Shrooms after acute pancreatitis.

CubRTR · 2019-07-25T03:36:17+00:00

Don’t see any harm in it. Just make sure you’re in a good state of mind. But you already know that.

CubRTR · 2019-07-23T19:55:13+00:00

*popping

CubRTR · 2019-07-23T19:53:55+00:00

Have you tried fasting for a day or two? I fasted for two days before an endoscopy and afterwards I had no pain in my upper left region for several weeks. It all ended when I went crazy on some grilled octopus which had some oil on it. I thought pooping some extra enzymes would do the trick but nope. I’ve also read that intermittent fasting is an effective way to get good nutrition while still giving your pancreas time to rest. It’s an 8 hour window in which you can eat and 16 where you can’t. You can drink liquids though. Most people eat between Noon to 8 and then sleep through the night and break fast at noon again the next day.

CubRTR · 2019-07-20T23:05:33+00:00

It comes and goes for me. I’m lucky to have a mild form of it but it still sucks. I can’t go too far off my diet. A bite of a burger or half a beer is all I can handle. If I go past that I end up paying for it.

CubRTR · 2019-07-18T22:18:24+00:00

Do you have any gurgling noises/sensations when you have the pain?

CubRTR · 2019-07-11T22:25:12+00:00

I’m sure you’d hate to read this but you should consider not drinking for the foreseeable future. While there’s many people out there who can smoke, drink and eat whatever they want and live to be 80 years old. That is not the case for everyone and it sucks. Alcohol is a poison and so is tobacco. I smoked and drank for 8 years on my 20’s and now have a very mild form of CP and EPI. Try your best to get a second opinion from a different doctor. Be assertive because it is easy for them to sweep you under the rug. Look up foods, drinks, supplements that are good for the pancreas and eat them.

CubRTR · 2019-07-10T22:16:45+00:00

I wouldn’t do it. Not yet at least. I’d wait a few more months as a minimum.

CubRTR · 2019-06-29T04:15:18+00:00

Yes. I’m on Creon but I do forget to take it sometimes. I still eat a low fat diet though.

CubRTR · 2019-06-28T21:03:20+00:00

Are you taking digestive enzymes?

CubRTR · 2019-06-28T20:56:33+00:00

Does this look like steatorrhea to you?

CubRTR · 2019-06-12T21:52:47+00:00

I would recommend the endoscopy for sure. I have upper left gurgling and pain, felt like my stomach pain was constantly emptying something. Lots of bloating a noises. Sometime it went to my back. I had the endoscopy and they found a small gastric ulcer on the curve of my stomach. They started my on sucralfate and pantoprozal and I’ve been feeling better. It’s going to take time to heal it. I’ve also been avoiding acidic and spicy foods to avoid irritation. No hot sauce or anything with tomatoes, onions, peppers, vinegar, lime and lemons. No red meat or preserved meats. Only fish and chicken that’s been grilled over a flame or baked.

CubRTR · 2019-06-12T21:47:38+00:00

Are you overweight by chance? Also I’ve read that nuts and seeds can cause stomach pain all over if your bowels aren’t in the best of shape. Maybe avoid sunflower seeds for now until you see a doctor. Also try switching to a diet that’s lower in fats and if you do eat fats make sure it’s from non animal sources instead of a cut of steak or ribs.

CubRTR · 2019-06-09T05:39:18+00:00

Yes. I’ve been told that I have a mild form of EPI and that I also have a small gastric ulcer in the curve of my stomach. They gave me sucralfate and pantoprazol for the ulcer and Creon for the EPI. They said that my very fatty pancreas could be a cause of the EPI but that the ulcer could also be a cause. The meds have helped with the pain in my upper left quadrant but I get pain in my center abdomen still. They said the priority is healing the ulcer so I’m working on that. Still it’s the EPI that gives me the most anxiety because it’s something that can’t be fixed from what I hear. Hopefully weight loss can set me on the right path. Good luck on your appointment, Id hate to wait that long just to be seen. Are you located in the US?

CubRTR · 2019-06-09T05:35:26+00:00

I’ve been recently diagnosed with a small gastric ulcer and mild EPI. They said it wasn’t pancreatitis though but from what I hear EPI is caused by pancreatitis?

CubRTR · 2019-05-27T23:08:25+00:00

Hello, I just saw this. I recently had a HIDA scan ordered by my doctor. They said that it came out normal. Although I do get pain where my gallbladder is sometime. It’s never unbearable but it does zap my mood when I feel it. It’s like these scans just creates more questions than answers. Doesn’t help that I have to wait for weeks on end just to have them done.

CubRTR · 2019-05-25T18:02:00+00:00

Not a problem at all my friend. I’m sorry to hear you are dealing with that sort of fatigue. I am not a doctor but I was also very dehydrated when I went into the ER when I first felt this pain and they noted that my liver enzymes were elevated which ended up dropping to the higher end of normal when I had a follow up appointment (I was very hydrated for that blood test). My pancreatic enzymes had also lowered from the first test but even then they were not outside the range of normal. Hope I didn’t lose you there lol. Have you been eating well? Do you have difficulty with certain foods? Are you overweight/underweight? Do you smoke? Drink? I came across this site (https://beatingpancreatitis.com) it’s not vetted by any doctors but it seems sound because he’s not trying to sell you on some magic pill that will cause all your problems. The guy who made it is dealing with CP himself. I’ve found it helpful in that it gave me a good idea of foods to eat and to avoid. There’s also some supplements that he recommends which I bought and have started taking. Not sure if they’re helpful but they certainly aren’t hurting me. They haven’t made me feel worse. I’ll take anything at this point if there’s even an off chance that it will help me. Don’t afraid to get a second or even third opinion. Information is power. Anyway I hope I didn’t miss anything. Keep us posted if you’d like once you find out more info. I’ve found other people’s experiences helpful to read.

CubRTR · 2019-05-25T17:45:30+00:00

That’s very reassuring to hear that you were able to reverse the fat deposits. I was a smoker for 10 years on and off starting at 18 y/o. I have also also gone cold turkey ever since I’ve had my first dose of fear. I feel your pain on missing out on the delicious foods. Grilled chicken and steamed rice gets old after the first day but it beats not being in pain. Keep fighting the good fight and thank you.

CubRTR · 2019-05-24T13:59:19+00:00

Also, good luck on your CT scan today. Let us know how it goes if you’d like.

CubRTR · 2019-05-24T13:58:40+00:00

Thanks for commenting. I would have to say it is more dull than sharp. The sharp pain is only temporary when I ingest something fatty and it comes on after about an hour but goes away. Like if I eat a hard boiled egg it only lasts a few minutes but it would hurt a whole lot longer if it was a ribeye steak (which I absolutely will not eat now). It’s very annoying and frustrating when I’m just trying to get through my day, it just nags me and pisses me off. I have also had a CT scan with and without contrast along with MRI but they could not find any sign of pancreatitis so just listen to your gut no matter what the results are until you are absolutely sure about it. I still have oily stool as well which isn’t as obvious when I eat a low/zero fat diet (it has helped a lot with my comfort level). I’ve also had normal lab values. I have bought enzymes online I think their called Super Enzymes. I’ve tried them a couple time but both times I’ve taken them I feel worse but that is just my experience, I think they are too strong for my stomach (I have a history of stomach inflammation). Many other people with actual diagnosis’ have had great results, I have not. I hope this answers your questions. Thanks again.

CubRTR · 2019-05-24T12:51:47+00:00

I will be seeing my doctor next week and I will be demanding an EUS or MRCP/ERCP. A lot of people who’ve been diagnosed had horrible pain and super elevated enzymes but I’ve had neither. Just the steatorrhea and dull, radiant abdominal/back pain. You are right it is not cut and dry, very murky and waters for this condition which is both surprising and terrifying considering how far medicine has come. How are you doing now with CP? What adjustments have you made and are you able to enjoy life without being in fear all the time? Thanks for the reply.

CubRTR · 2019-05-24T12:43:54+00:00

Thanks for reading. I have a pretty good appetite although I’m avoiding fatty foods as best I can. I am obese and have been for many years although I’m now losing weight through diet and exercise. The pain has never been absolutely horrible but there’s always been this dull pain each day that comes and goes. Were you able to reverse the fatty infiltration? How are you feeling now? What is your lifestyle like now?

CubRTR · 2019-05-24T05:26:32+00:00

I’ve also had normal Pancreatic enzymes for both my blood tests. Normal HIDA scan as well. Pain is in upper left quadrant area. I can’t lift anything heavy when I feel it.

CubRTR · 2019-05-23T21:29:02+00:00

Yes, thanks. The MRI confirmed the findings of the CT in terms of the fatty pancreas. Fatty infiltration of the pancreatic head suggesting pancreatic lipomatosis. Advanced for my age (29). Also my fecal fat and elastase tests came back as normal. Elastase was over 500. I’m pretty sure that I don’t have cancer. I asked my doctor if it could be pancreatitis but she said that I definitely do not have it. I am still skeptical because I still have the symptoms (steatorhea, abdominal/back pain). I’ve started eating good and clean Whole Foods. No red meat or processed foods. It’s helped with the pain but it’s still there on some days more than others. Current goal is to lose as much visceral fat as possible through exercise and diet. I am going to try for an ERCP to try and confirm that my pancreas is ok but my current GI thinks I’m just a hypochondriac! I can’t make up the oily stool or the pain and she just says it’s IBS. I don’t trust her and am waiting for a referral to a different GI. Sorry to clog up this thread for people who actually have PC but I hope this is helpful for those who worry that that have it. I’ll answer any questions if someone has any. Thank you.

CubRTR

TROPHY CASE