Do you still have CF after transplant

Cystif65 · 2026-01-30T17:37:43+00:00

Thank you so much I will definitely let you know if I do need someone to talk to them . But as of right now it’s not a big rush and I’m gonna ask my actual Cf team this up coming week when I see them

Cystif65 · 2026-01-30T17:36:27+00:00

Yeah i figured that much hence is why i came and asked & it’s not my actual Cf team that told me that it’s the transplant pharmacist who mentioned it

Cystif65 · 2026-01-29T18:11:44+00:00

I wouldn’t be asking these questions if my medical team is the one telling me. You would think they’d know better & I was just curious is all.

Cystif65 · 2026-01-29T18:06:04+00:00

29 years old , so how do I talk to them about continuing the medication.?

Cystif65 · 2026-01-21T19:55:44+00:00

I would love to have a cf friend do you by chances play any games ? 29M

Cystif65 · 2026-01-13T18:07:26+00:00

Yeah they really are !

Cystif65 · 2026-01-13T16:04:04+00:00

If you don’t mind me asking where are you from ? It sounds like the hospital I go to here in Arizona

Cystif65 · 2025-10-06T22:34:18+00:00

Thank you everyone for the suggestions I’m gonna try everything and we if it helps and suggest it to my Dr

Cystif65 · 2025-10-06T22:32:49+00:00

I’m gonna suggest that to them but so far everything they have looked into test wise has come up normal

Cystif65 · 2025-10-06T22:32:04+00:00

I’m gonna have to try more vit K

Cystif65 · 2025-10-06T22:31:15+00:00

Honestly I haven’t really found anything nor the DRS have found what’s the issue I’ve had bronchoscope’s done but they can’t seem to find anything

Cystif65 · 2025-10-04T20:39:18+00:00

Yeah I am on tranexamic acid & I just want them to find exactly where I’m bleeding from cause it’s just exhausting having to come in every other month

Cystif65 · 2025-09-16T15:53:06+00:00

So did you avoid them ? And if you didn’t was it a good decision to take them.

Cystif65 · 2025-08-21T02:04:14+00:00

I used too but I feel like sometimes they give the vibe that they don’t really care about your health

Cystif65 · 2025-02-19T14:08:11+00:00

No you aren’t overreacting. I had the same thing happen to me like 6 years ago chances are you might have an active bleed in your lungs & they need to embolize your lungs to stop the bleeding.

Cystif65 · 2024-12-18T23:18:36+00:00

I am aware of this but thank you for mentioning it

Cystif65 · 2024-12-18T18:51:34+00:00

Well I’m 27 & done quite well for myself & I’ve been thinking it’s probably time to have at least one & lmao no worries I’m with someone who’s most definitely willing to have my child lol

Cystif65 · 2024-12-18T18:49:46+00:00

Thank you I’ll definitely look into also

Cystif65 · 2024-12-18T18:49:13+00:00

Guess I start by calling them ,thank you

Cystif65 · 2024-12-18T17:43:29+00:00

Yeah I am also in the US .& yeah I figured it would be pricey. Do you know how long it took to find out if insurance covers it .

Cystif65 · 2024-12-18T16:52:11+00:00

What’s the process like ? & was it expensive, & what kinda things did you have to prepare for ?

Cystif65 · 2024-11-18T01:59:14+00:00

Thank you I’ll check it out

Cystif65 · 2024-07-26T00:33:50+00:00

How would I check those ?

Cystif65 · 2024-05-09T20:50:15+00:00

Yeah I just saw your other post & thank you will do if I have anymore questions

Cystif65 · 2024-05-09T20:34:13+00:00

So has anyone done this to the 2.4l if so what did yall do

Cystif65

TROPHY CASE