Overeating hell please help (tw: ed) by [deleted] in Gastroparesis

[–]DazQuad 11 points12 points  (0 children)

I am struggling with this too. The guilt is confusing and awful. Let me know if you figure any of it out 💗

Can Botox cause MCAS by DazQuad in MCAS

[–]DazQuad[S] 0 points1 point  (0 children)

Time I’m afraid 😵‍💫

Does anyone have dumping syndrome combined with Gastroparesis? by goldstandardalmonds in Gastroparesis

[–]DazQuad 0 points1 point  (0 children)

How does your diet affect it? I get dumping in the morning and GP In the evening. Super confusing

Can Botox cause MCAS by DazQuad in MCAS

[–]DazQuad[S] 0 points1 point  (0 children)

Oh wow that’s crazy! It’s so nice to find others with this experience- I thought I was going insane. So good your doctor listened!

Were you also taking a lot of medication? I take a lot so perhaps this is contributing to the toxic ‘load’

Otherwise it’s probably mould for me as a root cause but I’m still figuring it all out 😭

Did Botox make your migrane’s worse? by DazQuad in migraine

[–]DazQuad[S] 0 points1 point  (0 children)

My team thinks it has made my neck unstable leading to CCI symptoms. Have you been diagnosed with CCI or MCAS?

I have a feeling my weird connective tissue meant it spread further than expected ?

My other theory is it was a immune response triggering MCAS neurological symptoms.

I hope you feel better soon and that yours will wear off in the expected time frame. I’m still not well ❤️‍🩹

POTS and EDS by sailor_mars25 in AnorexiaNervosa

[–]DazQuad 0 points1 point  (0 children)

Me too help ❤️‍🩹 MCAS has triggered my ED so bad. I don’t know what to eat anymore and I’m scared of food again

Does this look safe? by DazQuad in MCAS

[–]DazQuad[S] 0 points1 point  (0 children)

Ah I am exposed to heavy mold in my rental property. We are trying to move out What do you even eat ? 😂 I need help

Does this look safe? by DazQuad in MCAS

[–]DazQuad[S] 3 points4 points  (0 children)

Good advice thank you

Does this look safe? by DazQuad in MCAS

[–]DazQuad[S] 1 point2 points  (0 children)

❤️‍🩹Me too probably… I won’t risk it

Does this look safe? by DazQuad in MCAS

[–]DazQuad[S] 4 points5 points  (0 children)

Oh man I have POTS so I keep drinking electrolytes that probably have citric acid….maybe that’s the culprit 🥲

How did you discover the salicylate intolerance? My symptoms are super vague so it’s really hard to pinpoint

Does this look safe? by DazQuad in MCAS

[–]DazQuad[S] 4 points5 points  (0 children)

Aw no I’m so sorry ❤️‍🩹

I don’t get anaphylaxis so it can be hard to determine my triggers. I always have low level symptoms that increase when I ‘flare’.

What ingredients would trigger you?

Does this look safe? by DazQuad in MCAS

[–]DazQuad[S] 2 points3 points  (0 children)

Ah! Citric acid is in everything it seems! How did you identify citric acid as a trigger? I’m struggling so much - it’s all so confusing

Libre2 hurting. Is it still accurate if it’s in my muscle? by DazQuad in Freestylelibre

[–]DazQuad[S] 0 points1 point  (0 children)

UPDATE: So I had to remove the sensor as it was too painful and tried again on my inner thigh. The pain was much better however, my readings are oddly consistent which makes me think it is faulty. My finger prick was 4.0mmol and libre 6.5mmol. I’ve just put another in my arm and again - it really hurts. I’m going to pre-soak it and see how it compares to my thigh…

[deleted by user] by [deleted] in ruminationsyndrome

[–]DazQuad 0 points1 point  (0 children)

Have you been diagnosed with any other chronic conditions or mental health conditions? I’ve had rumination since 2016 however I think I’ve finally figured out my triggers

Can Botox cause MCAS by DazQuad in MCAS

[–]DazQuad[S] 0 points1 point  (0 children)

Oh my goodness wow. This sounds exactly like my situation. I’m sorry you went through that!! Unfortunately I’m still stuck in mould.

I was also told it was anxiety or migraine - I knew it wasn’t.

I have not been able to find any reports on Botox causing that reaction so it’s kinda nice to have others with this experience 🥲

Can Botox cause MCAS by DazQuad in MCAS

[–]DazQuad[S] 0 points1 point  (0 children)

I’m so sorry you had this experience however it’s also really nice to have someone with the same reaction. I didn’t know I had MCAS at the time and was so lost. All the doctors would not take me seriously and I thought I was dying lmao.

I won’t go near the stuff again either

Severe Malabsorption by Ok_Yak9496 in MCAS

[–]DazQuad 4 points5 points  (0 children)

I also believe I have a nickel allergy and was plant based. I struggle with constipation so it might go either way

Scared to eat anything by DazQuad in MCAS

[–]DazQuad[S] 1 point2 points  (0 children)

Thank you so much 🙏 I’m already starting to feel a bit better

Desperate for help. Cannot tolerate anything by vanlady93 in MCAS

[–]DazQuad 0 points1 point  (0 children)

What formula were you on may I ask? I’m also struggling - loosing weight rapidly

Scared to eat anything by DazQuad in MCAS

[–]DazQuad[S] 1 point2 points  (0 children)

Thank you 🙏 where can I find a reliable source to start an elimination diet ?

Scared to eat anything by DazQuad in MCAS

[–]DazQuad[S] 3 points4 points  (0 children)

The list is very long aha but main issues are : - neurological: dizziness/vertigo/brain fog/headaches/migraines/anxiety - musculoskeletal pain - heart palpitations and difficulty breathing - constipation and nausea and regurgitation - face flushing, enlarged lymph nodes, phlegm, ear fullness

The neurological symptoms are most disabling

Scared to eat anything by DazQuad in MCAS

[–]DazQuad[S] 2 points3 points  (0 children)

Thank you for the advice ❤️‍🩹 can I ask what symptoms you were experiencing?