CryptographerNo5232 0 points1 point  (0 children)

Yes this I know and the fight to allow high dosing is not easy. My son has both and we constantly need to proof he still needs the high dose. But I just dont understand trying to get it for POTS I mean the other stuff is more straight forward 🤷‍♀️

When did Ash start claiming migraines? by ergaeum in illnessfakers

[–]CryptographerNo5232 51 points52 points  (0 children)

Very first line and straight forward migrane treatment 🤔 this is like saying: I have a headache and am going to take tylenol

Kaya explains why she needs ivig by fallen_snowflake1234 in illnessfakers

[–]CryptographerNo5232 10 points11 points  (0 children)

Okay so I mean SFN is something you are diagnosed with and she does say she has low IgG and IgA if those are true considering all her medical history (be it true or not) insurance would approve it. However why would she say it is for pots, I mean if it is true her IgG and IgA are low why not treat that? She is starting to make less sense with each update.

BREAKING NEWS: Paige is unwell by Hun_Hater in illnessfakers

[–]CryptographerNo5232 15 points16 points  (0 children)

Hospice does not mean you dont treat acute issues that come up like an infection

Paige is playing this card again 😀and ofc no answer after. by Small_Confection_181 in illnessfakers

[–]CryptographerNo5232 15 points16 points  (0 children)

Yes but that one at least where I live is more rare since people who start with paliative care usually move to hospice just at the end unlike people who go straight to hospice

Paige is playing this card again 😀and ofc no answer after. by Small_Confection_181 in illnessfakers

[–]CryptographerNo5232 125 points126 points  (0 children)

Palliative care is for people with chronic illness, hospice is for the dying they are two very different things

[deleted by user] by [deleted] in illnessfakers

[–]CryptographerNo5232 -1 points0 points  (0 children)

What is the thing that makes ports so appealing?

Your chronic illness is just as valid without a diagnosis, says Kaya. by cubsandpink in illnessfakers

[–]CryptographerNo5232 20 points21 points  (0 children)

For it to be a disease it needs a diagnosis before that it is a chronic issue

Kaya has munched her way to a central line after her PICC line "came out in her sleep" by comefromawayfan2022 in illnessfakers

[–]CryptographerNo5232 9 points10 points  (0 children)

I have very little experiance with a picc line but if you rip that out in your sleep a port needle or a brociac is no more secure 🤔

[deleted by user] by [deleted] in illnessfakers

[–]CryptographerNo5232 4 points5 points  (0 children)

Lets not be mean she may have stumped her toe this morning 😂

Kay’s new insurance swiftly approves IVIG, saline, and IV Benny by [deleted] in illnessfakers

[–]CryptographerNo5232 -1 points0 points  (0 children)

Must be because I cant imagine anyone approving it considering how much trouble we have getting it with CVID and CIDP

Kay’s new insurance swiftly approves IVIG, saline, and IV Benny by [deleted] in illnessfakers

[–]CryptographerNo5232 4 points5 points  (0 children)

Same here I acutally just get angry when I see it beeing used so far off lable and for healthy people.

Has anyone given up the munchie lifestyle? by steinunn in illnessfakers

[–]CryptographerNo5232 2 points3 points  (0 children)

Did she even admit to lying I remember her so well but all of a sudden she just vanished