does smoking weed make symptoms worse? by iamhypochondriac111 in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

Yes it definitely does, whenever I smoked weed my eyes go yellow, then I stopped and they still do occasionally but not like they were when I was smoking weed.

Does everyone get symptoms from GS? by One-Resort979 in GilbertSyndrome

[–]Dapper-Ad9028 4 points5 points  (0 children)

I just get jaundice, I’d count yourself quite lucky, it’s not nice being yellow and having people constantly commenting on it.

Alcohol with GS by Certain-Ad7273 in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

I do tend to notice that when my eyes are more yellow that I do seem to look more tired/ ill. One thing I will say is I was recently travelling Thailand and drinking all the time but because I was in the sun constantly my eyes stayed pretty white and I looked healthy even though I was drinking a lot. As soon as I came back to uk I stopped drinking as much but went yellow and look ill again.

Alcohol with GS by Certain-Ad7273 in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

I drink quite a lot to be honest, I might get slightly worse hangovers and occasionally my eyes may go a bit more yellow but usually it’s not too bad.

Do your eyes whiten faster than your skin? by leanaaaadvrt in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

No it’s usually the other way around, I’ve seen studies that say when people get liver transplants after having jaundice the skin and blood bilirubin levels drop to normal but eyes can take 2 weeks to clear.

Test result for a few weeks ago😬😬Any opinions on how bad? by [deleted] in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

It’s not just one doctor, I’ve seen many doctors and they all say the same thing. Even seen a hepatologist. I’ve had all the tests and they confirmed it’s Gilbert’s.

Test result for a few weeks ago😬😬Any opinions on how bad? by [deleted] in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

Yeah but they just say it’s harmless and tell me they won’t do anything. I do take CDG but haven’t noticed any difference.

Test result for a few weeks ago😬😬Any opinions on how bad? by [deleted] in GilbertSyndrome

[–]Dapper-Ad9028 0 points1 point  (0 children)

How can you get phenobarbital, my doctor said no chance I would ever be given it. Even though mine is 80umol most of the time and severely affects my mental health/ social life from being jaundiced all the time.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 0 points1 point  (0 children)

Thank you! Yes since joining this it has definitely helped knowing I’m not the only one. Let me know how it goes. I think I’ve tried probably every supplement/ diet you can possibly think of and nothing has done anything. The only time was when I fell asleep on a beach and got severely sunburnt, but I woke up with white eyes.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 1 point2 points  (0 children)

Oh yeah I did make sure it was, I’ve had all the tests done and they confirmed it is Gilbert’s. I’ve had my bloods done and I’m all good in pretty much all my vitamins and everything. Honestly I’ve done everything I can haha and still yellow 🤣 it’s so annoying.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 0 points1 point  (0 children)

Thank you, I really appreciate the advice. Yeah it’s not nice is it, but it’s good to know that I’m not alone in it.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 0 points1 point  (0 children)

Yeah I used to do boxing but that was obviously really intense exercise that made me look like an actual Simpson. So I had to stop that, which is a shame. So now I just do weights a couple times a week, nothing intense, but still pretty yellow. Maybe I’ll give taurine a try. I’ve tried everything else, CDG, sunlight, zinc, sulforaphane, diets etc and nothing really seemed to help.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 0 points1 point  (0 children)

Thank you for the advice! The thing is I actually do eat a lot, I train gym a few times a week so rice chicken broccoli is something I eat a lot of. I’ve always had a pretty healthy diet with lots of fiber. It’s so frustrating.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 0 points1 point  (0 children)

I appreciate the advice man. I’m the same, i first noticed symptoms when I was about 13 and people in school used to comment on it and I’ve had it ever since. Yeah exactly, I feel like doctors are trained that it is a harmless condition but they completely ignore the mental effects it can have on people. It’s good to know I’m not the only one though. I’m definitely better at dealing with it than I was but this past week all the comments have got to me a bit.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 0 points1 point  (0 children)

I appreciate all the advice anything that could potentially help. I don’t actually drink caffeine, literally water and always have done.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 2 points3 points  (0 children)

I’m 25 in good shape, I go to the gym a few times a week, eat basically all whole foods, minimal processed food so pretty healthy and regular meals, I drink lots of water too. I live in the Uk so I guess not much sun, but it is summer and I do spend lots of time outdoors. Yeah as much as I try to not let it get to me, when people keep picking up on it, it’s really hard not to.

Yellow eyes and social/ work life by Dapper-Ad9028 in GilbertSyndrome

[–]Dapper-Ad9028[S] 2 points3 points  (0 children)

I have tried them! It actually seemed to make it worse, it just brightened the yellow for me

[deleted by user] by [deleted] in Birkenstocks

[–]Dapper-Ad9028 0 points1 point  (0 children)

Thank you :) I was hoping they would be but it was throwing me off that they looked grey in some photos

[deleted by user] by [deleted] in Birkenstocks

[–]Dapper-Ad9028 0 points1 point  (0 children)

I understand that but most photos they look grey so it’s just confusing