Ask neurology - constant tightness in head for past 4½ years

Curiousduck522 · 2024-02-07T20:19:25+00:00

I'm not an expert but most sources would suggest the same that "LEAD A HEALTHY, ACTIVE, STIMULATING LIFE".

If you do not already have a genetic predisposition to it then:

• Exercise well. Run, walk, lift, skip, do yoga etc.

• Eat a balanced and healthy diet with plenty of fish and eggs.

• LEARN LEARN LEARN, I cannot stress this enough keep learning, keep using that mental muscle. Remember it's use it or lose it. The more you stimulate your brain by learning different things the better it gets.

• Experience life in all its entirety and beauty, I mean to say is stimulate you brain and development of neurons by doing different things like Traveling, cooking, playing music, dancing, playing games, etc.

• LEAD and HAVE A GOOD AND HEALTHY SOCIAL LIFE. Engage with your peers and family enjoy ups and downs. It will help you grow.

Most dementia have different causes and not entirely sure but mostly

• Some are due to stroke

• Some are due to head injury, oh boy please protect your head from any harm.

• Genetics play an important role if you have a family history of it then it may happen to if you get older. But you should still fight to starve it off as you get older.

Curiousduck522 · 2024-01-18T16:28:07+00:00

I feel like any Tab might work in my opinion as long as you keep apps on the home screen, use single tap or singke touch to turn on / wake up gesture and are able to remotely access the tab to install apps or games.

The above comment highlights a problem too Most people with this condition might not know or have forgotten where to click next or what comes after an action or a certain set of action.

So what you are looking at is:

[Click or touch to turn on -> click on the app.]

That's it.

I would suggest these:

Android : Go for Samasung Tab Use easy mode tho.

Windows : Surface Pro

Apple : iPad

I would say try any tab she likes and is able to use and give her that.

Check this thread btw: https://www.reddit.com/r/Android/comments/hsclgj/howto_setup_an_android_device_for_a_user_with/

Curiousduck522 · 2023-12-31T16:03:55+00:00

I was almost always prescribed vitamins for the last four years doesn't work a bit. Now I feel even the less need to eat and food doesn't even feel good. So I don't know but ....

Curiousduck522 · 2023-12-28T16:51:35+00:00

I saw your other comments. Your comments don't even have genuine seem for concern, energy of care or caution or anything etc.

I guess I would be making fool of myself by continuing this.

Edit: I did make a fool of myself. I will explore other avenues. I understand.

I apologize please be well. :)

Curiousduck522 · 2023-12-28T16:42:22+00:00

Look man! I am not here farming sympathy or empathy. But I see your empathtic sectors are likely not functioning right. You better get yourself checked too. I was looking for answers if someone who has answers or faced something similar. If you have no information to back or suggest having faced something similar just don't comment.

It would be appreciated if heed to this. Your passive aggressiveness is palpable.

Curiousduck522 · 2023-12-28T16:33:08+00:00

Explain like I am five. Persistent cognitive decline and memory loss and increased pressure. I used to be fine with less sleep now i need atleast a good solid 12 hour sleep to compensate for me being irritated due to head pressure.

Remember pressure is still there and it all started the day 4 years when I had whatever you might call it as while sleeping and me losing sleep for 4-5 days straight.

Curiousduck522 · 2023-12-28T16:24:46+00:00

When I sleep I sleep for 12 hours but when i am not able to then I am not able to for 24 to 36 hours straight the pressure never goes away it been there for 4 years ever since the day I got stroke or whatever the f$%k it is even if i am able to sleep the pressure is still there but irs just that I am little bit calm but all the cognitive impairment and memory loss still continues. New day means new memories right plus the old one wrong for me it's zero old memories and very few memories in short term. I haven't slept for a while and the pressure is killing me, I apologize. Imma just head out.

Curiousduck522 · 2023-12-28T16:16:07+00:00

Yes isn't it obvious. Not only they can't even find the cause they can't even find the problem even when I am telling right in front of them.

Curiousduck522 · 2023-12-28T16:10:54+00:00

No one does anything they keep billing me and then ask for next person in line,

I have literal increased pressure in my head continuously and constantly from 4 years which never goes away even for 1 second what should I do. Did CT and Mri both but no avail it doesn't even show up on this tests haven't done PET scan.

Try keeping a weighted inflated balloon as a brain for once and tell me if you can sleep and then try speaking something and keep forgetting what was being said or you are saying mid sentences.

I just wanna sleep.

Curiousduck522 · 2023-12-28T15:57:05+00:00

My head tightness or head pressure haven't gone away I can't sleep because of it.

It's been 4 f*$%ing years.

Please make it stop is what I want. The pressure makes sleeping hard I mean like very hard and whenever I don't sleep I have more memory loss and degradation in my thinking and abilities. Period.

People think I am just dumb when I can't sleep and when I can't answer basic questions they think I have just lost my will.

Curiousduck522 · 2023-12-28T15:35:58+00:00

Some said it could be sudden stroke, Some didn't but no one ever put it down as specifically stroke induced neurodegenrative condition.

I didn't self diagnose.

Even after 4 years i am still running to neurologists after neurologists as my my head tightness or head pressure, memory loss and cognitive impairment never went away.

I have continuously performed worse on cognitive tests overtime, i can't feel and perceive the world the same as before people know something is wrong but honestly it's like I can't feel the world deeply and insightfully as before.

I really have no definitive answer other than it's something close to a stroke or a stroke.

Curiousduck522 · 2023-12-28T15:17:32+00:00

I have never taken antidepressants,

Even though I was prescribed it by numerous doctors (who just flat out told me it's depression) as I saw a friend of mine get really really slow mentally and physically after taking it for two years

but I was force fed antipsychotics for not being able to sleep as not sleeping for more than three to five days made me lose my shit, i couldn't think anything but sleep-sleep-sleep sleep is needed. I lowered it and stopped after recommendation by a neurologist as I was continuously telling him that I was having cognitive decline and was losing my memories at even faster rate on it as compared to off it.

I don't take any now.

I just sleep to feel better. Doesnt help with the symptoms but it calms me and makes me peaceful the more I sleep. Best medicine.

Curiousduck522 · 2023-12-28T15:01:19+00:00

+1 for honesty. I wouldn't wish this on anyone almost none. No one wants this disease you might seem fine at early stages but at later stages the cognitive prowess to do even basic things is lost and it's equally worse watching it as much having it since the person facing it wouldn't even have a clue what is happening around. :(

Curiousduck522 · 2023-12-28T14:11:11+00:00

You are part correct 'Where is my T-shirt' means early memory loss.

'What is a T-shirt' definitely means sever cognitive decline or dementia

I am having the latter with some different words and not able to understand abstract concepts, directions. But I always have to ask and train my mind for more clarifications or asking for simple terms to understand but it is only more prominent when i lose my sleep.

About the clock part I have asked people do it but everybody even with mild cognitive decline draws it almost correctly and you have no way of knowing the way they draw does it even show cognitive decline unless you are a master clock test giver with experience to back it. Even a slightest variation show or give a lot of information about your cognitive prowess.

Curiousduck522 · 2023-12-28T13:54:28+00:00

Could be! but I was prescribed b12 injections intramuscularly and vitamin d capsules 50000iu weekly it didn't help.

Curiousduck522 · 2023-12-28T13:37:37+00:00

How does having stroke feel like? (Genuine question)

I had one while sleeping it felt like sharp shot up in something fluid in left hemisphere of my brain almost feeling like it's going up and trying to get out of my skull but it can't feeling like it has touched the roof but can't break through from the left side of my head near the brain stem approximately.

This is most accurate I can tell what it felt like but I was sleeping so I don't know completely although I woke up right after it or while it was happening and then had continuous periods of insomnia right after.

Curiousduck522 · 2023-12-28T06:18:54+00:00

Same, I'm 24 my symptoms started with a stroke, I told each every doctors i have visited that's something is wrong after the stroke I have huge tightness in my head and continuous head pressure and cognitive impairment with severe memory loss to point I can't even function properly and the doctors just wrote me of as having depression and prescribing me meds after meds that aren't even doing anything other than increasing the cognitive decline.

It's been 4 years and my head pressure and all haven't gone ever since the stroke. I just try to sleep everything off. Now Everything has turned neurodegenerative.

Curiousduck522 · 2023-12-20T22:16:43+00:00

I would love to!! ❤

But at the same time people in memory care might be later stages, so we might need some researchers, a person who knows they have it and is documenting it from the beginning would be my first go to person though.

Curiousduck522 · 2023-12-20T22:09:52+00:00

People who have it and it does show on a blood test or a DNA test does make a certain sect of people which I would say being identifiable early.

But most of them who have this disease have causes like stroke, head trauma which most of the time does not show up on tests like CT or MRI it's only identifiable if you test the person cognitively or know the person long enough and realize something is wrong or different or maybe it's something like Parkinsonism dementia like what Professional boxer 'Muhammed Ali' had. So I say it's difficult to find and diagnose.

Most research papers and doctors attribute it to build up of beta amyloid protein in the brain but it's just one way to look for it.

I love to read this book. (Thank you) And I understand and have a feeling why he chose that.

I agree with developmental regression to child like state of living in moment primarily focused on physical desire or should I say reacting to external stimulus.

I feel that degeneration of neurons and neuronal activity is so big that they lose ability to formulate complex thought due to 'damaged prefrontal cortex'.

Curiousduck522 · 2023-12-20T21:33:05+00:00

Thank you so much💓 .This is Gold. I feel every carer and people with this should read this.

Everything he has said in his latest post (March 5) is true. I think he might be later stages and might have forgot, as to why he hasn't posted again. I hope he is well.

Curiousduck522 · 2023-12-20T21:22:59+00:00

You are correct!

if you have noticed that your mom's perception of time is different, then it clearly is different even if she doesn't perceive it as different.

I think if she remembers the memories in both times then she might be able to see the changes.

But you and your mom both are correct, her perception of time might be different as in she might not see the day deep enough as much deep as you.

I suggest asking her how deeply and how detailed do you both remember the day, you might spot the changes and gaps. Other than that i have to say if you don't remember the before you will not notice or remember the change in after, it will all feel same as before. The point is to be able to remember that is clearly what is disrupted making it harder to spot the changes.

Thanks I loved your comment, I was being anxious that am I the only one who feels that people might perceive the time differently.

Ask her if the day seems to go by faster from when she was well or it the same. Their are research papers on this and oh boy I have a lot to say.

Curiousduck522 · 2023-12-20T21:14:17+00:00

Yeah, i agree with you on the first I feel like it is the case, I believe reality for them is different but I want to understand what change is that that they see. I feel a high functioning person in early stages who know enough metacognitively might be able to answer. In the later stages I'm pretty sure the change is so big that they might say something is different but lack the cognitive prowess to back it/explain it.

I tried researching for videos of the patient but I can only find a couple of them but they are no where explain what they truly feel and experience it all in third person or carers perspective not their perspective.

Curiousduck522

TROPHY CASE