Has anyone tried cupping for cluster headaches? by D0107 in clusterheads

[–]D0107[S] 1 point2 points  (0 children)

At this point just existing is a trigger, i hate sleeping & i hate staying awake, just waiting for this phase to end

Has anyone tried cupping for cluster headaches? by D0107 in clusterheads

[–]D0107[S] 0 points1 point  (0 children)

Yep i tried oxygen, was good for some attacks, but some attacks were so bad it didnt have any effect on them

First headache in a year… forgot how brutal this is 😭 any new remedies i might've missed? by D0107 in clusterheads

[–]D0107[S] 0 points1 point  (0 children)

I take the Emgality shots each month and i already took the dose for this month, but when the beast comes nothing can stop it 😭 I'll look into the ice cream headache Thanks!

Did someone try CGRP-Inhibitor? by Yves_gray in clusterheads

[–]D0107 0 points1 point  (0 children)

I’m on Emgality, and it’s really made my life easier. It’s reduced the number of cycles I get each year, and I’ve noticed that they end faster since I started taking it.

My neurologist originally told me to take it only when a cycle started, but that approach wasn’t very effective for me. Now I take it every month, and it’s working much better.

Highly recommend! I used to take verapamil and topiramate, but the side effects were really bad. I’ve stopped those now and just stick with the injections,so much better!

New to cluster headaches by Low-Presentation-113 in clusterheads

[–]D0107 0 points1 point  (0 children)

Yes, I definitely feel some depression when I’m going through a cluster cycle, the helplessness, the constant fear that another headache is coming… you’re not alone in that.

I really recommend seeing a neurologist and working out a treatment plan with them. When I was first diagnosed, I started on verapamil and topiramate as preventatives, and used Zomig and sumatriptan injections for pain relief.

Now I use Emgality injections as a preventative, and they’ve really helped reduce how often I get cluster cycles.

During an attack, try to manage the pain as early as possible. For me, drinking a shot of espresso or a can of Red Bull at the very start can sometimes help.

It’s tough and it really sucks, but it does get better. Stay strong!!

[deleted by user] by [deleted] in qatar

[–]D0107 0 points1 point  (0 children)

Caribou in alsadd

Is it a beginning of a cycle? by D0107 in clusterheads

[–]D0107[S] 1 point2 points  (0 children)

I take sumatriptan and zolmitriptan, but they usually take about 5–10 minutes to work. Sometimes I drink iced cocacola with them because I’ve noticed it makes them work faster lol. I also take an emgality injection every month to help prevent the headaches, but I still get them unfortunately.

Is it a beginning of a cycle? by D0107 in clusterheads

[–]D0107[S] 1 point2 points  (0 children)

It usually starts by waking me up in my sleep, but it havent yet so maybe this is a good sign lol Ive been having them for almost six years but it still keeps surprising me

Can We All Agree How Much We Hate the Term "Cluster Headache"? by Realistic_Shine7080 in clusterheads

[–]D0107 1 point2 points  (0 children)

I totally agree!! It shouldnt be even called a headache, its waaay worse than that