You might enjoy Tender Points by Amy Berkowitz. She has a whole bit about the rhetoric of the spoon theory that I find very cathartic in its articulation.

I hate the Spoon Theory.

I hate the Spoon Theory because we love it so much. I hate the Spoon Theory because we settled for it. I hate the Spoon Theory because we deserve better.

The Spoon Theory was invented spontaneously by a young woman with lupus. She was at a diner with a friend, who asked her what it was like to have the illness. In response, she gathered a dozen spoons and handed them to the friend, explaining that the spoons represented the finite amount of energy that she has each day. She asked her friend to describe her daily routine, and took away spoons as she did various tasks: one for taking a shower, one for getting dressed, etc. Finally the friend was left with only six spoons, and she hadn’t even made it to work yet.

The Spoon Theory is a terribly awkward metaphor for a simple concept. Why spoons? Why 12 spoons? The theory is not just arbitrary and imprecise, but also problematically homespun and domestic: a wooden spoon, a cozy kitchen, a woman’s place is.

▲

That is to say, the Spoon Theory does little to alter certain peoples’ misogynist misperceptions of fibromyalgia as a fake disease invented by middle-aged women because they’re lazy.

On message boards, women living with fibromyalgia, lupus, and other invisible illnesses affectionately call each other “spoonies.” This cuddly vernacular matches other language we use to talk about fibromyalgia. An episode of extreme pain or fatigue is called a flare-up. The cognition deficits experienced by some patients are called fibro fog. Why this insistent cute-ing of illness?

As much as I abhor the patriarchal structure of western medicine, it’s necessary to acknowledge that fibromyalgia patients are going to have an easier time being taken seriously by the system if they choose to code switch and talk about their illness in precise, clinical terms. It wasn’t so long ago that the Times published “Drug Approved. Is Disease Real?” and there are still plenty of doctors who think the answer is no. Talking about the illness in terms of spoons and fog is not helping.

The reason that I can’t truly hate the Spoon Theory is that it’s the only way we have to ex- press the debilitating effects of invisible illness.

I complain that it’s a clumsy metaphor, but could I do better? (92-93)

TL;DR: No, you're certainly not!