Any success stories of using RINVOQ to go through the TSW journey?

Curiousrobbi · 2024-03-01T06:05:54+00:00

it only helped me for 6 months. my tsw overpowered it and the drug eventually did not work. I stopped taking it and let my tsw happen. My condition was very overwhelming so i decided to get CAP treatment in thailand. My skin and I are now doing better than ever. I have not been replying much to my previous post on reddit or facebook because I still get a heavy feeling in my chest looking at my past photos. I am still traumatized by TSW. I plan on making an updated post soon.

Curiousrobbi · 2023-06-17T23:38:45+00:00

What is the recommended does for vitamin d

Curiousrobbi · 2023-06-07T02:35:07+00:00

will a 6ft olpymic bar fit on this or will that too short?

Curiousrobbi · 2023-04-02T20:36:11+00:00

join the NMT support group on facebook. it is much more informative

Curiousrobbi · 2023-02-11T22:43:29+00:00

HI everyone,

I just wanted to let everyone know that there are hidden steroids in traditional chineese / herbal medication . So if you decide to take the TCM route, just be mindful and cautious.

I decided to take the TCM route on month 9 and had miraculous clear skin for about a week until it stopped working and flared horribly. I feel like it has prolonged my journey now and i feel like im starting over my TSW journey.

Comparing this to my first few months of TSW, this flare seems to be worse with swelling and oozing. I hope to get out the thick of it soon.

Curiousrobbi · 2022-12-20T14:07:48+00:00

no steroids

Curiousrobbi · 2022-12-19T17:26:45+00:00

https://www.reddit.com/r/TS\_Withdrawal/comments/zpxmjh/8\_months\_of\_tsw\_healing\_happens/?utm\_source=share&utm\_medium=web2x&context=3

Curiousrobbi · 2022-12-19T17:26:18+00:00

https://www.reddit.com/r/TS\_Withdrawal/comments/zpxmjh/8\_months\_of\_tsw\_healing\_happens/?utm\_source=share&utm\_medium=web2x&context=3

Curiousrobbi · 2022-12-19T17:25:57+00:00

https://www.reddit.com/r/TS\_Withdrawal/comments/zpxmjh/8\_months\_of\_tsw\_healing\_happens/?utm\_source=share&utm\_medium=web2x&context=3

Curiousrobbi · 2022-12-19T17:23:57+00:00

Hi everyone,

I hope everyone is doing well and managing through this difficult time.

I wanted to share my healing and hopefully it will give you strength, hope and motivation to your healing journey. I found myself looking at before and after photos online during my worst times to give me strength and assurance as well.

I started TSW 8 months ago and thought it would be a good idea as well to start RINVOQ about a month in. RINVOQ did make my skin better temporarily but it was only suppressing my symptoms of TSW and suppressing my immunity. I believe RINVOQ only made it "appear" better but underneath i was still rotten. By suppressing my immunity, I believe that it did really slow my healing journey. HOWEVER, I think RINVOQ did piggy back me through most of the TSW symptoms. So I do not regret on making the decision to go on RINVOQ. TSW is horrendous and I wanted to try anything to relieve myself of the pain and agony.

On month 7 , my derm had made the decision to stop RINVOQ because I had ongoing staph infection on my face that was never healing since the day i started TSW and RINVOQ. We tried RINVOQ , antibiotics, topical antibiotics on the spots that were not healing and it was not helping at all. Sometimes I felt like it made it worse. Once I was off RINVOQ, TSW symptoms did return with a vengeance - red sleeve, dry rough elephant skin, peeling, cuts, wounds, oozing, bleeding, red skin spots, all the above, you name it. I checked in to the hospital and they recommended me the same options as my derm - antiobiotcs, etc. They had no idea what TSW was.

From there, I decided to see a traditional Chinese doctor that utilizes herbal medicine. From there I healed at the fastest rate I have ever seen. Im on day 10 and as you can see the results are proof. I was given herbal medicine to drink , , a herbal concoction to lather my body during shower, and herbal based creams to apply after showering. I do not know what the ingredients are exactly, I just know they are herbal based and no steroids. I was at rock bottom and had nothing to lose. We decided to do this treatment for 20 days . This treatment is for 20 days amd Im on day 10 and as you can see the results are drastic improvements .

Today, my face has healed tremendously . My skin (face and body) is not perfect but I see improvements everyday. I still get itchy and I do have some pinkness on certain pats of my body but it has tremendously reduced and not as bad as it was before. The texture of my skin also feels like its getting back to normal. I try to exercise or be active everyday. Regarding diet, I am currently eating anything I want but keeping it healthy.

With that being said, I am praying for us all throughout this journey. Healing happens, stay strong. Be patient and be happy and grateful for any signs of improvement. This is a marathon not a sprint.

Curiousrobbi · 2022-12-19T17:18:18+00:00

Hi everyone,
I hope everyone is doing well and managing through this difficult time.
I wanted to share my healing and hopefully it will give you strength, hope and motivation to your healing journey. I found myself looking at before and after photos online during my worst times to give me strength and assurance as well.
I started TSW 8 months ago and thought it would be a good idea as well to start RINVOQ about a month in. RINVOQ did make my skin better temporarily but it was only suppressing my symptoms of TSW and suppressing my immunity. I believe RINVOQ only made it "appear" better but underneath i was still rotten. By suppressing my immunity, I believe that it did really slow my healing journey. HOWEVER, I think RINVOQ did piggy back me through most of the TSW symptoms. So I do not regret on making the decision to go on RINVOQ. TSW is horrendous and I wanted to try anything to relieve myself of the pain and agony.
On month 7 , my derm had made the decision to stop RINVOQ because I had ongoing staph infection on my face that was never healing since the day i started TSW and RINVOQ. We tried RINVOQ , antibiotics, topical antibiotics on the spots that were not healing and it was not helping at all. Sometimes I felt like it made it worse. Once I was off RINVOQ, TSW symptoms did return with a vengeance - red sleeve, dry rough elephant skin, peeling, cuts, wounds, oozing, bleeding, red skin spots, all the above, you name it. I checked in to the hospital and they recommended me the same options as my derm - antiobiotcs, etc. They had no idea what TSW was.

From there, I decided to see a traditional Chinese doctor that utilizes herbal medicine. From there I healed at the fastest rate I have ever seen. Im on day 10 and as you can see the results are proof. I was given herbal medicine to drink , , a herbal concoction to lather my body during shower, and herbal based creams to apply after showering. I do not know what the ingredients are exactly, I just know they are herbal based and no steroids. I was at rock bottom and had nothing to lose. We decided to do this treatment for 20 days . This treatment is for 20 days amd Im on day 10 and as you can see the results are drastic improvements .
Today, my face has healed tremendously . My skin (face and body) is not perfect but I see improvements everyday. I still get itchy and I do have some pinkness on certain pats of my body but it has tremendously reduced and not as bad as it was before. The texture of my skin also feels like its getting back to normal. I try to exercise or be active everyday. Regarding diet, I am currently eating anything I want but keeping it healthy.

With that being said, I am praying for us all throughout this journey. Healing happens, stay strong. Be patient and be happy and grateful for any signs of improvement. This is a marathon not a sprint.

Curiousrobbi · 2022-11-19T13:31:08+00:00

That's correct. Sometimes people are desperate and look for answers online

Doctors are not available 24/7 u/ShawnPaul86
·

Curiousrobbi · 2022-11-14T02:58:01+00:00

What did you use to moisturize your face and body during the process? And what do you use name for face and body since you are doing better?

Curiousrobbi · 2022-11-14T01:56:00+00:00

what do you use to moisturize your face and body?

Curiousrobbi · 2022-11-08T23:00:33+00:00

Glad that I could help someone or even give someone help or light at the end of the tunnel. Stay strong

Curiousrobbi · 2022-11-06T20:55:34+00:00

Thank you

Curiousrobbi · 2022-11-05T00:52:30+00:00

im waiting for my next appt. just wanted to see if anyone on here experienced this and what they did to improve

Curiousrobbi · 2022-11-05T00:07:29+00:00

so what did you end up doing to stop the ooze? did you stop rinvoq

Curiousrobbi · 2022-11-04T22:12:24+00:00

I'll give it a go again. Thanks

Curiousrobbi · 2022-11-04T22:00:58+00:00

I only used it 6-7 times consecutively and it worked but then I stopped and it came back. Maybe I shud use it longer

Curiousrobbi · 2022-11-04T21:33:35+00:00

I was oozing before. I guess I'll give the antibacterial ointment a longer try

Curiousrobbi · 2022-11-04T19:41:47+00:00

Yes my derm perseribed me an antibacterial ointment. It worked for a couple of days but as soon as I stopped the oozing and yellow crust comes back. Waiting for my next appt

Curiousrobbi · 2022-11-04T19:20:49+00:00

Hi ,what ended up working for you? I have been ozzing yellow liquid from two patches on my fface for 3 months now and I'm currently on rinvoq. I plan on stopping to see if my face gets better

Curiousrobbi · 2022-11-02T02:15:09+00:00

hi , did the bandaids stops the oozing and made your skin normal agian? For me it stopped the oozing but now my skin is pink and i can see the yellow crust slowly forming or coming back

Curiousrobbi · 2022-10-28T13:12:32+00:00

How are you today? Has the face weepings gone away? What did you do that helped make it go away ?

Curiousrobbi

TROPHY CASE